WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

Survey email

2026-09-14T08:29:28Z

Just had a server email off MacMillan, I don’t mean to be rude but it was a pointless survey asking questions about faith, earnings in the house, ethnicity, gender identification. I completed it with no reply answers, what a waste of questions....(read more)

News of the day

2026-09-12T17:29:54Z

Had my meeting and post MRI results are stable had my seizure medication review too. And left as before. So in all a good result(read more)

Today

2026-09-06T10:53:22Z

I’ve been thinking of adding to the my blog if I remember what I’m up to as well as any thing treatment, just to say life still goes on today I’m watching my partner playing hogwarts mean while I’m looking at tryin...(read more)

MRI and new onc nurse

2026-09-05T08:40:11Z

Monday is the next MRI and I’ll attend the next review rather than phone call. So I can see the scan, I do like to take a picture of what’s cooking in my noggin. I have a new oncology nurse; my previous two retired. I didn’t even kn...(read more)

Forum

2026-08-26T08:59:08Z

Use the forum reappeared which is good (read more)

Ill health retirement

2026-08-20T11:11:08Z

I tried asking for help in filling in a form for Ill health retirement. I visited my local hospital that has MacMillan help. But they were unable to help at all, only able to refer me to tenovus who also could not help. I know there are exemptions in...(read more)

Groups

2026-08-20T11:09:08Z

I see that chat has vanished with new/diagnose/etc. seems a bit off and people I guess can only rely on blogs I guess(read more)

Testosterone

2026-06-28T22:25:11Z

My bloods came back but I’m not sure what’s the right thing going on with them except my testosterone ( I hate typing that lol ) is low. So I’ll be given a check out for psa I think I can’t remember the type of doctor, but we&...(read more)

Bloods

2026-06-19T09:10:17Z

I am still on my gap because of my bloods were low. I’ve been very tired, a bit more than usual. My iron and other levels were under the cusps. This time I gave blood for the general and extra to check everything. They’ve told me fr...(read more)

Covid jab

2026-05-09T18:13:36Z

Had my Covid jab a day or so ago. Bas shivers and repeated being sick was hard to get warm and didn’t sleep. I thought was it worth it, very tired today and clumsier than usual. I’ll have a kip(read more)

A day

2026-03-31T12:59:59Z

Just an interim blog. Tired today, and itchy eyes; very annoying; I keep rubbing them like I’ll get three wishes.I do feel the cold a bit more these days, who knows-I must be getting old…er. A nice glass of orange juice in front of me, h...(read more)

Results

2026-03-06T11:48:09Z

Well it’s been seven months off chemo, and my bloods are still lowish for chemo but the MRI show it stable which is nice. June next hope everyone is ok please leave a message rather than just visiting x(read more)

Maggies

2026-01-19T23:15:51Z

Went to a maggies session, something to see how others are. I felt young there. Mixed personalities did get to me as one person butted in on everyone. Was annoying. But nice to see fellow patients and what they’ve been through. I enjoyed it exc...(read more)

Better

2026-01-13T23:40:42Z

Bad belly has gone and had results for my chemo. Blood works were out again. Iron level was low. Platelets were above a hundred but that’s no good for chemo. 49 th birthday was qu t happy birthday me. Goto wait 6 weeks again now before next b...(read more)

Bad belly

2026-01-03T15:10:06Z

Well went to A n E on New Year’s Eve. Stomach pains, after seeing not a lot of anyone. Useless people. They said it’s most likely gastro. I knew that. Hopeless. Just drank plenty and ate small(read more)