So much in so little time - Katies Diary

Results!!

2010-07-08T21:16:04Z

Hi everyone thankyou so much for the nice messages :) xxx

I got my results for the 3 tumours, I am all clear for now... Have to go back for an MRI in November and see the Surgeon for results on them in December. I think its too see if they have come back I'm not sure but I got diagnosed with Ganglioglioma Grade 1. I'm not sure what that is either so I think I have to see a GP to discuss it. If anyone knows, please do say as I tried googling it, but I'm not to good understanding scientific words :) xxx

2 days to go...

2010-07-05T21:45:51Z

To results day, but I am sticking to all your advice and keeping myself positive.

But many questions run through my head...

What if I need Chemo? Is it painful? Will I be able to have children in the future if I needed Chemo? Will this affect my friends my family?

Its still all a blur to me and what with losing my Uncle to liver cancer a few months back, this has very much shocked the family. I feel like they have to go through the worries again. I don't know why I keep blaming myself, I just wish that it would return to normality, but it can't.

Bravery isn't being fearless...It's doing the feared...

2010-07-04T20:19:00Z

Hi everyone, I am Katie, just tuned 20 and I am new to the Macmillan Site. I hope to meet new people, as I feel scared. I will tell......

I work as a Graphic Designer and had been taking migraine tablets for 9 years as they do get worse. Well me, the Boss and the Manager noticed my colours were incorrect. I would see orange if a banner was brown or green if a sticker was black. My left eye became blurred and tunnel visioned even though I had my glasses on, which I were prescribed when I was 15. on the Weekend I booked an eye test at Specsavers and failed the vast majority of tests. I had to be referred to the Hospitals eye department. Again, I failed most tests and although the doctor thought it was an inflammed optic nerve, I was referred for an MRI. After the MRI Scan I got a telephone call to say they needed me in the next day. I went in and the Doctor said they had found an abnormality on the left side of my brain. I broke down in tears. I had to be referred to another specialist department in another Hospital as they had no clue what is was. I waited a week and went to speak to the Neurosurgeons at the other Hospital. There was 3 tumours and a build up of fluid. Me and my family was scared and upset. I had to be admitted that day for an operation the next day. All I could do was stand and stare outside the window of my ward. When I went in for the operation, I was nervous after being told it was major but during the recovery afterwards, my vision was perfect but was connected to alot of wires and my head was sore. I couldn't believe the amount of painkillers I was on. Well, I was back home after 4 nights and now recovering. I have to go back this week for the results which I am really scared of hearing. I dont know what to expect as I didnt expect this to happen. I have been put off work for a couple of Months but I really want to go back to work. I have to walk with a stick and I tire easily.

Thankyou all for reading my story x x