<?xml version="1.0" encoding="UTF-8" ?>
<?xml-stylesheet type="text/xsl" href="https://community.macmillan.org.uk/cfs-file/__key/system/syndication/atom.xsl" media="screen"?><feed xmlns="http://www.w3.org/2005/Atom" xml:lang="en-US"><title type="html">Well, I didn’t expect that!</title><subtitle type="html">My Bladder Cancer Journey</subtitle><id>https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/atom</id><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that" /><link rel="self" type="application/atom+xml" href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/atom" /><generator uri="http://telligent.com" version="12.1.2.21912">Telligent Community (Build: 12.1.2.21912)</generator><updated>2021-07-09T18:25:00Z</updated><entry><title>The CT Scan Results</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/the-ct-scan-results" /><id>https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/the-ct-scan-results</id><published>2021-08-18T13:01:00Z</published><updated>2021-08-18T13:01:00Z</updated><content type="html">It really is time to catch up with my story so far! &amp;nbsp;Time just keeps running away from me. I&amp;rsquo;m not sure if that&amp;rsquo;s a good thing or a bad thing. On the one hand this whole nightmare will be over quicker, on the other, life will just pa...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/the-ct-scan-results"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=719563&amp;AppID=40409&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="Urology" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Urology" /><category term="Eating" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Eating" /><category term="oncology" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/oncology" /><category term="nephrostomy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/nephrostomy" /><category term="sickness" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/sickness" /><category term="side effects" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/side%2beffects" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Hospital" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/chemotherapy" /><category term="CT Scan" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/CT%2bScan" /><category term="travel" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/travel" /><category term="stoma" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/stoma" /></entry><entry><title>My next meltdown</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/my-next-meltdown" /><id>https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/my-next-meltdown</id><published>2021-08-07T14:11:00Z</published><updated>2021-08-07T14:11:00Z</updated><content type="html">Having spent the weekend letting what I&amp;rsquo;d learnt from the consultation sink in and armed with a list of questions, I rang the Urology nurse on Monday morning and left a message on the answerphone for them to ring me. Luckily the nurse that rang...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/my-next-meltdown"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=719530&amp;AppID=40409&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="Urology" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Urology" /><category term="nephrostomy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/nephrostomy" /><category term="working" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/working" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Hospital" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/chemotherapy" /><category term="CT Scan" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/CT%2bScan" /><category term="smoking" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/smoking" /><category term="cannula" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/cannula" /><category term="operation" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/operation" /><category term="Oncologist" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Oncologist" /><category term="stoma" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/stoma" /></entry><entry><title>Consultation Day - Part 2</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/consultation-day---part-2" /><id>https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/consultation-day---part-2</id><published>2021-08-06T14:08:00Z</published><updated>2021-08-06T14:08:00Z</updated><content type="html">A very delayed update I&amp;rsquo;m afraid. This rollercoaster certainly sweeps you up and barely gives you time to catch your breath before plunging you to the depths again.&amp;nbsp;Anyway, my daughter and I headed off to the consultation armed with a face...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/consultation-day---part-2"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=719527&amp;AppID=40409&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="tumour" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/tumour" /><category term="Urology" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Urology" /><category term="cystoscopy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/cystoscopy" /><category term="nephrostomy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/nephrostomy" /><category term="ovaries" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/ovaries" /><category term="blood tests" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/blood%2btests" /><category term="Organs" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Organs" /><category term="vaginal" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/vaginal" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/chemotherapy" /><category term="Smoked" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Smoked" /><category term="uterus" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/uterus" /><category term="palliative" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/palliative" /><category term="CT Scan" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/CT%2bScan" /><category term="travel" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/travel" /><category term="Oncologist" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Oncologist" /><category term="stoma" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/stoma" /><category term="urostomy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/urostomy" /><category term="radiotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/radiotherapy" /><category term="cystectomy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/cystectomy" /></entry><entry><title>Consultation Day - Part 1</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/consultation-day---part-1" /><id>https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/consultation-day---part-1</id><published>2021-07-22T10:02:00Z</published><updated>2021-07-22T10:02:00Z</updated><content type="html">I really didn&amp;rsquo;t expect to be writing another post so soon but I am so emotional right now and thought I&amp;rsquo;d better write it down and try and pack it away.&amp;nbsp;
Its consultation day today but my appointment isn&amp;rsquo;t until 15:45 so quite ...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/consultation-day---part-1"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=719493&amp;AppID=40409&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author></entry><entry><title>The 2 week wait. Ha!</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/the-2-week-wait-ha" /><id>https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/the-2-week-wait-ha</id><published>2021-07-21T15:08:00Z</published><updated>2021-07-21T15:08:00Z</updated><content type="html">My consultation tomorrow is looming but my appointment isn&amp;rsquo;t until 15:45. Thank goodness I will have a shopping delivery and my granddaughters to distract me while I wait &amp;hellip;. no doubt for more Tales of The Unexpected.&amp;nbsp;
So back to my ...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/the-2-week-wait-ha"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=719490&amp;AppID=40409&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="Bladder cancer" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Bladder%2bcancer" /><category term="TURBT" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/TURBT" /><category term="Transurethral resection of a bladder tumour" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Transurethral%2bresection%2bof%2ba%2bbladder%2btumour" /><category term="Benign" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Benign" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Hospital" /><category term="surgeon" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/surgeon" /><category term="histology" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/histology" /><category term="CT Scan" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/CT%2bScan" /></entry><entry><title>Update so far before next step of the journey</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/update-so-far-before-next-step-of-the-journey" /><id>https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/update-so-far-before-next-step-of-the-journey</id><published>2021-07-21T08:45:00Z</published><updated>2021-07-21T08:45:00Z</updated><content type="html">I must finish recording the journey so far as tomorrow is a huge day and I&amp;rsquo;m dreading it. It&amp;rsquo;s just fear of the unknown and lack of control, I realise that. Hopefully the positivity can start tomorrow and I&amp;rsquo;ll be able to focus on th...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/update-so-far-before-next-step-of-the-journey"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=719488&amp;AppID=40409&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="tumour" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/tumour" /><category term="christmas" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/christmas" /><category term="TURBT" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/TURBT" /><category term="respite" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/respite" /><category term="Transurethral resection of a bladder tumour" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Transurethral%2bresection%2bof%2ba%2bbladder%2btumour" /><category term="working" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/working" /><category term="side effects" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/side%2beffects" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Hospital" /><category term="surgeon" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/surgeon" /><category term="histology" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/histology" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/chemotherapy" /><category term="catheter" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/catheter" /><category term="temperature" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/temperature" /><category term="operation" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/operation" /><category term="travel" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/travel" /><category term="paracetamol" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/paracetamol" /><category term="Garden" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Garden" /><category term="radiotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/radiotherapy" /></entry><entry><title>A delayed update</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/a-delayed-update" /><id>https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/a-delayed-update</id><published>2021-07-20T08:58:00Z</published><updated>2021-07-20T08:58:00Z</updated><content type="html">I haven&amp;rsquo;t been on here for a while as I&amp;rsquo;ve been trying to keep things as normal as possible but I&amp;rsquo;m back today with nervous belly. Why? Because tomorrow is Wednesday and the day after that is the day of my consultation. I haven&amp;amp;rsqu...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/a-delayed-update"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=719485&amp;AppID=40409&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="ultrasound scan" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/ultrasound%2bscan" /><category term="Urology" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Urology" /><category term="TURBT" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/TURBT" /><category term="oncology" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/oncology" /><category term="cystoscopy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/cystoscopy" /><category term="lumbar puncture" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/lumbar%2bpuncture" /><category term="Periods" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Periods" /><category term="oxygen" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/oxygen" /><category term="Transurethral resection of a bladder tumour" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Transurethral%2bresection%2bof%2ba%2bbladder%2btumour" /><category term="blood tests" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/blood%2btests" /><category term="Organs" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Organs" /><category term="working" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/working" /><category term="weight" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/weight" /><category term="swelling" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/swelling" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Hospital" /><category term="surgeon" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/surgeon" /><category term="Smoked" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/Smoked" /><category term="CT Scan" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/CT%2bScan" /><category term="smoking" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/smoking" /><category term="swollen" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/swollen" /><category term="catheter" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/catheter" /><category term="infection" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/infection" /><category term="temperature" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/temperature" /><category term="examination" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/examination" /></entry><entry><title>The beginning of the journey</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/the-beginning-of-the-journey" /><id>https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/the-beginning-of-the-journey</id><published>2021-07-09T17:25:00Z</published><updated>2021-07-09T17:25:00Z</updated><content type="html">I&amp;rsquo;ve started to write this today because, to be honest, I&amp;rsquo;m fed up with facing the unexpected. I can cope with most things, as long as I know what to expect. &amp;nbsp;And all that has just gone out of the window.&amp;nbsp;
I&amp;rsquo;ll start my st...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/posts/the-beginning-of-the-journey"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=719465&amp;AppID=40409&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="menopause" scheme="https://community.macmillan.org.uk/cancer-blogs/b/well-i-didn-t-expect-that/archive/tags/menopause" /></entry></feed>