nanaboo's blog

Off we go again

2011-08-24T15:15:01Z

Tomorrow Alan is due to go into hospital for a Vertebropasty and also a CT guided biopsy .

Then he is to have 5 session's of RT in about 10.14 days possible .As its pretty certain the mass by his spine is HL once again .

He had chemo in 2009 then RT in March 2011 when it came back so we are off to fight it once again now.So no summer holiday as he been poorly for last 8 weeks with a bad back which ,fingers crossed after this op will improve and he can get out and about again .

Some of u on here might remember me from 2009 .

better go pack his overnite bag now we have been told to take with us.

Nanaboo

Hosp Results

2011-08-01T11:55:36Z

Well after a vist to the hosp Doc last week we have learnt that Alan's T13 of his spine is collapsing due to a soft tissue mass .

So we now wait to see if he has to go to Orthopaedic Hosp or to see about RT again .He may have to have a Biopsy done..

so as always its the waiting game, to know where we go from here.

Hoping and praying things will get sorted re treatment for him .

Nanaboo

I really dont like this yr .

2011-07-19T13:02:44Z

Well after loosing mum i am coping and know she is happy now in another place .

Life i thought was looking up we got a new car had started to think about going away and Alan was told he was back in remission .

But hes been complaing of some back ache which became much worse 3 weeks ago .The only place he is comfy is laid down in bed or on his side .

he had a bone scan last mon and they put him in for a CT scan tomorrow nobody knows what is causing his pain so far .hoping results come through quickly as pain relive does not help a lot..

He has lost weight i am sure has no appitite .

As always its the not knowing why and the waiting .Hes see's hosp doc on thursday week but maybe our doc might know something before . here's hoping .

nanaboo

Rotten week

2011-05-06T13:19:50Z

Its been a while since i posted but at this time things are not good.My mum died on Monday she had BC and was 96 yrs old .Will miss my visits to here which has been every 3 mths as we lived miles apart...

On Thurs we needed to be back home as Alan had his Hosp chk up,two days before he mentioned a new lump so docs have been told and hes on watch and wait for 6 weeks .

He finished RT end of March so i am praying hard that this is not what we think it could be.

My son became ill while we were away so has come home for a few days as he finds it hard to cope with things at times he has Aspergers .

So feel the world has caved in on me at present .

Nanaboo.

Update Alan HL

2011-02-20T15:22:16Z

The latest news on Alan he has got his appt at QE at last CT scan on Tues plus the dates of his Radio therapy (fingers crossed). Then 2-3 weeks of treatment unless it chages who knows i dont.

He is already tierd and i hear treatment can also cause tierdness ..happy to hear how any others found it affected them .

So i think we shall know the train journey very well in a couple of weeks .

Nanaboo

Results

2011-01-19T19:17:31Z

I posted couple of weeks back that Alan had a biopsey done, they have now comfirmed that his Lymphoma has come back .

We are getting a call from hosp on fri as there is a case meeting tomorrow and we should then know more we think he is to have radiotherapy .

And we were getting nearer to that 2yrs of check and getting signed off .

Hopefully will go away at weekend go and see my mum .

Nanaboo

Here we go again ???

2010-12-28T18:09:32Z

Well its been 14/15 since i probably posted.

Things have been going well for Alan but in Sept it was put forward Alan should see a respiritary specialist ,he had a CT scan done through this it has picked up swelling under his arm.

We now await a appt for him to have a Biopsie done back to see doc in Early Feb .Its a case of is it HL back again something totally different .Only time is going to tell.

why is it always new yr when thses things happen ..

Nanaboo

Birthday ..first chk up

2010-01-04T21:41:33Z

Today Alan has celebrated his 80th birthday ,on Thurs he has the first of his 3 monthly check ups . Hoping iit will still be good news.

He seems to be good eats well ,but still tierd and breathless when he does things so i am still trying to get him to take it easy.

Thinking of all those that have supported us over last 9mths.

Nanaboo.

Update

2009-11-01T08:35:30Z

A quick vist this morn .Just to let all friends know we are ok.

Alan hair is begining to grow again ,still not a lot of energy plus his cough ect still bothers him at times .Going to the gp this week so may be some help from there.

Think of you all often take care

love nanaboo

Yes it worked .........

2009-10-01T14:15:24Z

Hi Everyone well things are good here .Been to the hospital today no more treatment for Alan chemo has worked well they were very pleased with the scan .

His blood count is a bit low still so have to be careful about infection ,but i am sure it will soon build up.

So now its a ckeck up every 3 months for 2 years then if all ok will discharge him .

So now planning a vist to my mum . I shall stay on the site only to happy to help support others so will be in chat room sometimes .

Nana will sit in the corner with her knitting needles and keep a eye on u all ...lol

Those i have got to know do pm me and keep in touch .

nanaboo

A& E

2009-09-19T18:42:22Z

While we have been off line Alan was at A&E on Weds eve he has c inflamation in his wrist the one the canula had been in on Monday on strong anti biotics for 5-7 days .

it is not red now and no longer warm ,but still bit puffy.

We are off to Devon on monday so wont be on line from late tomorrow until Fri eve . Looking forward to a change of scenery.

Nanaboo

Chemo end

2009-09-14T19:01:16Z

Well 6 months have gone and Alan had his last chemo today .He has a scan on 28th then see the doc in october ,we will have fingers crossed,Thks to all that have given support .No fellow chatters i am not planning on going just yet .Ofrf on holiday next Mon for 5 days it will be a break and a change of scenery. take care all Nanaboo

Clinic

2009-08-20T14:11:13Z

Well we have been to clinic . Alan blood is ok for chemo on monday .So thats monday sorted, but we have to return again on Tues for him to have a blood transfusion 2 units. His Haemoglobin count has been getting lower each vist. The doc is hoping this will help him with the tiredness and his breathing . The next clinic appt is to be in Oct ,hoping the scan is done before we go away . Fingers crossed. Nanaboo

Another one done

2009-07-27T19:01:07Z

Alan has had his chemo today another one done ,3 more to go .So soon on a count down fingers crossed. It was a long day left home at 9.30 and got picked up again at 4.30. Had to wait a long time for his chemo to arrive .Started it eventually at 1.40pm .Longest we have ever been . They have cut his GCSF injections as well ,down from 5 to 3 no reason given.So i am hoping this will not delay the end date for us.He only had the very early chemo without injections . Looking forward to the end and a holiday . nanaboo

mORE INJECTIONS

2009-06-27T19:00:44Z

On Thurs Alan went to the clinic at the hosp saw the doc,oh dear his blood count is down again.He has already had 3 days of injections since his last chemo so now its 2 more days fingers crossed his blood count is ok on Monday morn. Doc has said he must now have 5 days of injections after chemo now. He is too have a ct scan when his chemo finishes examined him and said he could feel no lumps.So that was good. He is or has been on ABVD but is now to stop the B as this may be causing his breathlesness so now its AVD going for a breathing test next Fri. so they can compare it to his last one .Go back and see him 25th july. So watch this space. Nanaboo