paul58

Stem cell journey (Myeloma).

2011-11-12T10:59:56Z

my keep fat diet

2011-08-23T10:20:29Z

Firstly let me say for those out there who are not well enough or able to eat i am sorry and mean to cause no offense.With my chemo ctd the steroids are having a great time like a ticking bomb in my mind saying what shall i eat next. Half way through one meal and my mind is already thinking of the next or what treat i deserve for eating the last. My specialist nurse said i should treat my meals like medicine and even if i don,t fancy them to sit 3 times aday and eat a little. Well if i carry on like this i won,t find a chair to sit on. 6 weeks in to my first 12 weeks of chemo red faced fat and breathless how bads that. Like all of us there is a serious side to this disease but today thats not for me. Keep pushing the keys people and i will keep eating and reading. with respect Paul58 x

Thoughts of things to come

2011-08-11T13:58:58Z

Well 5 weeks into my 12 weeks of cdt chemo and doing okay .No bad side effects bit breathless ,tired ,shake a bit , numb mouth and strange tastes but nothing compared to sunny leith and many, many others . Because the chemo seems to be going well and my bad protein levels have dropped , if continued in this way i will be sent to St Barts after 100 days grace from this chemo. There to have a 6 week stay for stronger chemo and then stem cell treatment . The thing is this may give me another 2 years or 10 years if successful an unknown quantity .My concern my worry is infection or being very poorly and losing what i have now .

I know myeloma has no cure but they try to make it plateau and the stem cell treatment can give an extended plateau time .I know for my families sake i will take this and at 52 should be strong enough to fight my corner, it,s just that nagging in my head what if ,what if,what if.

I don,t know how quickly the cancer would take over if i did not take the treatment . It has already invaded my bones by 60 percent and popped a good few holes in them ( not much good as a builder now ,i might manage lego now)

Sorry to all just needed to see my mind in print , will take Lulu for a walk and think of brighter things.

you are all stars in my eyes and i love looking at you xxx

myeloma site sleeping

2011-07-31T13:13:00Z

i find the general blogs site very supportive sad funny and informative but my specific cancer site for myeloma slumbers some what. not that you want to hear of others having holes in their bones leaking calcium all over the shop but when it is on your mind it is nice to share the fun. thanks to all who contribute at first i thought i was to well to need this site and now my mind is most at ease when these little builders fingers are hammering at the keys. inspired with replies back to others from you all .keep tapping away at the keys all, its my best medicine. paul xxx

funny what you listen to ?

2011-07-29T10:12:00Z

after meeting my wifes friend at hospital 2 days ago i had to smile when thinking back to comments i made on line concerning stupid things people say. we explained i have myeloma which she had not heard of [ why should she ] and that i was on chemo . from her lips came you look so well are you always red faced. so much runs through your mind ,look inside me i have punch holes through my femurs , skull and several ribs also a nice scar up my back where they collapsed my lung and removed my front 4th rib . but i just smiled and said its the steroids. it is to much to explain to every person how you really are and in their shoes what would i say?

winning the mind game

2011-07-21T20:13:20Z

2 weeks in to my chemo ctc and feel ok a bit flushed a bit tired but functioning well 12 weeks 4 x 21 day cycles

yet in the back of my mind it,s waiting for a crash as if it has to come ? does it have to come