<?xml version="1.0" encoding="UTF-8" ?>
<?xml-stylesheet type="text/xsl" href="https://community.macmillan.org.uk/cfs-file/__key/system/syndication/atom.xsl" media="screen"?><feed xmlns="http://www.w3.org/2005/Atom" xml:lang="en-US"><title type="html">MM uncertainty</title><subtitle type="html" /><id>https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/atom</id><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty" /><link rel="self" type="application/atom+xml" href="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/atom" /><generator uri="http://telligent.com" version="12.1.2.21912">Telligent Community (Build: 12.1.2.21912)</generator><updated>2023-07-06T10:57:07Z</updated><entry><title>Sep 2023 - Palliative care at  home</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/sep-2023---palliative-care-at-home" /><id>https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/sep-2023---palliative-care-at-home</id><published>2023-10-03T13:33:50Z</published><updated>2023-10-03T13:33:50Z</updated><content type="html">September has been another learning experience.
Having decided he would like to die at home if possible, my husband is now under the care of the local hospice, with weeks left.
Infact, there are three main organisations now involved in his care: hosp...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/sep-2023---palliative-care-at-home"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=721050&amp;AppID=41462&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>motherofboys</name><uri>https://community.macmillan.org.uk/members/eeeb879088d449d99ac9c21e4c7ed7b7</uri></author><category term="working" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/working" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/Hospital" /><category term="palliative" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/palliative" /><category term="Equipment" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/Equipment" /><category term="hospice" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/hospice" /><category term="temperature" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/temperature" /><category term="vision" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/vision" /></entry><entry><title>Aug 2023 - end of treatment</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/aug-2023---end-of-treatment" /><id>https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/aug-2023---end-of-treatment</id><published>2023-09-07T12:54:53Z</published><updated>2023-09-07T12:54:53Z</updated><content type="html">After a full set of scan - PET, MRI head+neck, Brain MRI we finally had that meeting with the consultant.
We&amp;#39;ve tried everything and it&amp;#39;s not worked.
There were no tears initially, we could see the new lumps that told us treatment was not wor...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/aug-2023---end-of-treatment"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=720999&amp;AppID=41462&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>motherofboys</name><uri>https://community.macmillan.org.uk/members/eeeb879088d449d99ac9c21e4c7ed7b7</uri></author><category term="pet scan" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/pet%2bscan" /><category term="shoulder" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/shoulder" /><category term="working" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/working" /><category term="recurrence" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/recurrence" /><category term="hospice" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/hospice" /><category term="brain" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/brain" /><category term="radiotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/radiotherapy" /><category term="Melanoma" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/Melanoma" /></entry><entry><title>July 2023 - getting experimental</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/july-2023---getting-experimental" /><id>https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/july-2023---getting-experimental</id><published>2023-08-04T14:11:37Z</published><updated>2023-08-04T14:11:37Z</updated><content type="html">Now that the latest (third) round of radiotherapy is over we are at the point of choosing what treatment comes next.
There will be lots of scans - but there is some readily visible progression, so we all know they will show his current treatment is n...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/july-2023---getting-experimental"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=720933&amp;AppID=41462&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>motherofboys</name><uri>https://community.macmillan.org.uk/members/eeeb879088d449d99ac9c21e4c7ed7b7</uri></author><category term="sleepless" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/sleepless" /><category term="disease" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/disease" /><category term="working" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/working" /><category term="Oncologist" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/Oncologist" /><category term="radiotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/radiotherapy" /></entry><entry><title>June23 crossroads</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/june23-crossroads" /><id>https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/june23-crossroads</id><published>2023-07-06T09:57:07Z</published><updated>2023-07-06T09:57:07Z</updated><content type="html">Since the start of this year we have been dealing with a recurrence of the mucosal melanoma&amp;nbsp;- having reached NED (no evidence of disease) last October, for a month, after 18 months of treatments.
This led to a surgery, after which I got more clo...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/posts/june23-crossroads"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=720891&amp;AppID=41462&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>motherofboys</name><uri>https://community.macmillan.org.uk/members/eeeb879088d449d99ac9c21e4c7ed7b7</uri></author><category term="disease" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/disease" /><category term="weight" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/weight" /><category term="recurrence" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/recurrence" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/Hospital" /><category term="colorectal" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/colorectal" /><category term="immunotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/immunotherapy" /><category term="infection" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/infection" /><category term="radiotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/radiotherapy" /><category term="fluids" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/fluids" /><category term="Melanoma" scheme="https://community.macmillan.org.uk/cancer-blogs/b/mm-uncertainty/archive/tags/Melanoma" /></entry></feed>