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Jess E - Macmillan
Posted by

Do you have a question about cancer? Ask your questions anytime here on the Online Community, and our specialist nurses will get back to you.

Whether your question is for you or someone else, about post- treatment, survivorship, mental health and cancer or anything cancer related, our nurses will do their best to answer your questions. All the nurses also work on the Macmillan Support Line (0808 808 0000 Mon-Fri, 9am-8pm)


Right now we have Ellen, Karla, Amy and Carol to answer your questions. To ask a question, click any 'reply' button (after logging in) or click the image above. Our nurses will try to respond to your question within 2 working days.

Although we make every effort to ensure accuracy, Macmillan Cancer Support cannot accept liability for this information, or for third-party information such as other websites to which we link. If you are concerned about your health you should consult your doctor. Please bear in mind that your question can be read by others - don't post your contact details or any other information that could personally identify you. All answers will be based on information that is correct at the time of posting. 

tibbsy12
Posted by

My husband underwent 30 radiotherapy sessions for tongue and throat cancer, the last of which was on 16th December.  The only thing he can eat\drink is Ensure drinks and Fortisip drinks and water.  He can swallow as he has been prescribed antibiotics for an infected sebaceous cyst on the back of his neck and he is on morphine sachets and strong co-codamol - is also very down in himself..  His Dietician wants him to drink 6 a day but I can see him wasting away.  I have tried to tempt him with loads of things but he will not try anything.  Can a male of 5ft 11" who used to be 12 stone and is now just under 10 stone survive on a diet such as this?  Its really worrying to see how ill he looks and obviously the tiredness is now kicking in.

Susan1962
Posted by

Hi, I had 2 lymph nodes and 2 lumps removed on 9th December. I have been told that I require chemo,hormone therapy and radiotherapy. When I came round after the operation I was told that I had Atrial fibrillation, which I was not aware I had, or it may have been a result of the operation. My first appointment with Oncology is on 12th Jan where I should be given details of when my chemo will start. I have a 1st appointment with Cardiology the following day on 13th Jan regarding the Atrial Fibrilation. My question is, will having the Atrial Fibrilation hold up my treatment for cancer, which I am worried about, would not like it to hold up the cancer treatment.

Kind Regards

bella77a
Posted by

hi I'm also on the womb cancer page .in October I found out that not only did I win the fight of womb cancer only to find out iv got a secondery one on my pelvis ..I was put on a trial drug that contained silver .that was in nov last year but I couldn't stay on it for long as it made me ill etc ..but I would like to no more about pelvic cancer and whats infront of me ...not only that but my mouth is very sore and I'm very tiered just lately  just no energy what so every .and every muscle and bone in my body aches ..I do feel very alone at times

Amrees

Nickinoonah
Posted by

I am on my 5 radiotherapy session for vulvar cancer , I have had the lymph nodes taken out in left groin but not right groin.I seem to have a lump inter right groin which aches and by morning seems to go down.is this normal please help 

Nickinoonah

Monaj
Posted by

Hello.

My mum moved away from the UK a couple of years ago. She has always had really heavy periods and very painful too. An external ultrasound showed a fibroid. She had her ovaries and uterus removed. Yesterday she got her results and they are as follows. Left and right ovaries. Bilateral papillary serous carcinoma. Tumor sizes. Right ovary: 3.5 x 3.5 x 1.7cm Left ovary: 0.2 cm. WHO histological grade: moderately differentiated (LOW GRADE). Bilateral ovarian capsules: intact. All margins are free of tumor. Pathological stage: mpT1b Nx.


The country she is in is so unclear about her condition. She is crying her eyes out that she knows it's cancer and she has lost all hope. 

I am really worried. Can you help out and tell me what is actually going on. I am so very grateful to you all to have read all this. Much thanks. 

schkra
Posted by

My mother has ovarian cancer. Chemotherapy circle 4 completed but unfortunately stopped due to insufficient fund. The grand problem is, She releases white something (the call puss) through urinal with foul smell. She has been catheterized and diapered from the day 2 of operation that removed some parts along with dermoid cyst and it's been more than a year (since December 22, '14). She takes three types of antibiotics daily to minimize the release and foul smell. The catheter gets blocked due to pass every 6-7 days and we have to replace that else urine starts bypassing the catheter. Big issue, for last two days, the release of white puss got maximum and we have changed catheter twice and washed once but still urine bypassing pouring into euro-bag. We use 18 no catheter pipe and now applied huge 22ml qty of water to fill the baloon to block the path but still unsuccessful to prevent. Advise how to stop urine bypassing catheter.

Amy C- Macmillan
Posted by

tibbsy12

My husband underwent 30 radiotherapy sessions for tongue and throat cancer, the last of which was on 16th December.  The only thing he can eat\drink is Ensure drinks and Fortisip drinks and water.  He can swallow as he has been prescribed antibiotics for an infected sebaceous cyst on the back of his neck and he is on morphine sachets and strong co-codamol - is also very down in himself..  His Dietician wants him to drink 6 a day but I can see him wasting away.  I have tried to tempt him with loads of things but he will not try anything.  Can a male of 5ft 11" who used to be 12 stone and is now just under 10 stone survive on a diet such as this?  Its really worrying to see how ill he looks and obviously the tiredness is now kicking in.

Hi ,

I’m sorry your husband is having such a difficult time. I can fully understand why you are so worried about his weight loss.

It is normal for symptoms to continue to get worse for a few weeks after treatment finishes. For most people things will then start to gradually improve and should see an improvement after 6-8 weeks. It’s also normal for him to feel low in mood once treatment finishes.

Some people find they may need NG feeding for a short period. You can speak to the dietician if you feel things aren’t starting improve. There is also a range of other things that can help manage symptoms.

You might find it helpful to read our building up diet and eating problems information.

It’s important that you look after yourself too. You might find it helpful to call our support line. If you’d like to talk to me or one of my cancer information nurse colleagues we are available through our free helpline number 0808 808 0000 between 9am and 8pm from Monday to Friday

If you need any further support please get back in touch.

Best wishes,

Amy (Macmillan Information Nurse Specialist)

 

Amy C- Macmillan
Posted by

Susan1962

Hi, I had 2 lymph nodes and 2 lumps removed on 9th December. I have been told that I require chemo,hormone therapy and radiotherapy. When I came round after the operation I was told that I had Atrial fibrillation, which I was not aware I had, or it may have been a result of the operation. My first appointment with Oncology is on 12th Jan where I should be given details of when my chemo will start. I have a 1st appointment with Cardiology the following day on 13th Jan regarding the Atrial Fibrilation. My question is, will having the Atrial Fibrilation hold up my treatment for cancer, which I am worried about, would not like it to hold up the cancer treatment.

Kind Regards

Hi ,

I can understand you’re worried about your treatment being delayed due to arterial fibrillation (AF).

Some chemotherapy’s affect the heart more than others, so it will depend what type you are due to have. Your oncologist will speak to the cardiologist if they are concerned about starting chemotherapy before you have your cardiology appointment.

We have information about heart health that you may find helpful. You can also order a more detailed booklet from be.macmillan. You may also find our information about keeping your heart healthy useful.

Being diagnosed with cancer and waiting for treatment to continue can cause a wide range of emotions. It’s normal to feel like this. It may help to prepare some questions in preparation for your appointments.

If you need any further support please get back in touch.

Take care,

Amy (Macmillan Information Nurse Specialist)

 

Amy C- Macmillan
Posted by

bella77a

hi I'm also on the womb cancer page .in October I found out that not only did I win the fight of womb cancer only to find out iv got a secondery one on my pelvis ..I was put on a trial drug that contained silver .that was in nov last year but I couldn't stay on it for long as it made me ill etc ..but I would like to no more about pelvic cancer and whats infront of me ...not only that but my mouth is very sore and I'm very tiered just lately  just no energy what so every .and every muscle and bone in my body aches ..I do feel very alone at times

Hi ,

I’m sorry you have been told you have a secondary cancer in your pelvis. It’s unclear if you mean the pelvic bones or pelvic cavity. If you can clarify this, I will be able to give you more accurate information.

Sometimes when you are feeling so low, it can help to talk to someone. If you think this would help, you can call talk to me or one of my cancer information nurse colleagues. We are available through our free helpline number 0808 808 0000 between 9am and 8pm from Monday to Friday.

I look forward to hearing from you.

Take care,

Amy (Macmillan Information Nurse Specialist)

 

jojomomo
Posted by

Hi guys...just wondering if there is an optimal limit for radiotherapy to have occurred by after chemo and surgery for breast cancer??

Ive had treatment for stage 2, grade 2 IDC & DCIS left breast but had failed therapeutic mammomplasty..necrotic wound leading to 4 surgeries and still wound ussues ongoing. Its now been 11 weeks since initial op, completed neo adjuvant chemo on 1st Sept.  I did have clear margins and nodes after initial op.Think its gonna be atleast another month fir healing to occur. 

Its starting to niggle at me now.

Thanks.

Look a new day has begun...

Noemmi
Posted by

My mum was diagnosed cancer in October 2015, the tumour was very localised and there was not metastasis. She had an hysterectomy in November and all test in December came back clear, but she’s going to start chemo next Monday in order to avoid the cancer to come back and I don’t know how can I help her. I’m from Spain and live in London, so I won’t see my mum very often.

I’ll go home in March, after she has had 3 chemo sessions. She’s going to lose her hair and that’s going to affect her psychologically. Also all the side effects from chemo, being tired, nausea, sickness, losing weight, etc.

I don’t know how I can help her, how can I behave with her and how to prepare myself for the treatment, etc.

It would be great if you can help me or direct me to some support group.

 

Thanks 

bevdin
Posted by

Hi everyone ... i am looking for some advice and guidance ... this site has helped me in the past and i know its a site i can trust.. as i have had 2 scares in the last few years.. thankfully every thing turned out ok.... a few years ago i found a lump on my right breast and was dealt with in the 2 weeks .. i was told that the lump was breast tissue .... today i notice that the muscle on the top of the breast [ by the collar bone] on the right side is now more prominent and harder than the one on the left.... my question is should i go and get this checked out with my g.p as i feel that as i have had 2 scares in 2 years [breast and ovaries] that they may feel that i am a hypochondriac ... I also don't want to waste the time of the hospital if they send me if this is nothing to be concerned about ....

Cath48
Posted by

Hi

I am very worried about going back for my results, 1 cm lump ductal invasive bc, two nodes removed csncer in first but not in second, I'm hoping that's good.

I was supposed to go Monday 11-1-16 just had phone call to say due to bank holidays my appointments a week later, I'm devastated !

My worry is that the cancer is so where else as well, the bcn said I'm sure they would have already checked with the biopsy, is that correct. ?


Cath smith 

Amy C- Macmillan
Posted by

Nickinoonah

I am on my 5 radiotherapy session for vulvar cancer , I have had the lymph nodes taken out in left groin but not right groin.I seem to have a lump inter right groin which aches and by morning seems to go down.is this normal please help 

Hi ,

I’m sorry you are experiencing a lump and ache in your right groin. It’s very common for people to worry about any new symptom they experience, in case it may be caused by their cancer.

There are a lot of lymph nodes in the body particularly in the neck, underarm and groin. It’s their job to fight any bacteria or virus so it can be normal for them to swell and settle.

Given the fact you have had surgery to the lymph nodes on the left side and are having radiotherapy I would encourage you to contact your specialist nurse or oncologist. Or you can mention to the radiotherapy team at your next session.

It would be unlikely related to your cancer if it continues to come and go like you mention, but its best to have it reviewed.

I hope this helps. Please get back in touch if you have any more questions.

Best wishes,

Amy (Macmillan Information Nurse Specialist)