Muddled1940's blog

My Christmas Gift

2009-12-28T11:49:19Z

I was told my op was first on the list at 8.30am. I was all up and ready, signed the papers ,spoke to the Registrar etc. Suddenly the surgeon appears and tells me that he cannot proceed as a CT done on 15th December shows spread to my spine.

I am lost for words as an earlier bone scan showed me to be clear. Why should it take until 10 minutes before the opp to break the news.?? The whole thing stinks.

They have given me some whitewash about shrinking it with chemo. I am now wondering if I can do better abroad?

Another hurdle

2009-11-13T16:30:08Z

My Urologist has asked me to have a bone scan as should their be spread to the bones another treatment would be recommended (Chemo)

Well I had the isotope injected and duly returned for the scan some 3 hrs later. The exam takes 1 hr during which there were dulcet tones played. I nearly dozed off, but suddenly became aware of the music. Yes it was Lloyd Webber "Time to say goodbye" I nearly fell off the couch with laughter as the operative had no idea and could not see through my gallows humour.

Have now seen the surgeon as the scan was OK and my op is scheduled for early December.

One good thing I have managed to duck out of Xmas with mother in law!!

Assisted Death

2009-10-01T17:09:56Z

First I think Assisted Suicide is a misleading description of a person choosing to end their suffering so henceforth I refer to Assisted Death.

The clarification of the ruling on Assisted Death is of Paramount importance to many subscribers to this site. Indeed the Report is giving a hint of certain relaxations. This will be welcome news to many in acute pain with conditions beyond help. It will also give comfort for those not at this stage yet .

Additionally there is hope for those who would normally have the prospect of depending on morphine etc to get from day to day not forgetting the stress and hardship it gives to loved ones.

I Hope you will all beam in on this and make your views known. It will give many of us the opportunity to snub this disease before it beats us!!

I Have put these views to the Macmillan Cummunity Team and they have requested me to write this Blog to try and monitor the amount of feeling by subscribers, so I ask you all to make your contribution which will give Macmillan a sound base from which to make representations to the Government, Vernon Cooper (Kidney Cancer)

What Now -very true

2009-09-14T10:18:29Z

I have recently had a further scan on the instructions of my Oncologist. I have been dreading chemo , but to my utter surprise the cancer has not progressed and he proposes no further ction for 3 months. I am also seeing a Urologist and althought he should agree he might consider removing the offending nodule and repair the hernia which I was left with after my nephrectomy. I do wonder if this will stir things up and will be interested in anybody else is a similar position

To cut or not to cut?

2009-07-28T10:25:53Z

Thought I would get 3 years remission but the tumour is growing again from what looked like a benign polyp in the kidney bed. There is also an enlargement of nodal tissue to 22mm.I am seeing an oncologist this evening and feeling a touch nervous as to the next line of defence. Will update my log tomottow, but meanwhile I am getting on with life . I am grateful for the support from What Now. Great to have someone to unload on. The Chat room is a real boost to moral

End to Remission

2009-07-11T10:54:50Z

Sorry to bore you all but there is nowhere to get my disappointment off my chest. Having had a kidney reomoved 2 years ago I thought I would be ok for quite a while. After 42 years of marriage it has been such a bombshell. Does anybody know how long one waits to see an oncologist? My wife will have to say goodbye to her home and garden as she will not be able to afford to stay on with reduced pensions.This has all added to the disappointment. On a positive note there might be a further line of defence . I am sure there are many worse off than me but I had to get it off my chest Vern