ski

non health problems

2010-12-01T19:07:11Z

exactly 1 year after starting along the weary cancer path, i first bumped my head with DWP who invited me to a back to work medical, i attended and i was told i was awarded incapacity until jan 2012, as some of you probably have i have also had bumped heads with several other government depts, i put up the good fight and follow the rules, but i always seem to lose, there seems to be a very real lack of understanding out there, ( even with some doctors, not everything is in a book) , this lack of understanding is for the people who do not seem to fit into neat little tick boxes, sorry folks im moaning again, i should be on the muppet show as one of the grumpy old men.

ah well, god give me strength to fight the good fight , and maybe i can slay the dragon.

hugs and warm wishes to all out there, regards ski

a great weekend

2010-09-19T20:20:40Z

hi folks, thought i would just pop down a few of my thoughts, well as everyone does or tries, im just getting on with life taking it as it comes. ive loads of jobs round the house that i couldnt do before for 1 reason or another, so a couple of weeks ago i thought there are things that wont wait any longer, trees shooting up beside my boundary fence,fence needs painting,car needs work for mot,then the mot, then blow me, we had a problem with the water supply pipe to the outhouse, the garage roof needs re felting. So i decided whilst waiting for some more reconstruction treatment, i had best get stuck in.

with the help of my eldest we have got my old banger on the road for another 12 months, ive got 1 of the trees and roots out ( a beast of a job they came up against the outbuilding), painted 1 side of the fence, managed to isolate the water leak, so ive been busy, but still got things that are half done, waiting for me to get back to them.

my birthday yesterday ( all the fives fifty five ) all my grown up kids came to call, helped me felt the garage, had a good natter, lots of pressies, then off to a wedding reception for an hour, today has been a brill day as well with family, i took the wife out for a meal with some of my birthday money, so friends we dont live the high life, but thanks to my family and friends it has been a special time for me.

i may be a knacker, but im not dead yet.

to everyone out there best wishes and warmest regards from ski

hi everyone

2010-08-04T20:01:21Z

hi ya folks, here i am again popping in and out, seeing whats going on out there, and yes john ive read a few of your blogs and replies to blogs, and i also must say they are very good,its nice to say hello to you, kez i hope you are now relaxed with a nice hot chocolate, ive had a busy time lately with my family and life, ive had the failed implant (the 1 they have not used yet) removed and the standby one has been made ready for further action, i got knocked out as requested, ( thank goodness, 2 hrs in surgery, i dont think the local injections would have worked this time). so once more down the yellow brick road.

i will close now, but i want to finish by saying that i am sorry to read about the loss of loved ones, i offer my understanding and my sympathy to all , to all others in mac land i send my warmest wishes and best hopes. regards ski xx

dear doctor

2010-07-22T19:01:49Z

background note :- ive been with my gp's surgery for 25 years, ive had the same gp for 15 years, i like him,we can talk,and i think he's a good doctor, so!!!!!! here goes my blog.

4 years ago i went to see the doc with a sore nose, my doc wasnt there so saw someone else, gave me a weeks antibiotics come back in 2 weeks, i got to see another doctor 4 weeks later, oh yes there's an infection here's 1 weeks worth of antibiotics and get this nasal spray, if it doesnt clear up come back, weeks later same doctor lets try these antibiotics and this nasal cream, couldnt get the cream from the chemists, another appointment , try again, found out the whole uk batch for that cream had been withdrawn because of a problem, another appointment, at last my own doc was back, try this antibiotic for 1 week if it doesnt clear dont make an appointment come back and tell reception ive sent for you. so no change i went back again, and he refered me to the ent clinic at the local hospital. 3 months later saw the ent doctor, and there it started , i was on the cancer path.

i know im lucky compared to some, so far as i know im clear , just got a problem with the face, anyway its a long road as we all know, ive been to see my own gp on several occassions with some problems, which are either put down to my age (54), my previous working life (heavy engineering), or rad treatment/ recovery, or just the problems with my bones and prosthetics.

mentioned some of these problems to consultants who listen but nothing done, i had 2 new facial implants fitted into the skull bone between my eyes ( the previous implant failed after 1 year) that was in december, went back this june for the 2nd part of the 1 implant to be fitted (under local, bloody sore), july went for prosthetics the impant just fitted was no use. greeeaat, ive got another 1 to try, just waiting for the appointment, in the meantime a proffessor told us there was no hope of rebuilding the damage, ok we accept that.

so here we go to the nitty gritty, made an appointment to see my gp about a problem, after some discussion with the wife ( i lost) i was told to tell him again about some of the hiccups im having lately and to get sorted out, ( yes sir), so 2 weeks later drove back 50 miles to see the gp, waited for the appointment, 3/4 of an hour later i saw my gp, first item, ask for a form for free prescriptions, so he phoned reception, put the phone down, phone rang he started arranging a home visit to an old lady, put the phone down, turned to me and said i can get the form at reception fill it out and he would sign it, i said i fill it out and he said yes, BOOM , sorry, i didnt say anything else about my health, i got up said forget it and walked out, we have never had a problem till then but excuse my words i just thought go and get f********d, your lucky i havent sued, im losing confidence in people not just my gp but others 3 times the surgeons have had me in an operation room, 3 times they have failed to sort out a minor item of repair that they know is causing me problems, they must know it needs doing as other specialists seem to agree with me.

well sorry folks, long blog for me, but now that your ears are dropping off,( or youve gone to sleep reading this, lol) i will need to close, all the best wishes to everyone out there. xx

what a week

2010-07-10T19:06:43Z

this week started okay, no hassle just chilling, waiting for 2 appointments to come round, so went to the first appointment with the prosthetic chaps 1 of the 2 facial implants inserted in december 09 is no good and has got to come back out, they will then try and use the other one, this time ive asked to get knocked out while they do their work, waiting for an answer on that.

2nd appointment was with a proffessor, nice chap speaks plain english, bottom line no chance of facial rebuild, too much missing and rad treatments have affected bone area, so we are not heartbroken as we had accepted prosthetics was probably the only option just re confirming that with an expert.

phoned to let the (adult) kids know and blimey the daughter has had a fall and broken both arms, so we have been plodding up to hers during the day till her chap gets in from work.

the rest of the week ( weekend) has been just as bad trying to help the eldest lad.

so there we go folks, life doesnt stop, just goes to show me that im still alive, so i was glad to smile when i read the man rules -ok.

got to go the trouser wearer has shouted me and i must respond, the kennel isnt big enough for 2 ..... regards ski

i feel like a fraud

2010-06-23T18:16:12Z

why.

well since they initially found the cancer tumours and the baloon went up, there followed all the hustle and bustle of operations and rad treatment (2007). then there followed the start of checks and prosthetics, and here i am in 2010 still a work in progress, and i still cant get some of the answers i need and want, or dont want . ( trust me to get a not too common problem ). I seem to be on the back burner waiting for one thing or another ( waiting patiently ) still on the long road. anyway, i come on site and read so much, and my heart bleeds, ok ive got a major problem and i might be on a back burner, but there are so many others out there who just make me feel like a fraud, to read about so many out there who are going through some worse crap than i am going through, and still battling the odds, just makes me feel small, I think i had better stop reading so much, i send everyone , all fellow sufferers, and all carers, a hug and a cuddle xx

is it wishfull thinking

2010-05-26T17:05:17Z

hi folks,i jump on and off this site, i read a lot of things and let them sink in.

I havent had chemo like many of you seem to have had, my cancer doesnt respond well to chemo, so major facial surgery was the road i went down,hence so far i havent put a picture on my profile,i have a prosthetic nose and beleive you me what a difference it makes to me, not having to wear dressings on my face and being more normal ( ignoring the prats out there),anyway 1 of my main implants for holding the prosthesis on failed so ive got a temporary set up at the moment ( have done for the last 12 months),have now had stage 1 of 2 to insert new implant, anyway new consultant arrived at my local hospital, friend of my original consultant surgeon, he wants me to go see a proffesor he trained under to see what he thinks to see if they can do a reconstruction, ive already been told once that surgery was too extensive for a rebuild,and have accepted everything so far, but somewhere down there is a little bit of wishfull thinking, especially when you read about some of the things they have done in america, anyway ive nothing to lose i can always listen and see what the man says, so i suppose somewhere out there is a little strand blowing around that we all wish to grab onto no matter how frail the hope.

all the best to everyone warm wishes. ski

limbo - is there life on mars

2010-04-25T09:30:43Z

well so much for my consutation, after waiting another 4 months my consultant went off sick, ok he's got a stand in, who doesnt know my name and couldnt read my notes quick enough, so another wham bang thank you mam your 5 minutes are up,theres the door,see you in 4 months. which does not help the other people,prosthetics and dentistry,who are on the side line waiting to get started on me again, it doesnt help me being in limbo or trying to explain to the clowns in beurocracy or the people chasers why i am not back in work and no i cant give a time scale. i am a quiet person who accepts the things we cannot change, but i am getting to the end of acceptance with what seems like shoddy treatment from a wold class leading facility. ah well, if there is life on mars i wonder if i can emigrate there, i would just be another funny looking alien amongst many. well ive had my moan, so i had better go and let the dog take me for my walkies. all the best to earthlings everywhere. regards ski

hospital info

2010-03-31T14:20:07Z

hello everyone, i would like to ask the community if anyone has had ent treatment at nottingham hospital, especially on the surgical side, i ask because there has been a twig held out to me recently with regard to a possible rebuild, no promises etc, so im just wondering if they are a bit more experienced than the queen elizabeth with my particular problem area and rebuilding. thank you

new boy

2010-02-25T10:10:07Z

hello everyone, ive just joined the community, i was originally informed i had cancer in 2007 ( in the nasal septum), there followed major surgey where i had a total rhinectomy of the nose, radium treatment, implants, prosthesis and dental work. its been a long road, and unfortunatly due to implant failure im still on the journey, ive had my ups and downs like everyone in the macmillan community, and i would just like to chat with anyone with similar problems, or if not similar then anyone who wants a chat, im new to this online business and im not always online but leave a message. thanks. ski