<?xml version="1.0" encoding="UTF-8" ?>
<?xml-stylesheet type="text/xsl" href="https://community.macmillan.org.uk/cfs-file/__key/system/syndication/atom.xsl" media="screen"?><feed xmlns="http://www.w3.org/2005/Atom" xml:lang="en-US"><title type="html">Newly Diagnosed - Cancer Missed Twice Now I&amp;#39;m Dying</title><subtitle type="html" /><id>https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/atom</id><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying" /><link rel="self" type="application/atom+xml" href="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/atom" /><generator uri="http://telligent.com" version="12.1.2.21912">Telligent Community (Build: 12.1.2.21912)</generator><updated>2023-01-12T20:07:48Z</updated><entry><title>Just saying hi</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/posts/just-saying-hi" /><id>https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/posts/just-saying-hi</id><published>2023-02-04T06:36:46Z</published><updated>2023-02-04T06:36:46Z</updated><content type="html">How are you doing?
i&amp;rdquo;m also in the situation of dying. &amp;nbsp;They have given &amp;nbsp;me a window of 12-18months but could be as much as 3+years if treatment goes well. So far first lot of chemo hasn&amp;rsquo;t worked and the tumours in my lungs and ...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/posts/just-saying-hi"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=720664&amp;AppID=41264&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Cazza56</name><uri>https://community.macmillan.org.uk/members/c929a0bf1958450b944c7c3cf99bb742</uri></author><category term="side effects" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/side%2beffects" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/chemotherapy" /><category term="diarrhoea" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/diarrhoea" /></entry><entry><title>Still getting used to dying but hoping its not for a while yet!</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/posts/still-getting-used-to-dying-but-hoping-its-not-for-a-while-yet" /><id>https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/posts/still-getting-used-to-dying-but-hoping-its-not-for-a-while-yet</id><published>2023-02-04T02:57:12Z</published><updated>2023-02-04T02:57:12Z</updated><content type="html">I eventually got a referral to the Regional Cancer Centre on the 17th of January. every single day I woke up thinking about how much more the cancer might have spread from the diagnosis on November. I meet a wonderful oncologist who I felt I clicked ...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/posts/still-getting-used-to-dying-but-hoping-its-not-for-a-while-yet"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=720662&amp;AppID=41264&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Crafty Caroline</name><uri>https://community.macmillan.org.uk/members/edf0e29740cc4fe28dd4c566522d1504</uri></author><category term="oncology" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/oncology" /><category term="Dietician" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/Dietician" /><category term="side effects" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/side%2beffects" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/Hospital" /><category term="radiation" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/radiation" /><category term="sleeping" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/sleeping" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/chemotherapy" /><category term="Oncologist" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/Oncologist" /><category term="insurance" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/insurance" /><category term="carcinoma" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/carcinoma" /></entry><entry><title>Getting Used to Dying</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/posts/getting-used-to-dying" /><id>https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/posts/getting-used-to-dying</id><published>2023-01-12T20:07:48Z</published><updated>2023-01-12T20:07:48Z</updated><content type="html">I don&amp;#39;t know if anyone will even read this but I think it helps to spell it out. I have just spent 7 months on huge doses of steroids and a gazillion other drugs to counter the side effects after I was diagnosed with Nephrotic Syndrome in May 202...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/posts/getting-used-to-dying"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=720622&amp;AppID=41264&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Crafty Caroline</name><uri>https://community.macmillan.org.uk/members/edf0e29740cc4fe28dd4c566522d1504</uri></author><category term="tumour" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/tumour" /><category term="Syndrome" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/Syndrome" /><category term="Lymphoma" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/Lymphoma" /><category term="side effects" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/side%2beffects" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/Hospital" /><category term="morphine" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/morphine" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/chemotherapy" /><category term="urologist" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/urologist" /><category term="paracetamol" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/paracetamol" /><category term="steroids" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/steroids" /><category term="biopsy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/biopsy" /><category term="terminal" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/terminal" /><category term="Sports" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/Sports" /><category term="examination" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/examination" /><category term="incurable" scheme="https://community.macmillan.org.uk/cancer-blogs/b/newly-diagnosed---cancer-missed-twice-now-i-m-dying/archive/tags/incurable" /></entry></feed>