Scared Win

Best Results i could of Hoped for !

2010-08-03T21:14:56Z

Had good day yesterday after having pet scan last week went to see oncologist yesterday and he amazed me by telling me the cancer in my lyphnodes in neck and chest are inactive !!!! i do still have `1 node which he thinks maybe slighlty active in my chest he is looking to seee if he shoul;d do a ultrasound biiopsy and if it is a new drug which is a ten minute infuusion!! i am over the moon !! best news i could of wished for he said i had responded very well to treatment i went through really bad side effects due to the chemo and radio but it was worth it in the end for these results so just need to stay positive!! and fingers crossed xxxxxxxxxxxx

Holiday cut short !!

2010-07-21T09:30:26Z

Hi just to catch up went on holiday for 2 weeks to sorrento in Italy but had to return early a week early managed to get a flght had chest infection and really bad pain in right side just wanted to come home could not walk a few yards without being in terrible pain. came home on the friday nite in hospital next morning they did chest xray i had a chest infection and then were also treating me for clot on lung! i had a ct scan on the sunday which thankgod ruled that out no clot, let home on the monday . the doctor did say that the lymphnodes in my chest 1 of them had reduced slightly which i was dissapinoted at! my d aughter who is a sister told me to ignore that as i have a pet scan on 28th july and that will tell me more, and is more important so bit scared also the doctor in a and e said he felt a swelling in my neck ! which i was shocked about as that is where the cancer was first found ! but again my daughter said he doesnt know your neck he doesnt know what is normal for me! in know she is probably trying to placate me !! bless her m so mjore waiting get resulots 2nd august xx

Pet Scan Due 28th July Results 2nd August !!!

2010-07-03T20:59:07Z

Well i am off on Holiday next Friday 9th July italy sorrento for 2 weeks then when i return the pet scan and results, i am going to forget if i can and just enjoy my hols i am feeling quite good which frightens me a little? dont know why. I never thouight i would get through the chemo and radiotherapy, my oncologist said he has never known anyone to get side effects like me!! i told him i was unique he said you cetrtainly are!! i had bad side effect swith the chemo who doesnt !! the usual loss of hair palmar plantar syndrome which i still have, 6 weeks radiotherapy, problem swallowing, then awful burns, i looked like a burns vicim ended up in the burns unit in selly oak !! but thank god i got through it!! then i got a chest infection and then lung inflammation!! i thought my time had come i was so ill couldnt breathe cough, sneeze or anything !! but i am still here!! still got some some lung inflammation but not as painful. So i am going on holiday and try to recuperate for the next round i know my cancer is not curable but maybe just maybe the treatment will have held it back i hope so !!! we will finfd out 2nd august i will let all know xxx

After Radiotherapy

2010-05-10T16:02:48Z

Well finished rt 3 weeks ago but had really bad burns from radiotherapy on neck and chest still am. oncologist has today suggested i have gentian violet!! and flamazine been using flamazine for a while also geliperm straight from the fridge wonderful then back to see oncologist in 6 weeks to ensure burns are gone been to burns unit at selly oak but oncologist said i dont need to go now !! i remember gentian violet from when i was young used on impetigo !!! dont care as long as it helps !! hope everyone is as well as can be expectedxx

rt

2010-04-24T12:13:32Z

last post should of said boiling hot water !!!

Radiotherapy finished

2010-04-24T12:12:44Z

Well thats it my las rt yesterday! feel really ill today my chest and neck look as if someone has thrown a pan full of water at it!! feels like it too!!! but i am hopeful it will ease off in a few weeks !! they say the side effects will last for a few weeks too i am then to have a break before the pet scan to see what the chemo and rt has done !! i am off on a well deserved hliday july 9th for two weeks!! hop my hair has ngrown a bit by then !!! hope everyone is as weel as you can be xxxx

Had enough !!

2010-04-20T15:47:15Z

Hi not been on here for a long time as i started back to work part time sometimes it is a real struggle , i have 3 days left of of my 30 fractions of radiotherapy ! i hve an awful rash on chest and neck itchy and sore !! i have also a little trouble swallowing i have to have a soft diet which is getting quite boring! i have also been having really awful flu like symptoms it is awful feel really rough !! im sorry to moan but feel terrible and sometimes wish it would end i way or the other !!

Oncoligist visit today

2010-02-22T14:35:11Z

Went to see dr after 4 cycles of chemo and ct scan not sure about how i feel the lymhnode in chest is still the same no bigger no smaller!! but the ones in neck area he cant feel! cant have tablet as it is not suitable !! it tested negative for my cancer!! he also told me today that i have to have radical radiotherapy for 6 weeks originally he said 2 weeks !!! he also told me i may get a problem with my gullet and have to have a tube fitted to feed me !! this has frightened me to death!! 3 out of 100 people get it ! as i had my left lung removed 6 and half years ago and as my right lung pushed all to left side it also moves windpipe etc !!! so dont really know how i feel on one hand its good and the other not so good !!!

Chemo

2010-02-15T16:24:31Z

I have just finished 4th cycle of chemo and it was at first not too bad but i never want it again!! it got worse each cycle !! i had cisplatin and doxecatol !!! i really dont think i could do it again i am to have 2 weeks radiotherapy soon had ct scan today see oncologist next monday so fingers crossed !!!!!got really bad palmar plantar rash on hands on feet it is awful it is so itchy when i go to bed im keeping my husband awake !!! itching the soles of my feet!"! Moan over !!!!

Just to update

2010-01-18T20:30:22Z

Hi all not been on for a while !! just had my 3 rd cycle of chemo last week and have my last one on 28th january!! this 3rd one really knocked me about i was sick from the day after coming out of hospital !! just felt rough i wonder if it iwas because i had gone more than 3 weeks since last chemo? because of xmas then no beds at hospital etc ? anyway just keep thinking 1 more !! then i have a pet scan in middle of febuary to see what it has done i suppose then 2 weeks of radiotherapy!! then 3 months off !! cant beleive it just worry waht happens then ? my oncologist mentioned last time i saw him he was waiting for some test results on the biopsy they removed from my neck in november about a tablet ? dont know what he meant !! I know it cant be cured that they can just try to hold it back i really pray that it has xxx

Scared

2009-12-03T20:17:37Z

i a so scared about my appointment on monday with oncologist! as i will be given thr results of pet scan and ct scan of brain !! i am convinced that it has spread all ov er me !! now my bloody hair has fell out ! even though i hd it cut really short yesterday its still falling out! im not sleeping waking really early havent got the energy to do anyhting supposed to be having 2nd cycle of chemo next week !! but if they tell me it has spread further and things change i want what time is left in some sort of better health !! so i wont have it !!! i have told my family i just want to wake up and hope that i have dreamt all of this !!!! i know they cant cure the cancer but they say they can hold it back but at what cost !!! i know im a moaner tonite i feel really negative and scared xxsorry all

First Chemo on Thursday!! Terrified!!

2009-11-16T20:06:12Z

Had a phone call today from the Queen Elizabeth !!! Have to ring up at 8am to ensure my bed is there ! Then go in at 10am bit scared though i really need to get the first oe over with and then i will know what to expect !! i am in just for 1 night !! so back home next day !! My hubby has taken some time off work to make sure im ok xxxxx

First Appointment with Oncologist!! Today

2009-11-09T13:07:11Z

Well went to my first Appointment Today and feel better now i know what i am dealing with, basically i had lung cancer six and half years ago Adenoma Carcinoma it is now as far as we know in my lymphnodes in neck, So i have to have a pet scan first to see if has spread anywhere else and a ct scan of the head to make sure not in brain as it is in the neck, as soon as i have pet scan i will be having chemo at the QE Hospital in Birmingham i will have to stay in overnight to have it, i think he said 3 cycles then chemo inconjuction with radiotherapy, he said it cannot be cured but that they can control it and halt it !

So at least i know what is going on the specialist nurse said that i will deinitly lose my hair so she said the lady who does the wigs is coming tommorow so she can see me with my own hair ! quite fancy extensions !!! lol so thats it so far !! They said the chemo im having is quite aggresive so not looking foreard to it he said some people are ok some not, the nurse said he thinks im a "goer" i said what does he mean ? she said he thinks you will do well as i am apart from the cancer fit and healthy!! Dont think ive ever been called a "goer" before !!! lol So let the battle commence !!!! xxxxxxxxxxxxxxxxx