Rebeccag

Update!

2011-03-09T14:09:55Z

Well, it's march already and a few things have been going on since my last post.

My consultant decided against another octreotide scan and went for a laparoscopy instead. They took my appendix out and biopsies from both of my ovaries, luckily he didnt see anything too bad so I managed to keep both of my ovaries, which I wasnt expecting, so chuffed to bits with that.

My appointment to get the results has just been cancelled and postponed for a week, I'm hoping this is good news!

Love to all as always x x x

Ovarian Carcinoid Cancer

2010-12-20T14:17:43Z

So, I battled through the snow today (6 hour round trip) to get the results of my colonscopy. They showed no sign of carcinoid in the caecum. So I've got to go back and have the ocreotide scan again and then probably my ovary and appendix removed. Not quite what I was hoping for, but reading some of the other posts I guess I should be feeling happy.

Merry Christmas Everyone x x x x

Ovarian Carcinoid Cancer - Continued

2010-11-02T11:48:48Z

Well, it was results day yesterday, and I got a mixed bag really.

There is no further evidence of carcinoid in my ovary which is brilliant, I may be able to save them now!! But they have found (in the preliminary report) a mild but definite uptake in the Caecum, which is near the appendix. This may be the primary source.

This means, next step colonoscopy and another follow up!

I think on the whole this is good news, it would appear that it hasnt got anywhere too serious...

will update again when I know more x x x

Ovarian Carcinoid Tumour

2010-10-28T08:44:52Z

I thought I'd write a blog for anyone else who is diagnosed with this type of cancer.

I was diagnosed with a carcinoid tumour of the ovary in June 2010, following a miscarriage in April and an operation to remove some dermoid tumours that were found.

The carcinoid was found within one of the dermoids. On first diagnoses, I was told, that this is not a cancer that is going to kill me, and that I shouldn't need chemo, which were my first thought when hearing the word cancer. I was advised that it is extremely rare and the normal procedure would be to remove my ovary, however the only other cases have been in older ladies who had already had children. My consultant arranged some scans for me and told me that he was going to contact some carcinoid specialists for advice.

I had some blood tests, and then an MRI and CT Scan which came back OK. The timescale for these being spread over 3 months. I was told that although it is a "grey" area, that the prognoses is looking good.

Last week I went for an Octreoscan combined with CT Scan, where you are injested with some radioactive markers and have a series of scans over a couple of days. I am now waiting to get the results from this and will update.

I know that this will probably be irrellevant to most people, but even if one person, one day can see this, It will be worth it to me. As the being out of control and not knowing has been the worst part of the experience so far.

I have had so much support from my family and friends, and feel very lucky to have that, but also so frustrated at the lack of information. Trust me to get a rare one!!