my sons story so far

1st july 2011

2011-07-02T09:40:17Z

Well went to see james ongologist today bad news no more treatment as it aint working getting worse hoping to get him on the braf trial thats his last hope gutted isnt the word xxx

29th june 2011

2011-06-30T10:01:27Z

CT scan today fingers crossed the chemo doing some good xx

results on fri 1st july xx

20th june 2011

2011-06-30T09:58:25Z

2nd doze of chemo today 2 weeks late but least thats it done . home from hospital and hes looking forward to the weekend bbq a mine if weather permits lol .

25th june 2011

well james got up this morning not feeling to good day in bed so he wont be down for the bbq so its on hold till hes feelin good and the weather is nice

29th june 2011

ct scan today all went well just to see whats happening got his oncologist on fri to find out xx

16th june 2011

2011-06-30T09:54:44Z

Some bad news news today the cancer has spread to his sternum now getting moved to the western tomorrow thank god x

15th june 2011

2011-06-15T23:45:41Z

7am get a fone call from james gf's mum james not to good woke up at 6 am in a lot of pain this time his chest foned nhs 24 who sent an ambulance for him taken to local hosp had xray to see if anything showing on his lungs no infection found then went for ct scan to make sure it isnt a clot on his lung thankfully no sign left him at 2 pm to pick up some things and he didnt want any visitors at all no even his gf ,still in pain when i called at 9.30 on morphine as he cant swallow his meds when is he going to get a wee break xx

14th june 2011

2011-06-15T23:40:10Z

James home today after his radiotherapy woohoo looks and feels better away to his gf for the nite xx

10th june 2011

2011-06-12T12:03:59Z

10th june 2011 James went for his chemo but they didnt give him it on hold for now as he has a lot of nerve pain the tumour on his spine is pressing on some nerves so 5 days of radiotherapy on the go now so he has been admitted again xxx

8th june 2011

2011-06-09T00:59:54Z

Nurse was in today to take james blood for his chemo on fri and is going to see bout getting him his own wheelchair so we can get him out and bout x

from day one

2011-06-07T08:42:00Z

Hi all thi is the story so far

1st jan 2011 James took ill had pain in his chest called nhs 24 to be told its prob muscular had it a few days then dissapeared 4 weeks later it came back again went to the doctors who took blood test and sent for chest x-ray rsults came back 1 week later normal so thought nothing of it .

7th april 2011 back to the docs again as hes loosing weight and no feelin the best pain back again more blood tests done week later get a call from doc to make appointment in between times he starts to have bad back pain so we end up to the docs before he gets results of blood test , the doc said his blood test were a bit high with some of them and have been for sometime she wanted him to see heomatologist never got the chance .

18th april 2011 James took it upon himself and went to our local a&e due to back pain and that is the day our life changed . after receiving his back x-ray they noticed that one of his bones in his spine had totaly disintigrated they said it was somekind of infection and that he was going for a ct scan the next day .

19th april 2011 james had ct scan this morning , at 16.20pm we were sat down and told the bad news that James had cancer it was in his spine , liver and lungs shocked wasnt the word he remained in the hospital till the 22nd only to return on the 25th so they had a bed for him so that he could get his liver biopsy

28th april 2011 James had his biopsy this morning all went without complications just to await results

29th april 2011 James home now woohoo

6th may 2011 through to the western in edinburgh for results of biopsy we were told they have not finished yet but it looks like melanoma told us they were not 100 % sure but were bout 90% told us a bit about it but dont think we could take it in all at once to much they did say its very rare as it has bypassed the skin and went to the liver . another week of waiting

13th may 2011 back to see oncologist they are 100% sure that its metastatic melanoma devasted isnt the word went through all his treatment and what will happen just to await appointment to start

15th may 2011 James taken into hosptial in severe pain doc at home thinks it could be appendix he has a high temp and cant bare to be touched . gets better but still in pain they think its been a bleed in his liver

20th may 2011 First doze of chemo today all went well felt fine throughout

24th may 2011 james high temp blood count high infection more tests cant find out were infection is very tired

31st may 2011 James finaly home after 2 weeks in hospital doing okay for now still in pain and having trouble walking