Support at home

2009-10-28T13:41:05Z

after a two day hospital admission they managed to get my daughter's sickness under control with a pump then she got some good nights sleep and felt better enough to ask for the pump to be removed. Not such a good day today and suddenly all the fears come back. Fantastic to have a gp visit at 30 minutes notice - never had that before, and the nurses have been great. Have to find a way to get this PLX 4032 - our only hope.

Searching for solutions - PLX4032?

2009-10-19T07:49:35Z

After a tough weekend with my daughter (advanced melanoma affecting her liver and bowel) being soooo sick we are off to meet the hospice doctor to get help with pain and sickness. I am worried it is the start of a slippery slope into not being treated and being told to tolerate it. She has another chemo booked but the sickness seems to be because of her liver being affected.

We had such high hopes of the PLX4032 announcements in the summer but although her genetic material has been away for testing for two months we still don't know if she is B-RAF positive (and therefore eligible for the drug) - but only in the USA and only if she is well enough to travel and only if they will help with cost. It doesn't sound likely really. I want them to try it anyway - results show within two weeks - it's quicker than waiting for someone somewhere to do these tests.

shoulditbethishard

Support at home

Searching for solutions - PLX4032?