notsineadoconnor's blog

update: things are better than I thought!

2009-08-16T06:04:24Z

Thanks to everyone who replied to my last blog, no one understands what this like better than the wonderful people on this site. Saw the oncologist last Monday, the CT scan was clear!! However, ca125 is still up. Am having another scan , blood test and appointment on 23rd November.Am really happy as I had prepared myself for more chemo straight away.Was told the cancer is back but on a microscopic level. I will not be treated until something shows on scan.Still feeling very well. Julie

ovarian cancer relapse

2009-06-29T19:02:44Z

Hi have not been on here for .a while.Was in remission.Had my clinic appointment last Mon and have been told my ca125 is up from 26 to 61.Finished chemo end of Dec. Am really devastated, was shocked as have been feeling really well, and still do(physically). Mentally I'm in bits.Don't know how to cope.Have told close friends and family and they are all really devastated. I find it so hard telling people my bad news.Have carried on working and not told anyone there, trying to keep one part of my life normal for a while, but its really hard , don't know if I can keep it up. Julie

Feeling really good post chemo

2009-02-26T13:26:28Z

Have not been on here much lately, since chemo finished on 29th December have been trying to live a normal life and so far have been fine. We went on holiday to Barcelona last week and it was really good.Did not feel tired, walked miles and went clubbing, had lots of late nights, met nice people.The sun was shining and the sky was blue.Got my purse stolen as soon as I got there so had to make about 63 phone calls to various banks etc. Normally I would have been really upset about this but all I could think was 'if I was dead none of this would be happening"so I just felt really happy.I,m going back to work next week. Thanks to everyone on here for the support,I am not leaving but won,t be around so much. Julie

Happy new year

2008-12-31T14:27:06Z

Had my last chemo on Mon 29th,ca125 down to 23.Had a lovely family xmas , feeling really well and everyone says am looking really well too , except for few days after chemo, ie now.So am going to have a quiet new year feeling slightly iffy.Hoping for nice long chemo free stretch now, but going on holiday February just in case.Planning to go back to work in March , as I do generally feel well and quite energetic.Think I am better off to keep busy.CT scan in Feb, blood test and appointment March, but consultant has already said I can go back to work. Have been looking at Wandas post,great that you stayed in remission for so long, Wanda but sorry to hear its now back.Met a lady when having chemo, who had 3c in 2003, op and chemo and was fine til summer 2008.Am thinking that people having good remissions we don't hear about so much. Happy new year to everyone, Julie