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Hi my father was diagnosed with a third reccuance of bladder cancer in 10 months. This time they think it’s invasive. We were told he’d hava TURBT within 2weeks and act scan. As we’ve heard nothing I called hospital and they’ve said the firs r available appointment 22/3 Which will be 7 weeks . I asked about the 31 day to treatment guidelines and was told they’d never heard of it! I and if it apples he’s already had treatment so it wouldn’t apply to him. Is this correct? I’ve left a message for cns a week ago no response.
im concerned because he’s getting intermittent stomach pain and occasionally an upset stomach with it. Also he’s ankles slightly swelling at the end of the day. Is there a possibility it’s all connected? Not sure if we’re looking too much into things. We were just shocked that the tumour had grown from nothing to 3cm possibly invasive in 3 months and waiting another 7 weeks seems a long time.
any advice would be much appreciated
Hi Worried child,
Thanks for getting back in touch. It sounds like your dad has been through a lot in the last 10 months. It’s never easy to be told your loved ones cancer has returned and it’s only natural to feel anxious about the delays in starting treatment.
The cancer waiting time guidelines are in place for people who are going through the initial diagnosis and treatment. Unfortunately, there are not specific guidelines in place for people who have already been diagnosis and needing further treatment.
It would be unusual for a cancer to change significantly within a short number of weeks. But as Fiona said in her reply on Friday, it would be worth getting back in touch with your dads CNS or consultants secretary to let them know of these new symptoms and his appointment date.
It’s difficult to say for sure whether his symptoms are connected to his cancer or not. Sometimes when we are worried and anxious they can make our symptoms seem worse.
Sometimes it can be helpful to get in touch with the department that have arranged your dad’s procedure to ask if he could be considered for a cancellation appointment, if he could be available short notice.
Many people find it more useful to chat through their concerns over the phone. If this is something you feel you may benefit from, please don’t hesitate to give us a call. We are available 8am-8pm 7 days a week on 0808 808 0000.
Take care and best wishes,
Amy (Macmillan Information Nurse Specialist)
Many thanks for information. I have spoken to medical secretary and Dad is having his pre op Thursday so he can go on cancellation list. I have left another message for CNS.
He is a lot of discomfort today but has started going for little walks which seems to have brightened his mood. Many thanks
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