rosie0207

hernia after r/c

2011-07-09T18:39:16Z

Has any one got a parastomal hernia. I have one after radical cyctestomy and it is causing back ache and discomfort when I walk. I just wondered if anyone has one how are they coping with it. Any tips wou;ld be great. Thanks in advance.

home after over 1 month hospital stay

2011-04-12T20:01:54Z

Had r/c done spent 2 days icu then went back to ward, then I caght pnuemonia and ended up back in intensive care and on life support for 10 days. Been home 5 days and feel so weak food tasts awful and I have a terrible thirst. I dont know if its because I was fed through tubes for a few weeks but nothing tastes right. I would love a cup of tea but it tastes awful. Has anyone got any tips for this if so I would be grateful. I have district nurse every day as I have had stitches out but not clips as I had to be stitched twiced because where I was on life support body was too low too heal. My wound is infected but it does look as though its starting to heal.My skin is peeling like a snake. What a state but at least Im home. Run out of energy again so going back to bed to watch tv. Thanks for any advice anyone may have. Rosie x

Delayed R/C has anyone had theirs put back

2011-02-24T18:05:56Z

Well I was almost ready to go in for my RC tomorrow, got up early just so I could have a cup of tea as they told me not to eat all day and drink only clear liquid or strained soup which I dont like, had pre assesment, got marked up for where the bag is going, felt really anxious and then I got a phone call to say they have to postpone it till next friday. Dont know if Im relieved or not. I had all my house in order well stocked with food and all spring cleaned for my daughter who lives at home as she is in full time colllege, so today I slept on and off all day. I think where I wasnt sleeping as I was worrying I just crashed and I will have to start again next week with all the same emotions. I just hope they dont delay again. My cancer keeps coming back and I am scared if they put it off any more it may spread. Has anyone had this happen to them and did they get it done soon after. Well thats got that off my mind, just had to get my feelings out, sorry. Thanks x Rosie

mri good news

2011-02-03T18:39:06Z

got results from mri today, told cancer hasnt spread and told more about my op on 25th. Feel good that it hasnt spread but bit scared of how close my op is.Cant remember half what specialist told me, had mixed emotions. Going to keep busy now and not think about it. No more hospital till next week so I am going to put a blank mind to my bladder and think about positive things.

Claustrophobic

2011-01-26T16:49:41Z

Had MRI today to see if cancer has spread before RC in late feb. Results next week. Glad thats over. I asked for a sedative before which I was given but it didnt work as I take anti depressants and they did warn me it may not work. 45 minutes of sheer panic, the noise didnt bother me just the narrowness of the tunnel. They did allow me to keep most of my head out which helped. Im glad I stuck it to the end though, at least next week I will know that after RC if Im going to be cancer free or not. Sorry just had to get it off my chest.

Thanks for kind words

2011-01-03T20:11:44Z

Hi today Im feeling much better and would like to say thankyou to jennifer 52, Sarsfield, Liz g, and alienzel for their kind words. I know think that life without a bladder is going to hopefully be life without cancer, so a bag isnt such a big deal. This site is so much help and I dont know what we would do without it. A very happy and healthy new year to you all. x Rosie0207

emotions all over the place

2011-01-02T21:24:19Z

Went to see specialist 23rd dec to be told surgery is the only option left for me so it is booked for 25th feb. What a xmas present. Im trying my hardest to keep it together but Im either really angry or I cry over nothing. I dont seem to have any normal feelings any more. I havent actually been out shopping or anything for over a year because my bladder is such a problem so you would think I would be thinking of the future and that I will eventually be able to go out but I cant. Im just feeling fed up, angry, sad, scared, tired and depressed. Is there any lady out there who has had this procedure who can give me any advise or just to tell me to pull myself together and think myself lucky Im still here cos at the moment it dont feel like it.

To all of you for the new year

2010-12-31T15:11:47Z

A beautiful new year, a relaxed mind, a peaceful soul, a healthy body, a loving heart and answered prayers. Have a wonderful new year. God bless you all. xx

This text was sent to me from one of my daughters. I thought it was too nice to keep for myself and want to share it with all who read it. Happy new year. x

cystcestomy query

2010-12-17T21:47:42Z

Has any lady had there bladder removed. I am seeing a specialist next week about surgery and was wondering what is the easiest, bag, neo bladder or theres another one but I cant think what it is at this moment. I am scared but would like to know what it involves from someone who has been through this. I know the specialist will explain but I thought it would be better coming from someone with first hand experience.

Back again now facing possible surgery

2010-12-07T18:22:06Z

Had cytoscopy last week, cancer back again. This is the third time. I know have to see another specialist about surgery as all different treatments have not worked. I am in shock as I knew what way it was heading but now it looks like its here I am petrified. Ive done 18 months of treatments for nothing. I feel so sorry for myself (big baby) I think I need a kick up the backside telling me Im lucky Im still here, but at the moment it doesnt feel like it. I know it means I should be cancer free after but It doesnt stop my feelings of anxiety. I have a lovely nurse who I can call anytime but I still feel alone. Has anyone had surgery and can they tell me something about it please.

cytoscopy bad result

2010-08-07T13:21:21Z

Had cytoscopy last monday. Told had one large tumour removed again and two red patches. Have to wait four weeks for results and what is going to happen next. BCG treatment stopped last december because of severe reaction. Had reaction this time to anaesthetic, kept in for four days with severe dizzziness and sickness, then had another reaction to mytomicin. So glad to be home. Just hoping it hasnt spread any further. Got to the point where I think maybe I have a better chance without a bladder. Just keeping my fingers crossed I get good news from the results.