Malcolm.mac's blog

It was great news and ta for your responses

2009-08-20T10:32:40Z

Yes it was great news! Even better having all of you out there to share it with. For people like me who live alone this community is a real blessing. You have all been great support. However before I get too carried away with the resuls. It was confirmed that I have a Lymphoma, that I would need treatment at some stage, but not now and perhaps not for a long time. Seems at present that the immune system is coping on its own for now. Just pray that it continues. It is back to watch and wait with frequent bloods and other testing. I am just so lucky and wisk other could share my luck. Malc

Got my results

2009-08-19T20:37:48Z

Got my results today, better news than I had expected, but before I get into that: Thanks to all who gave me all that moral support before hand!!!!!!!!! Result: CT scan detected no problems detected in my vital organs. IgM levels have stabilised and over the last few tests have started on a downward trend, well within the bandwidth to be considered to be in “natural control” and not yet needing treatment. It is however almost inevitable that treatment will be needed in the future but could be a long way in the future. That news in its self is very cheering. Uric acids still high in blood so medication been prescribed to reduce that along with something to ward of the side effects of the former. All in all a good day! Wish all of you out there can have the same good news next time you have to go for results

Well tomorrow is the day for the trouth.

2009-08-18T10:32:44Z

Well only 24 hours to go to ‘til I get the results from all those tests and the CT scan. It is really playing on my mind now! I did not get a lot of sleep last night. I went for a walk in the early hours only to be approached by a Community Support Officer duo who interrogated me on my reasons for wondering around at 4am. Then they suggested that they should ensure that I got home safely. I am certain they really only wanted to check I lived where I said. Any way the walk did not help that much but the interrogation took my mind off the results problem for a while. So there inquisitiveness did some good. I suppose I should be glad that they were on the job. I have my list of questions ready for the “Quack” hope the answers I get are the ones that I am looking for. Do any of you out there know what treatment is normally given to patents with Lymphoma Hodgkin when lumps, cysts etc., have not been detected by external examination? I don’t know if the scan has detected any yet or even where else in the body they can be found. Can anyone help?

Starting to get a bit worried

2009-08-09T13:52:10Z

It is a few weeks since I was last on the bolg site other than to follow what you are all up to, but as the time for my next visit to hospital gets closer the more concerned I become. Since I did my first blog I have had more blood tests but no more results. I have to wait 'til the 19th of this month for those and all the other tests I have had done. I dont know if any of you out there have had to play this waiting game, but if you have how did you cope. Do any of you like me live alone and have now one to talk to in the middle of the night when sleep refuses to come and the fear factor creeps into your mind. Any tips?? For some time I have been convincing myself that I will be OK. Things are not all that bad. These thing can be cured. This stratigy however is starting to grow a bit thin now that I am starting to constantly feel tired and the easiest of tasks are becomming more of an effort that I have ever known. Am I just being a wimp, or do all of us with this scurge get the same feelings? Give me a clue!!!!!!!!!!!!!!!!

Just joined. Hi everyone.

2009-07-28T15:51:27Z

Hi Everyone, As the title suggests I have just joined the community and this is my first attempt at blogging. Not just here but ever. I have not long been diagnosed with my problem and am quite ill informed as to what I can expect in the future. Not that my consultant is not informative, only that, I expect, he has not got all the evidence he needs to advise me propery. I am not unduly worried but I still find things a bit scary. I have my next consultation on the 19th August when I get the results of my CT Scan and from some blood tests that are to be taken prior to that date. The lead up to that I expect to be more and more scary as the time approaches. If you read my profile you will realise as I do that my situation is not as serious as most but living alone literally it would be good if anyone out there who has been down this road could suggest what I might expect.