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Do you have a question about cancer? Our Digital Nurse Ellen or one of our specialist nurses will aim to respond within 2 working days.

er8

Anonymous
Posted by Anonymous

I have just received my report following surgery for grade 2 invasive ductal carcinoma and right axillary clearance and I am waiting to see oncologist the report states ER8 PR8 HER 2 negative can you explain please worried may need chemo

regards

jill

Carolyn28
Posted by

hi Jill

It is always possible you'll be advised to have chemotherapy for invasive ductal carcinoma.

Don't panic.

I couldn't avoid chemo because my tumour report showed it was Her2+++ and I can see that you are Her2 negative, so in light of that piece of information only , it is good news.  For the hormone receptors ER8 and PR8 I'm going to tag someone else to have a look at this

  

I hope you're watching the thread as I don't think I can tag you to alert you because you posted as anon.  If you'd like to join the breast cancer group there's plenty of lovely people there to offer words of support and virtual hugs.

Carolyn

x

 real life success stories to remind you that people do survive breast cancer

https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457

Dr Peter Harvey

https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

 

Crystaljuju
Posted by

Hi Jill

A warm welcome to the Community.

On the basis you've had Axilla clearance, you had lymph node involvement to start with? the scores are good because the scoring system is out of 8. You have 8/8 which means your BC likes oestrogen and progesteron alot to grow. You will be offered hormonal therapies after treatment such as tamoxifen For 5 to 10 years. It will depend on whether you are pre or post menopausal To what drug you are given. These drugs suppress the oestrogen your body produces so to starve the BC of it To prevent it coming back.

Whether you have chemo will depend upon the size of your tumour And how extensive the lymph node involvement was. There is the  Onco type test which is used for ER diagnosis to give you a scientific score of how useful chemo will be to you.  I would prepare for that conversation with your oncologist.

Do come back to us with any other questions.

julia X  

Ps I've just noticed this thread was in the 'ask the nurse' section. I'm not a nurse but do have knowledge of BC having had a diagnosis myself. 

Cancer may start the fight but you can finish it

mistymoley
Posted by

A nurse should get back to  you within 3 (working?) days, so bear with them. 

Helen

I am not medically qualified, please consult your doctor or undertake your own research.

Kacang
Posted by

Hi Jill. Do join the breast cancer group - we're a friendly bunch and you can get lots of useful info from people who really understand as they have been there!

As for chemo, yep it's horrible but somehow we manage to get through it. I didn't hesitate for a moment as I wanted to do everything possible to reduce the risk of recurrence or metateses No guarantees of course but I would hate not to have done everything. I've had surgery, chemo, radio, Herceptin (for HER2+ so you won't be offered that), hormone blockers, and denusomab (bone strengthening with cancer inhibiting properties). I'll take anything my onco suggests.

I had a rough time with chemo, especially the first part (I had AC, but EC is more common in the UK). Another frequent contributor here had a rough time with T (), and some sail through both. Every journey is different. Despite everything, if I had my time over I'd do the same again.

Wishing you the very best

Lynn xx

Lynn xx 

Ellen M-Macmillan
Posted by

Anonymous

I have just received my report following surgery for grade 2 invasive ductal carcinoma and right axillary clearance and I am waiting to see oncologist the report states ER8 PR8 HER 2 negative can you explain please worried may need chemo

regards

jill

Hi Jill

I’m sorry that you’ve been diagnosed with breast cancer. It’s natural to worry about treatments that you may need to have. It’s difficult for us to say whether you may or may not need chemotherapy. The reason for this is that breast cancer is complex and everyone’s situation is different.

Your cancer team looks at different factors to help decide which treatments are likely to work best for you. These include the stage and grade of the cancer and whether the cancer cells have hormone (oestrogen) receptors or HER2 receptors.

You don’t mention what size your cancer was or whether your axillary nodes were clear or negative. Although I’m wondering if you had a positive lymph node and this is why you needed an axillary clearance? This may influence their decision as to why they would or would not recommend chemotherapy.

Doctors tend to make decisions about treatments once they have all the results available. At present you don’t seem to have all your pathology results. This information from Breast Cancer Care about understanding pathology results may be helpful to read.

I can see you’re getting a lot of support from the breast online community, I hope you’re finding it helpful. has explained what your results mean so far really well. Whether or not the Oncotype DX test will be suitable for you at present is unclear as this is usually only helpful if your nodes were negative.

We would suggest that when you see your oncologist that you think about what questions you may want to ask.

I hope all goes well when you see your oncologist.

Please don’t hesitate to get back in touch.

Best wishes,

Ellen (Macmillan Information Nurse Specialist)

Anonymous
Posted by Anonymous

Hi  many thanks for reply my cancer was invasive ductual grade 2 size 20cm.sentinel node was positive therefore they removed 16 others which were clear.  I am waiting for oncoptype results do you think chemo will be required

regards jill,

Crystaljuju
Posted by

Really difficult to say but then that's the reason the oncotype test is good because it takes the guess work out of it. The test results may come back borderline for chemo which will put you in the driving seat  As ultimately the decision will be yours. 

See what the results say xx

Cancer may start the fight but you can finish it

Anonymous
Posted by Anonymous

many thanks if I did need chemo how long does it take ?

Crystaljuju
Posted by

It depends on the regime but most common is 3 x 3 weekly cycles of certain drugs then a switch to 3x 3 weekly cycles of another drug. All in all nearly 4 months Then recovery. 

Cancer may start the fight but you can finish it

Anonymous
Posted by Anonymous

Many thanks how long is recovery usually before you start radiotheraphy?

Carolyn28
Posted by

Hi Jill

I'm on my iPhone at the moment but did Ellen post a link to the breast group ?  We get about 6 new members every day and everyone has a slightly different experience. 


If you're going to be online for a few mins I'll pop to my laptop and send a link. 


I had invasive ductal but Her2 + so I had more chemo ...   Wait there


Carolyn

X

 real life success stories to remind you that people do survive breast cancer

https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457

Dr Peter Harvey

https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

 

Crystaljuju
Posted by

If there are no glitches with recovering from chemo, anything from 4-8 weeks. It can be longer however. 

Cancer may start the fight but you can finish it

Carolyn28
Posted by

hi Jill

I can't recommend joining the breast group highly enough, there's plenty of women going through pretty much what you're experiencing and you get to share information, have a bit of a rant and just be around people that 'get it', if you know what I mean.

click either of these links, you can chat to people 24/7 as we have people from all over, Lynn is in Australia,   so she's around when you can't sleep   : )

https://community.macmillan.org.uk/cancer_types/breast-cancer/

Breast Cancer Online Community 

 real life success stories to remind you that people do survive breast cancer

https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457

Dr Peter Harvey

https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

 

Anonymous
Posted by Anonymous

many thanks for your help will join tomorrow, but will be good to talk to someone who understands husband thinks I am out of hospital walking and trying to cook I am fine !!!! you know what I mean

regards

Jill