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Hormone tablet and injection

manda09
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Hi can you help or give a little advise. I went with my dad today to get his results from a prostate biopsy and MRI. He has a gleeson of 4/5 psa 13 and starting hormone tablets and injections. It's spread to his lymph nodes abs looks like his bones although we're getting bone scan to confirm. What I want to ask I couldn't when I was in with dad getting results is this. The consultant said the hormone treatment lasts 18 months but some people have been on it for years I'm confused is my dad given 18 months and you never know he may go on a few more I didt understand and should of asked but didt want to come out with how longs he got. I know everyone is different and no one can say. But I'm confused by the 18 month bit. And if it has spread to the bones is it cutting his time even more. I'm waffling sorry he's my rock my hero I just searching for answers I know every one wants to know and for which there are no answers. Many thanks Manda 

Ellen M-Macmillan
Posted by

manda09

Hi can you help or give a little advise. I went with my dad today to get his results from a prostate biopsy and MRI. He has a gleeson of 4/5 psa 13 and starting hormone tablets and injections. It's spread to his lymph nodes abs looks like his bones although we're getting bone scan to confirm. What I want to ask I couldn't when I was in with dad getting results is this. The consultant said the hormone treatment lasts 18 months but some people have been on it for years I'm confused is my dad given 18 months and you never know he may go on a few more I didt understand and should of asked but didt want to come out with how longs he got. I know everyone is different and no one can say. But I'm confused by the 18 month bit. And if it has spread to the bones is it cutting his time even more. I'm waffling sorry he's my rock my hero I just searching for answers I know every one wants to know and for which there are no answers. Many thanks Manda 

Hi 

I’m sorry that your dad has been diagnosed with prostate cancer. It’s common to feel confused about things when you’re getting lots of information. It can be overwhelming and difficult to ask questions especially when you dad is with you. Often we feel we would like to ask things but want to support and not upset the person who has cancer.

If someone’s prostate cancer has spread to the lymph nodes this is called a locally advanced prostate cancer, this doesn’t mean that it has definitely spread to the bones but the doctors would want to stage the cancer (see if the cancer has spread) and this is why they have asked for a bone scan. If your dad’s cancer has spread to his bones this would be an advanced prostate cancer.

I’m unsure about what the consultant meant by the treatment lasting 18 months. He may have meant your dad would be on hormone treatment for 18 months. Even if your dad’s cancer has spread to his bones many men can survive for years with secondary bone cancer with treatment although the cancer would not be curable. Decisions about the best way to treat your dad depends on the grade, stage PSA level and his Gleason score.

It’s difficult for us to talk about how long someone will live for as everyone’s cancer is different and unique to them and everyone responds differently to treatments.

This information from Cancer Research looks at outlook and survival for prostate cancer. It’s important to understand these are average figures and cannot tell you where your dad’s will be. These figures do not take into account newer treatments that have been used in the last few years as statistics are about people treated in the past.

We would suggest that if with your dad’s permission you spoke to his specialist nurse or key worker to clarify things. Things may not be as bad as your thinking and they should be able to help you understand what his consultant meant.

Once your dad has his bone scan result they should be in a better position to answer your questions more specifically. They will only be able to give average figures. Our questions to ask can be a good way to focus on what you and your dad may want to ask the consultant or nurse.

It’s important that you get support too and our in your area link should help you access support locally.

Alternatively you may find it helpful to contact our Cancer Information and Support Service by telephone. You can call free on 0808 808 00 00, Monday to Friday, 9am-8pm, and ask to talk to a cancer information nurse specialist who will be happy to provide you with information and support.

 

Please don’t hesitate to get back in touch

Best wishes,

Ellen (Macmillan Information Nurse Specialist)