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I have just finished FEC had my first T on the 5th Jan. Ihave bleed from the 7th. This period has been at medium flow. Until today. I have had to change every hour. I am getting clots the size of plums and loads just falling out of me. I am getting tired. It doesn' help I have anaemia on 900mg of iron tablets aday. Ive also have fibroids and endometriosis. I have never passed this many clots in one day. Is this normal.
Thanks for your question.
It sounds as if you’re struggling just now. It can’t be easy having to cope with heavy periods as well as having anaemia. This will no doubt be adding to the tiredness that you’re feeling.
We would suggest that you call your chemotherapy unit this morning on the 24-hour number that they have given you. Bleeding to the extent that you’re describing is not normal and needs to be investigated. Whilst it could be due to your history of fibroids and endometriosis, your platelet count (these help to clot the blood to prevent bleeding) could be low due to your chemotherapy treatment.
Best wishes and take care
Ellen-Macmillan Online Digital Nurse Specialist
I contacted the chemo team. Was advised if there was any more clotting to go straight to A&E. Luckily enogh it slowed down. I saw my consultant I was given zoladex today. So I really hope this will help me. Thankyou for your advice.
Hello. Sorry to jump on the band wagon, but I started my first chemo treatment on the 2nd of this month . 3am this morning I woke up thinking I'd wet myself. My underwear was soaking. Upon reaching the toilet and sitting down, clotts just fell out of me. I'm not due my period for another 5/6 days , however it' not unusal to come on early. But I've never ever had this before. I called the out of hours number and was told to keep an eye and go to A and E if it continued. It did, so this morning round 8am I set off to hospital . They did all the blood count tests and my obs and so on. By this time the bleeding had settled to a semi normal flow ( though still not right for me) . They kept an eye and then sent me home . Bleeding was fine up until I went for a lay down and the cramping pain started, which is raw and very painful and I knew when I stood up I'd flood again. I did. Clotts again and blood all down my leg. ( I know I'm being quite on point with details , but for me it's important to tell my little story. Even if it helps someone with the same problem in any way). I' not sure what to do now . This can't be completly unheard of and I'd hoped there was more info online. I don't want to waste doctors time , but I also don't want anything dangerous to happen . Did yours sort itself out ? I need help .
Welcome to our online community.
It’s okay to jump in and ask a question. So, don’t apologise. I know that you’re asking Afrogirl, but as a nurse I would suggest that it’s okay to call your 24-hour chemo team again and ask for advice. Whilst it’s good that you’ve been checked out at A&E today, but it sounds as if things are getting worse. Don’t worry about thinking you’re wasting their time. They would rather you got reviewed again, than leave something that you needed to get assessed. Periods can be affected by chemotherapy, but having the bleeding you describe needs to be reported to your chemo team.
I see from your activity that you’ve already joined our thymus online group. That’s great to see as there is nothing quite like the support you can get from others in a similar situation. We also have a chemotherapy group that you might find helpful to join too.
Best Wishes and take care
The same happened to me. I have fibroids and endometrisis. I was told that the chemo will home in on all good and bad cells and make my symptoms emhanced due to my other health problems. Since starting my chemo in October 2017 I've had only 24 days of not bleeding. I have now been bleeding since the 7th Jan. And its' not letting up. Clotting is bearable now. But I couldn't move sneeze or cough without it all coming out and flooding. I saw my oncologist and I was given zoladex to stop my ovaries. But that hasn' woked either. When is your next appointment with your oncologist. Please speak to them.
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