Sarah TAE's blog

not fair anymore!

2011-08-21T14:22:33Z

Its now finally hit me after 2 years that I am fighting this Cancer. Had a 3rd reoccurence in April this year, went straight onto Sutent after 6 weeks scan showwed shrinkage to mets in Liver & remaining Kidney, so stayed on it a further 3 Months, tough side effects etc.

Scan on Friday after 3 months showed minor disease progression, it really sucks now!

Got to look at my 5 year old & be myself knowing that I am not going to be around to see her be an adult unless I can find something that is going to hold this cancer down!

RCC/Liver secondary/Sutent & MRI????

2011-04-26T17:26:52Z

I was rediagnosed with a nodule on my Liver & something on my remaining kidney 2 weeks ago for the 3rd time.......was put on Sutent straight away & told that case would be discussed at next MDT.

Now out of the blue have received a MRI scan appointment & unsure why, Im guessing they either want a closer look at the Liver as there is a problem (although my Onc did say that although it is there it wasnt life threatening) or they are considering if the tumour is operable.

Really anxious as not sure why MRI has been requested.

Does anybody have any eperience with Liver Tumours, Sutent, & surgeries to Liver.

I had a Liver resection last year but not sure if its an option this time if had it before Onc said tumour looked to be quite deep in Liver but did confess that he was no surgeon & would speak with Liver surgeon.

Hate being this anxious :~(

re-occurence

2011-04-15T11:52:07Z

Devastating news today, cancer is back, 1 met in Liver & more in remaining Kidney, now starting SUTENT :~(

Christmas wish came true!

2010-12-17T11:18:37Z

I walked into Oncologists room & before I had even sat down he said "Great scan", the relief was so intense, I told him I was going to kiss him if it was good so he told me to anyway.

I really feel overwhelmed, I know its incurable but if everytime it comes back I can kick its ass then thats what I'll strive to do.

Back in June I brought my wedding forward as didnt know what future held, had surgery again & then RFA on remaining kidney & all were successful with no signs of anything new.

I can now look at my children enjoying this christmas & really feel that I am lucky & happy to be here cancer free & allways with the knowledge that every christmas for me has to count as I dont know what next year will bring but for now I will see out 2010 & bring in 2011 with hope & I have learned that "Hope" is such an amazing thing over this last 2 years!

There is allways Hope!

CT Results

2010-12-16T20:27:40Z

Have appointment at 9:30 tomorrow for results of CT Scan, am petrified that its going to be bad news!, was watching my daughter tonight she is soooo looking forward to Christmas next week & I want it to be so special & I want to fully enjoy it not worrying if only for a while about cancer!

Will I be granted my Christmas wish?......I hope so

What a week! will it get better or worse?

2010-12-14T08:59:19Z

Had CT Scan last friday, get results this friday so wanted to keep mind busy.

Myself & my 13 year old son have awful colds, my 5 year old little girl has a terrible chest infection & to top it off the one healthy child has broken her foot in two places so christmas holidays have started early for them all!.

The only thing I can think about is my CT Result & wether I am going to get a bit of a break for Christmas or not, soooooo tempted to phone oncologist & ask for result over phone as going to be such a nightmare with all the children Ill etc on friday also dont want to go to hospital while unwell as not fair on others.

But I am too scared to make the call :(

Waiting again!

2010-09-21T12:32:00Z

Well in the last 7 weeks I have had a liver resection & gallbladder removal to remove a tumour which surgeon said he felt was successful, after that had RFA to blast 2 tiny Tumours on my remaining kidney, the surgeon also said he felt that went successful......Had CT scan last Monday (firstly to see if RFA worked on the kidney tumours & secondly a usually CT scan after surgery to see if all removed or any new spread). I have oncology booked for this friday where I will get results, I am fooling myself into hoping that because I have not had a phone call maybe theres nothing too urgent & I might just be lucky enough to get an all clear for a while, but then my dreams get shattered with the reality that I know it doesnt work like that, been here before wether good or bad I will not know until I walk into that room on friday.

Along with the madness of the last 7 weeks I also got married so am in such a happy place at the moment & want to get on with life now, I know I am going to have to live with my type of cancer for the rest of it but just for a while dont want to fear that I wont see my children be adults, I just want to enjoy the next 10 years whilst they are children........could my luck change & give me my wish, lets hope so!

papillary kidney cancer

2010-08-12T23:55:23Z

Hi does anyone have any experience with Papillary kidney cancer?

Sarah

Liver resection & gallbladder removal

2010-07-27T08:36:14Z

I came home from hospital yesterday from having a liver resection & gallbladder removal.....very sore & painful but apparently op was successful....anyone have any experience in this area?

sarah

Liver resection & RFA

2010-07-15T13:16:47Z

Does anybody have any experience with having a liver resection (performed by keyhole) & RFA. I am due to nhave the liver resected next week & then 6 weeks after that RFA on the tumours that I have in my kidney.

sarah

Bad bad day

2010-06-18T22:14:55Z

Today I learned that my kidney cancer had returned in my remaining kidney & also tumour on my liver, all three are very small & I am waiting for date for surgery to remove all three hopefully with one big op.

Whats hard is for the first time in my life I am happy, getting married in september have three wonderful children......and then this shattering news. Think I need to accept reality that my cancer will keep coming back but dont want to leave three young children behind.....emotions are all over the place at moment, Im trying to stay strong but its hard. x