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Staging?

GA99
Posted by

Hi could you tell me anything about stages?

I was diagnosed with FNHL stage 3 indolent lymphoma in may I've had one cycle of chemo (R-bendamustine) and today I saw the consultant who said.. The BONE marrow biopsy I had done approx 4 weeks ago has come back showing disease and therefore it is stage 4 not 3 as first thought.

I have felt positive all the way until today I feel so low and don't understand this staging?

I start 2nd chemo in a few days time.

Any info would be appreciated.

Thank you.

Ellen M-Macmillan
Posted by

GA99

Hi could you tell me anything about stages?

I was diagnosed with FNHL stage 3 indolent lymphoma in may I've had one cycle of chemo (R-bendamustine) and today I saw the consultant who said.. The BONE marrow biopsy I had done approx 4 weeks ago has come back showing disease and therefore it is stage 4 not 3 as first thought.

I have felt positive all the way until today I feel so low and don't understand this staging?

I start 2nd chemo in a few days time.

Any info would be appreciated.

Thank you.

Hi  

I’m sorry that you’ve been diagnosed with a stage 4 FNHL. It’s not uncommon to feel low when you’re told one thing and then further tests come back and your cancer has been given a different stage.

When NHL are diagnosed it’s important that they stage the cancer as this helps the doctors to make treatment decisions .This information from cancer research explains staging for NHL in an easy to understand way.

It’s common to feel confused about different information about your cancer and what this means to you. We would suggest you talk to your specialist and ask if this affects your treatment and outcome. Doctors and nurses are used to patients asking further questions about their cancer and treatments as they appreciate how it can be difficult to understand information.

Often talking to your GP or specialist nurse can be helpful if you’re feeling low they can offer or signpost you for support.

Here is a list of other organisations that can support people affected by NHL.

You can always call our helpline if you wanted someone to talk to. We often find that we can help people more by speaking with them directly on the phone. You can call 0808 808 0000, Monday to Friday, 9am-8pm, and ask to talk to a Macmillan Information Nurse Specialist who will be happy to provide you with information and support.

Please get back in touch if you need anything.

Best wishes,

Ellen (Macmillan Information Nurse Specialist)