Edometrial cancer.

Redren 15 days ago

1 reply
40 subscribers
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Diagnosed with endometroid cancer Dec 2024. Because of my heart Failure diagnosis/pacemaker earlier 2024 and Diabetes, They decided I was not suitable for hysterectomy or other treatment, except for the Mirena coil inserted during the biopsy. No staging was done as it would be complicated by heart issues and wouldn't help as they still wouldn't undertake any additional treatment. I have steadily had mucous-like clot bleeding since and was told that unless I used 4 pads a day, not to worry. Sometimes the loss is heavier than others.. quite clotting lumps, mainly when I use the toilet. What I am wondering is a) where is it all coming from still - does the lining keep on growing (despite my age 74yrs). and b) Will if affect my red blood count. I do feel tired , but this could be because of other reasons. I have no further tests planned, just a 6month follow-up phone call in June. c)How will I know if it gets worse or has spread.

Thanks

Anne - Macmillan 14 days ago

Hi Redren,

Welcome to the online community. I hope you have found it supportive so far. My name is Anne, and I’m one of the Nurses on the Support Line.

I’m sorry to read that you have been diagnosed with endometrioid cancer and due to other health conditions, are unable to have surgery or other treatments. I understand you have had the mirena coil fitted. The purpose of this is to counteract the effect of oestrogen which helps the cancer to grow, thereby slowing down progression.

Your healthcare provider is the best source of information for specific questions and concerns. You should have been allocated your own Clinical Nurse Specialist (CNS) who works closely with your consultant. They are there to help you with any queries you may have. If you’re unsure of their contact details, your consultant’s secretary would be able to provide you with their phone number. It's important they are aware of the bleeding and how this is affecting you. Do let them know that sometimes it is worse than others, as there may be ways to help manage this. Also, it may be worth asking for your bloods to be checked. If you are losing significant amounts of blood, it is possible you could be anaemic which would explain the tiredness. There may be other explanations for this, however, so do make an appointment with your GP to discuss your situation further.

I understand you are concerned about how you would know if the cancer was spreading. Your team at the hospital can advise you on what sort of follow-up monitoring you may expect. They may wish to carry out scans such as an MRI or CT scan. The British Heart Foundation has information on scans for people with pacemakers. Also, it’s important you let your team know if you experience any new symptoms. Specific symptoms you should look out for include tummy pain, a swollen tummy, bloating or a change in bowel habits.

Coping with cancer alongside other health conditions can be challenging. I do hope you have support round you from family or friends. Please remember we are only a phone call away if ever feel like talking things over with one of my colleagues.

Take care for now,

Anne - Cancer Information Nurse Specialist

You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.

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Edometrial cancer.