Neuroendocrine Cancer Awareness

  • Neuroendocrine Cancer Nutrition Blog 3 – Gut Feelings

    My two most popular posts to date are Nutrition Blogs 1 and 2 so I guess this is a topic you guys like?  Lucky for me I’m pushing at an open door as nutritional issues are one of the biggest challenges affecting most Neuroendocrine Cancer patients.  It is also a key factor in maintaining a decent quality of life.

    When I first indicated this series was under construction, a few people got quite excited anticipating…

  • PRRT and the Cancer Drugs Fund - is the 'magic' wearing off?



    I was extremely disappointed to learn of the decision to remove PRRT (Lutetium or Yttrium) from the Cancer Drugs Fund (CDF) as reported by the NET Patient Foundation. You can read the detail of the decision here: CDF Statement.  PRRT has regularly been described by NET specialists and patients as the "magic bullet" due to its potential to shrink and potentially kill tumours.

    This is the second Neuroendocrine Cancer…

  • Screw that diagnosis and get on with it!

    Every now and then I see a positive story during my travels around the internet.  When I saw this one from Kelly in Pennsylvania, I had to share.  If you're feeling a little bit down and need cheering up, dig out this blog and take a read :-)

    Kelly wrote:

    "I began my Carcinoid journey about 7 years ago, newly married to a wonderful man and his daughter at the age of 43.  I was also newly retired (from CPA and also…

  • PRRT, Everolimus and the England Cancer Drugs Fund

    This is a live blog - updated on 28 Sep 15 to include recent output from RADIANT-4 (Everolimus) and NETTER-1 (PRRT Lu-177) trials.

    I was extremely disappointed to learn of the decision to remove PRRT (Lutetium or Yttrium) from the Cancer Drugs Fund (CDF) as reported by the NET Patient Foundation. You can read the detail of the decision here: CDF Statement.  PRRT has regularly been described by NET specialists and patients…

  • Diagnose patients not hoofbeats

    The build up to NET Cancer Day on 10 Nov has begun and I can hear the sound of hoofbeats getting louder every day.  Is it a horse, is it a zebra etc etc.  However, is this old equine medical adage still applicable as an awareness tool for Neuroendocrine Cancer or should we be looking for something more modern, impactful and compelling?

    For those unaware, the term 'Zebra' is an American medical slang for arriving at an