Today is yesterday's tomorrow

House renovation take over...

2010-12-08T04:49:57Z

I almost titled this post as "Cancer? What cancer?" but I dont want to tempt fate! Patrick is doing so wonderfully at the moment that it almost feels like nothing is wrong. Of course I still have those awful middle of the night moments when I let myself think about the number of tumours in his liver and what the prognisis really is if the treatment does not work and I feel the whole thing all over again but during the day I am so happy that it feels like the treatment is working and there are no nasty side effects and he looks great.

We have been immersing ourselves in house renovations. We have gutted the inside of our house and now all the internal walls are back in, the new kithcen is in and today all the elctrics and plumbing is going back in. It is very exciting! I have let go the small hope I had about moving back in before Christmas and it actually relived a lot of stress. We will make it back in January sometime and we will be very, very happy!

Treatment continues - Blood sugar all over the place

2010-11-08T11:41:42Z

Patrick has started the second medication, Temodal, as part of the medical trial. He has 4 more days to go of this one and the Capecitabine and then all medication ends and this treatment cycle is over.

So far seemingly no side effects from the medication but I woke in the middle of the night last night to Patrick in some distress, clearly not aware of his surroundings and unable to talk properly. I called an ambulance and they tested his blood sugar level at 1.7!

I have been concerned about the symtoms for a while but he has not been keen to test levels reguarly. Last night changed his mind on that! Today we are checking blood sugar levels very reguarly in an effort to catch things before they get out of control.

Patrick saw his GP who seemed to want to admit him to hospital but the Nuclear Med guys think this is a symptom of the tumours in the liver (rather than actual diabetes) and think things will improve as the meds kick in over the next month. In the meantime we will monitor closely.

I went back to work today which was a little tough on 4 hours sleep but it has to be done. It is budget time and I need to get it together for the next couple of weeks.

The house renovations continue. The ceilings are going up today and it feels like it is going to come together :-)

the start

2010-11-05T10:25:58Z

I have been hanging around this site since I was waiting to find out what kind fo cancer my partner Patrick has, just over 2 months ago. It has helped me so much to know that I am not alone in dealing with cancer and that there are many many survivors and carers fighting this disease.

I am feeling the need, as Patrick starts treatment, to remember everyhting that happens so I thought a blog might be a good way for me to do that.

I am going to try and remember to live and love every day as the precious gift it is rather than always be waiting and worrying for what tomorrow might bring.

Patrick has come through the first week of his treatment including infusion of Lutetium (LU 177) for targeted radionuclide therapy for neuroendocrine cancer in a shining way! He is very, very tired but relatively well. We have had a lovely day together and looking forward to a quiet weekend......