Rachel

My beautiful Shawn has gone.

2011-07-16T20:00:43Z

The horizon came last week. Shawn passed away on the 7th July at 9.30 am, St John's Hospital. He was doing so well, we had so much hope. After finishing radiotherapy the Doc's were keen to start Shawn on chemo. But exactly a week after being given the good news, Shawn suffered a bleed to the brain, and it was too late, I couldn't help him, no one could.

I held his hand and stroked his arm and watched my gorgeous man take his last breath. I kissed him and told him it was ok. But it wasn't, I just wanted him back. I'm so sorry for such a sad post, but I love him so much.

He's at peace now, away climbing mountains and playing rugby and no doubt having the odd beer or three. God bless everyone.

Rachel xxxx

Seizure

2011-05-03T13:11:54Z

Last week I wrote about Shawn's birthday. This week I'm writing about his seizure. Exactly a week after Shawn turned 42 he had his first general seizure, and hopefully the last general seizure. Shawn's had focal seizures since his biopsy; little stomache 'spasm's' or his right leg twitching and only lasting for a few seconds.But I have never witnessed anything so scary as someone fitting. Only good thing to come out of it was the fact that he can't remember any of it, and the fact that he didn't have an infection or a bleed on the brain, all confirmed at the local hospital, was also of some comfort.

Still, the consultant is pleased with his reaction to radiotherapy, which is good news. I assumed she would up the dex dosage, but she hasn't, much to Shawn's relief. And now he's also on Keppra ( for the seizures) as well as his daily blood thinning injection.

I asked her on Monday what's next, after his last bout of radiotherapy on the 13th May. He's to go back in 6 weeks for a consultation follwed by a scan 3 months after the last radiotherapy appointment.

Three months seems such a long time to wait. Anyway, let's hope there's nothing else on the horizon.

Love to all.

Rachel xox

Shawn's birthday.

2011-04-24T21:30:00Z

Today, 24th April, Shawn turned 42. My gorgeous husband is half way through his radiotherapy treatment for an inoperable GBM.

The sun came out for a couple of hours, which isn't that usual for Scotland, but nonetheless, it was a beautiful day. A couple of friends and a BBQ were in order to celebrate Shawn's birthday.

Tomorrow is an early radiotherapy appointment, instead of 10.40 am it's been pushed back to 9.40 am because of the Easter weekend. So, that means no consultant tomorrow, but the nurse will be there to ask how he is.

Since treatment started, 3 weeks ago, Shawn's dex dose has been dropped from 6mg to 3mg. He's doing well. Still has the weakness on his right side, mainly the leg, and a 'heavy' feeling in his right arm. And the dreaded tiredness, which he hates, just as much as he hates having to use a wheel chair on longer trips out. Ex-army and a rugby player, stubborn and bloody minded to boot. Which is all good, because it keeps him positive. And why not ?