plum duff

good or bad news

2011-05-31T17:51:48Z

I went to the hospital today,expecting to have polyps removed from womb

which had shown up on pet scan as a hot spot,.but apparently they had been detached during a histroscopy I had 2weeks ago.They came back as pre cancer or a typical but didn't appear to be melanoma. Had i not had the pet scan I might not have known untill it was full blown cancer as I didn't have any symptoms

So it seems I have 2 things to worry about, Due to problems caused by an accident28 yrs ago they are reluctant to do a hysterectomy so have inserted a coil which will hopefully release harmones to keep it under controle. Apparently its the same one they use to stop you getting pregnant so no more babys even though I am only 66 lol.

I dont know wether to be worried or relieved I guess we will have to wait and see what transpires

radiotherapy over

2011-05-13T16:44:49Z

Today was my last day of radiotherapy it was bad but not as bad as I feared they tell me it will get worst for about 10days but then will start to get better.My skin started to blister 2days ago but I am told I have done well and I know from others that it could have been a lot worst.

The next step is a visit to Harogate hospital to see if the hot spot on my womb is anything to worry about so keep your fingers crossed for me

SANDRA

P.E.T. scan results

2011-03-21T19:38:11Z

I went for the results of my scan today ,The doc said all clear but--- It seems there is a hot spot at the back of my right ear he examind me and said he could feel nothing, he said it would be very unusual if it was from the one on my nose as they are normaly at the front like the one on the left side He wants to leave it and keep an eye on it untill after my radiotherapy as he says I will have enough on,and I tend to agree

I will have another scan in about 3 months and if it has grown he will try to aspirate it and operate if its anything to worry about.

So for now I will self examine and try to think positive

no peace for the wicked

2011-03-01T17:58:09Z

Iwas hopeing for a break from melanoma after my last op but was informed yesterday I needed radiotherapy to mop up any cells that escaped so now need 25 treatments, then expected a short break as was told treatment would probebly start in about one month's time,another mistake they rang this afternoon to say I'm to go next wednesday for the mask making and again on friday so it looks likei wont get a break before easter. I guess I should be gratefull as this is the first time I haven't been kept waiting for treatment.

one piece of good news I don't have to stick to that awfull fat free diet,so asthey tell me I will have a sore mouth with the radiotherapy I am going tomake the most of it and have a real binge without feeling guilty

well operation over now for the next step

2011-02-02T21:30:28Z

I had my neck dissection done on the 25thJan but things didn't go to plan a complication occured and I was kept in for 5more days than expected and although I am out now it is with the drain still in and an extremly strict diet with orders to go back on Saturday

My C.T. scans were clear but while in Hospital I got a phone call to arrange a P.E.T. scan and they asked if I had any operations in the last 3 months can you believe it? so now I don't know if that is yet another mix up and should have been done before my operation as I have had both operations in that time

Grateful as I am for anything they can do, I am starting to feel they could do much better

All I can do for now is hope they can get on top of this latest complication and go from there.

Sorry if this blog sounds self pitying but at present I am a bit down

love to all

Sandra.

more worried about the scans than the operation

2011-01-23T13:22:13Z

Tomorrow I go into hospital,I go to Jimmy's for 2 scans then onto L.G.I.for an operation on Tuesday for the lymph nodes removed from my neck.

I know the operation won't be easy but I will be in good hands so am not too worried about that, what does worry me is if they are going to find it has already spread, at the moment I am wondering if the neck pain I have been putting down to tension is that or not I guess I will just have to wait and see

sandra

feel as though yesterday was a waste of time

2011-01-07T13:03:45Z

I went to see the surgeon yesterday about my lymph node removal,

He said he wanted to do my operation either next week or the week after and as it is a 60mile round trip arranged for me to have my pre operative there and then so I spent another 2hrs having that done .

The surgeon presumed I had had my scan which was booked at the same time as my appointment with him,

When I said I hadn't he said he would chase it up but when I finally got home the scan letter was there it was for 26th january.

I phoned his secretary first thing this morning and she said she would see what she could do,but when I phoned the scan people this afternoon they said that is the first space they had and being so far away and needing to fast for 3hrs before its unlikely I will get a cancelation ,

I am so frustrated ,if the surgeon thought it needed doing so quick it can't be good to have to wait until at least another week and I had got myself all geared up for it to happen sooner

Hopes for this year

2011-01-01T13:23:37Z

Last year was a bad one for me and many of you .

This year is starting on a difficult note for me, I go to see the surgeon on 6th about next operation, My husband finishes his radio therapy on 4th it won't be untill the 8th Febuary that we know if it has been worth while.or if it had already spread.

I am determined to try and think positive, this might sound foolish but I would rather live in hope,at least that way I do live and don't waste my life fretting .

It has been difficult for so many people on this sight and some will be facing more of the same in the coming year .

So my wishes are for you all to be able to live the life you can, enjoy the pleasures life has in store, stay strong through the rough times,and remember when in need of support someone is always here to help.

Love to all xxxx

it wasn't good news

2010-12-16T19:40:11Z

i went for results of my wide excision today first i was told although they removed cancer they couldn;t remove all pre cancer cell's as too near eye, so would have to keep close eye on it presumable they have alternative treatment to try if it developes further. If that wasn;t bad enough a lump appeared yesterday so they did a biopsy and it has spread to a lymph node in my neck so now it is scan's to see if they can find any more and another bigger op on my neck so that;s put a dampner on xmas altogether, this has been a bad year here's hoping next year is better

today I go into have my wide excision

2010-11-07T11:26:42Z

the only reason I can see is they want me in today is that apparently there is a31 day NHS directive saying I should be seen within 31 days of appointment to see the consultant and thats up today my operation is not until tommorow. they want me in at 3pm.I AM having a sentinal node biopsy as well I wonder how long it will be before I get those results,