Hi All
Got to mums on Monday and she was in a terrible state, agitated, having difficulty breathing and burning hot. When the carer arrived we decided to get mum checked over by the paramedics whilst we were waiting for the mac nurse and the district nurse. They wanted to take mum to hospital but we said no as we would never forgive ourselves if she died there. We could not get her in to the hospice where she went to before but there was a bed at another local one so we decided to do that.
They thought that mum possibly had a chest infection, and all her other symptoms had been aggravated by not taking her medication on Monday (she just could not physically swallow them).
After assessing mum they decided to commence a driver and try oral antibiotics but prepared us that over the following 24 hours things could easily go one way or another. My sister and I have barely left her side for the last 48 hours and amazingly she has picked up in many ways. In some ways though there have been some changes we have found very difficult. Mum is hearing and seeing things and has started getting very angry and shouting at us because of her confusion.
Following a case conference today they intend on taking mum off the driver and restarting oral meds and all being well aim for home in 2 weeks. We are scared silly as we don't know how she will cope. We already had 3 carers a day and night nurses supporting but feel that things have got worse.
It is awful not knowing when this will end to me it seems mum has very little quality any more. She is no longer able to do any of the things she used to love.
I am coming home tonight to spend some time with my family as I know I am seriously at risk of burning myself out and as I said this could still continue for some time.
Hugs
Teresa xxxx
