Rosiebird's blog

Pleased and Puzzeled

2011-05-21T17:22:01Z

Had a letter from my Oncologist today, the news was very good my scan showed that there had been minimal change from the scan l had 12 months ago and some deposits were smaller. All great news, but l though that the previous scan had showed no sign of the cancer, so how could this one show less?

My Ca 125 is rising so l am expecting to have more chemo but not for a while yet by the look of things. does not want to see me till August

Ovarian Cancer

2011-04-07T16:03:15Z

It nearly 12 months since my last treatment. I have just had my three month check. As expected my CA125 is still going up its 200 now normal is below 35.

My Oncologist is sending me for a CT scan to see where the cancer is this time and how big its grown. When it gets to 4mm its the time for more chemo. I dont think l shall be having the treatment jut yet but may be later this year.

Well ive been there and done it 4 times so l can manage a 5th. I dont know what chemo he is thinking about but he did mention that l had coped with the Caelyx ok so may be have that again. If l do l will have my hair cut short this time its horrible watching your hair thin might as well not have any. At least if l do have the Caelyx again l will know what to expect..

thanks for reading, Rosie

Oops not nearly normal after all.

2011-01-05T16:59:15Z

I went for my 3 month check today and saw my Oncologist not the Registrar. My CA 125 has now started to go up again. He said it was 150 l was puzzeled because he said it had not risen by much. I said l thought it was 40 he said no its never been down to that. I would have swarn the Dr told me 40 may be 140? I dont know but lm not nearly normal after all. Are well never mind. No action as yet.

Oh I'm" Nearly Normal"

2010-10-06T18:31:09Z

Went to see my Oncologist today and was told my CA125 Cancer Marker has come down. thats 6 months after chemo!!!! Amazing. I was expecting to be having a CTscan.

For a Cancer Patient the CA125 needs to be below 35

My CA125 is offically now 40 so hence my "Nearly Normal"

So l am as high as a kite,

Rosie

Update on my Caelyx journey

2010-08-04T16:55:45Z

I just realised l had not finished with my updates so here goes.

I when on and had 6 sessions of Caelyx and then another Ct scan and then my oncologist didn' twant to see me for three months.

When l did see my Oncologist the news was not as good as hoped. My CA125 had gone down to 135 not under 35 as l had hoped. My Ct scan showed no changes.

What it boils down to is l could (should) be having chemo but because my cancer is slow growing and l am well and in no pain he wants to leave the chemo for a while.

He has told me that he has another two chemos to give me then unless a new one appears then l will have no further treatment. So l am just carring on regardless.

Love Rosie xx

Holiday Insurance

2010-07-07T16:38:56Z

Just thought l would give you all a warning. Turkey is a no go area for cancer patients. MIA on line have told me they will not cover anyone with health conditions going to Turkey because they have had too many claims.Just thought if any one was making plans to go it might be as well to change your destination.

looks like l will be going with out health cover again, oh well "just dont tell my oncologist"

best wishes Rosie

Good News

2010-02-03T15:12:31Z

I have had my fourth chemo today. my Oncologist is very pleased with my responce to Caelyx. my blood tests had been going up so l had a ct scan to see if it was working which it is so l am very pleased because l had thought l might have to be starting again.

so l am planning a birdwatching trip to celebrate.

Rosie

chemo may not be working

2010-01-07T16:07:08Z

I saw my Oncologist yesterday and he told me that he wanted me to have a CT Scan. My CA125 was still going up. He wants to check if its working or else he will try another one. I did have my 3rd chemo while l was there. I had a long wait because of staff shortages. never mind its over for now.

So l am waitring for my scan which should be in the next two weeks. Last time l was offered a cancelation may be l will get lucky this time too.

I have been having a skin reaction to the chemo so l wont mind if it has to stop or may be not if l find out what the next chemos side effects are going to be worse

Caelyx second time

2009-12-28T17:09:05Z

well have had caelyx for the second time, again sickness not a problem did ok untill the second week. I have now got a rash all over the place but not sore hands and feet..the e45 seems to help me with the rash l hope it contiues to do so. will be wearing loose clothing to help too.

The depression was not so bad this time. l am in my third week now so l hope the rash subsides. will be having my next chemo early in January

Sharon 22

2009-12-23T14:43:10Z

Hi Sharon, sorry l left chat so quickly this afternoon. My brothers had come to give me a report about my Aunt who is in hospital. I Just wanted to apologise for leaving so quickly. Please accept my sincere condolences on the loss of your husband.

Rosiebird

Caelyx for the first time

2009-12-03T17:38:16Z

Well since last time l blogged l have started chemo last month. with Caelyx you have it once a month.

I didn't have the feeling sick as much with this chemo which was good. Just went tired as usual. My Mouth has been a bit sore this time. But l have not really started on the side effects yet. I am likely to have hand and foot syndrum, eg sore hands and feet. this is likely to happen after the next chemo which is on wednesday the 9th.

what l found hardest was that in the second week l got so very depressed. I do have depression but that is usually under control. But for three days l felt so dreadful l didn't know what to do with myself at all. I am hoping that it won't be so bad this time.

My Cancer Journey

2009-11-12T11:28:34Z

I was diagnosed with Ovarian cancer in July 2001. I had had no real symptoms ( well to me any way)

My monthlys stopped in Jan 2001. Oh l thought l have gone into the change. thought nothing about it any more expecting to find l started again the next month.

I found l was putting on weight so started to go to the gym to do some think about it. The weight continued to climb until going to the gym was a real effort and l was too tired to go. what really pushed me was two ladies were joining the gym asked me how much weight l had lost!!!!! answer none.

I then went to the Doctor and told him how l felt like a beached whale.I was sent for an ultra sound scan having had to wait two weeks for appointment and that was urgent. I had the scan the raidiologist said nothing to me but asked for some one else to come. It was explained that they could not get a picture of what was going on because my tummy was filled with fluid. I needed to have the fluid drained so would l like to stop in the hospital or l must come back on Monday. This was friday 13th. I thought there might not be a bed so l stayed.

I then had a sample of blood taken out of my tummy to go for analasis. l was being weighted and measured through out. The next week l had a CT scan and was told when all the results were in they would tell me what was going on.

Now comes the blow, l was told that l need a hystorectomy because it was possible that l had Ovarian Cancer. I had never heard of it! cancer is what other people have and it is very painful ( l had no pain). i being the optomist told my self they were not sure l would wait and see.

I had the op on 31st of July and was told by my surgeon that is was very likely to be cancer but he could not say definatley untill the tests came back. l was still optomistic l did not have cancer. My Surgeon came back a few days later to tell me it was confirmed. the bottom fell out of my world, l could not belive it.

I then met my Oncologist for the first time and he has been looking after me for 8yrs.

I had taxol and carboplatin in 2001, 2005 2008.

I have responed very well until 2008 when with 5 of the chemos my CA125 was dropping l the had a scan the cancer was clear. had the 6th chemo but on my next check the CA125 was rising again so l have been on watchful waiting ever since.

Yesterday l started having Caelyx and will try to keep you up dated as to what happens.

thanks for reading.

Update

2009-10-08T12:37:43Z

Since my last blog l have found that my Cancer is back after having a ct scan. the cancer was small so we decided to wait a bit.

My C125 has since gone up again in three months so l will be having another scan in the next 4-6 weeks to see what to do.

I am also having family problems which l need to sort before having the chemo.

will update when l have more news.

Feeling down in the Dumps

2009-06-25T16:17:14Z

I am feeling down in the dumps today. Saw my Oncologist yesterday for my three month check my C125 has gone up a bit more not too bad but l am going to have a CTscan to see where it is. I usually respond well to the marker quite well so we know it is back some where. It is probably too small to see yet. It is just that l only finished chemo in November and l would have liked a bit of time before the watchful waiting started. This was my third round of chemo. My first was in 2001. I know l should be grateful because l am very lucky when compared to a lot of you other folks on this sight who are so very poorly. Just feeling a bit sorry for myself l suppose. I am usually very positive but l just don't feel positive as the moment. Thanks for reading Rosie