Meredithx2's blog

...and yet more cancer

2010-01-21T12:48:43Z

Have blogged on here only a few times really just giving updates on my nephew's cancer fight. He is currently in remission from synovial sarcoma and doing really well. Yesterday my father was diagnosed with prostate cancer. Contained (hopefully) but a 9 on the gleason scale so aggressive. We are all in a state of shock that cancer is, once again, invading the family. The last 18 months have been extremely difficult for Mum and Dad who had to see their darling grandson (12 years old today) go through so much. It seems so unfair now that Dad has to fight his own battle with this awful disease. He is to have scans soon to determine any spread and then hormone therapy has been suggested, apparently surgery is not a good idea for him because of the aggressiveness - does anyone know why? I think he would rather it was all taken away surgically but that doesn't seem to be the case. Would appreciate any advice or information. I have looked at various sites and I know the information is out there but would just like to hear from anyone who is or knows someone going through this.

Scan Results

2009-12-01T08:17:45Z

An update on my nephew. Scan results were yesterday and I went along with my sister to give her support. Nephew had been getting a bit breathless recently and sis was understandably more worried this time. The good news is though that all the scans were clear - chest/mri and heart so we were delighted. Next lot in 3 months but, for now, things are good. Feeling tearful today though the sheer relief that was yesterday but no doubt, two months down the line it will all start to build up again. I don't think this will ever get any better but maybe we will be able to manage it better as time goes on. My love and thoughts to you all out there battling this disease.

Sue

I'm a bit frightened....

2009-11-20T08:05:50Z

Hi everybody,

My nephew is going for his routine three monthly scans today. It's always a nervous time but when I spoke to my sister last night she told me he had been getting a bit breathless. Now very worried that the cancer has spread (he had a large synovial sarcoma removed from his thigh in Aug 08) as the next place it could go to would be his lungs. Feeling frightened.

Fantastic News

2009-08-17T14:14:36Z

My darling nephew today got clear scans - that's now three in a row and I am so pleased (and a bit tearful!). He had a synovial sarcoma removed last August, followed by gruelling chemo and radio, finishing in January this year. It's still a long and uncertain road ahead for him, I know, but clear scans are clear scans hey!. Love to you all out there in cyberspace and keep battling on. Sue

Hi All

2009-06-03T13:01:32Z

I joined the site a month or so ago but hadn't liked to post as I felt a bit shy but am having a bad day and I know how much support there is on this site. My darling nephew (11yrs old) was diagnosed last July with Synovial Sarcoma (or growing pains as the first locum gp said). He had a bit of a sore leg - doctor, x-ray - nothing showed up. Then referred to our children's hospital where the ultrasound detected a large mass at the top of his thigh. Then on to Birmingham for a biopsy and diagnosis with cancer. From the children's hospital to diagnosis was only two weeks and it came as a massive shock -almost out of the blue really. He had the tumour removed in Birmingham Orthopaedics early August and although it all came out the margins were quite narrow. Then he started 6 cycles of chemo in September, finishing in January this year and alongside the chemo he had 30 treatments of radiotherapy, finishing on Christmas Eve. Throughout he has been magnificent and my sister has coped so well (single parent with a younger daughter). The family pulled together and tried to help as much as we could and we all took a turn with his radio visits. He has now had two sets of scans, three months apart and so far so good. He will need further treatment to his leg as nerves were removed and tissue was damaged with radio. So why the bad day? Basically I sometimes have moments of blind panic that it will come back and, to be honest, the chances with this type of cancer are quite high. I go from taking each day as it comes and thinking it can't possibly come back to thinking why wouldn't it. I am from a family that, unbelievably, cancer has never touched, (certainly for generations) and it has turned all of ours lives around and made everything so damn scary. I just wanted to write all this down really so thanks for 'listening'!. S