sami_princess&#39;s blog https://community.macmillan.org.uk/cancer-blogs/b/sami_princess/atomTelligent Community (Build: 12.1.2.21912)2009-06-30T23:57:37Zhttps://community.macmillan.org.uk/cancer-blogs/b/sami_princess/posts/caelyx-day-one-or-c-day2009-07-01T21:25:55Z2009-07-01T21:25:55Z cycle one of caelyx down.. lots more to go, after 4 (my loints locked up, and muscel cramp, bright pink rash and usual reaction ro sterriods bout 30 mins in total) alleric reactions lots of different sterroids, piriton an stuff latter we finaly finished cycle one.. so far so good just feel too warm and sweaty.. no sickness yet.. went straight out for pizza.. i wonder if this is all down to the glucose that they used to water down the chemo with and if im on sugar high..but hopefully i wont be too bad over the next few days x x x the reactions were quite extreme but hey 30-40 mins of pain and agony for 3-4 weeks of being reasonalbly well im sure i can handle that !! i was really down when i wrot my last blog. Guess you have days like that i normally try to bottel it up for my step kids sake but.. last night was hard xxx oh well off for another ice pop and sum pills ill keep this updated through out my treatment.. you never know it might help someone else <div style="clear:both;"></div><img src="https://community.macmillan.org.uk/aggbug?PostID=228377&AppID=23647&AppType=Weblog&ContentType=0" width="1" height="1">Former Memberhttps://community.macmillan.org.uk/members/formermemberhttps://community.macmillan.org.uk/cancer-blogs/b/sami_princess/posts/my-first-bog-fibromatosis-a-life-sentance2009-06-30T22:57:37Z2009-06-30T22:57:37ZHi There, My name is Samantha im 23 and i have a condition called aggressive fibromatosis, the best desciption i have for this is a soft tissue non malignant-malignat tummor that is very localy agressive and recurring,an mine is rather infaltrive..but they do not metastasize like malignant cancers, but mine seams to send fealers or tubers out... it curntly takes up at larg part of my chest cavity, starting at the top of my ribs moving down between my ribs to my inner chest wall where it is so larg its squashing my left long and moved my heart to the right (its started growing round the side and front of my heart as well) i have had this before in my breast tissue where it was removed with no radio or chemo. now this one has been treated with tamoxifen and sulindac for 5 /6 months and that has had no effect at all.. i start caelyx tommrow, tho i dont know if i can face it, how are you suposed to handle this stuff.. ya know.. i wanted kids.. not a life sentance<div style="clear:both;"></div><img src="https://community.macmillan.org.uk/aggbug?PostID=228370&AppID=23647&AppType=Weblog&ContentType=0" width="1" height="1">Former Memberhttps://community.macmillan.org.uk/members/formermember