My first contact with other people with myeloma

2009-02-01T22:50:57Z

Hello everybody I have not been encouraged by Doctors etc, to contact other people with MM I suspect because it seems to have many stages and everybody seems to be different. I live on the Isle of Arran in Scotland so have to travel to the mainland for treatment. I am 57 I have 3 childen 20,23,& 24 . Diagnosed in August 08. I am on my 5th and last 28 day cycle of chemo/dex and monthly pamidronate drip. I only had thalidomide for the first month as they thought I was having neurological symptoms. I am going for chemo and to start the growth hormones for stem cell collection, on the 8th feb. I havent had an easy time on the TABLETS especialy the withdrawls from the dexamethazone also that taste in the mouth ug.and constantly feeling slightly off balance. I have 2 weeks in the month when I take no tablets and I start to feel about normal at the end Though the consultant at the Beatson Hospital in Glasow in charge of the stem cell transplant had to give me worse case senarios (its funny how 6% seems so much larger than 94% ) I must say nobody has said to me you have only a life expectancy of x number of years they have said from the start if all goes to plan you will have treatment with tablets for 6 months , then you will have a stem cell transplant after a year you will be on no tablets and you will be in remission for 3-5 years but we know someone on Arran who is in thier 11th year of remission. So far all is going to plan !! Its been good to read what other people have gone through and know I am not alone. Margo

margox2's blog

My first contact with other people with myeloma