louise h

Sorry error

2009-11-16T20:27:09Z

Hi,

Sorry made an error my husband's medication will go up to 100mg per day not 100g per day!!

Thanks

Up date

2009-11-16T19:19:48Z

Hi everyone,

I haven't blogged for a long time so much like everyone on this page has days when I guess we don't have time. My husband is due to get his balloon kyphoplasty in a week and then in another week he is due to have another endoscopy to see if his duodenal ulcer has healed hopefully it has and then the dexamethasone can complete the mix. He has not been allowed to have the cyclophosphamide recently as his white cells over the last two week have been below 2 but tomorrow we start again and the thalidomide is going up to 100g per day.

With all this going on my mother in law died today aged 93 and my husband Colin is determined to travel to her funeral but as a carer you get so scared after the last infection and having to be in hospital I just don't want him to go so we will ask his consultant tomorrow. The whole family have said they understand completely but I know he needs closure, she was a bubbly lady who enjoyed life to the full.

They say everything comes in threes so I was wondering what else could possibly be around the corner?

I hope that the next time I blog things will be looking up.

My husband is mobile

2009-10-20T22:05:27Z

Today my husband was able to get out of bed for the first time in eight days, he had his spinal brace fitted, He could therefore sit up and then his two physio ladies came to take him through his paces with a zimmer frame, but at least he is up. Hopefully he can come home and then we can go back for the percutaneous vertebroplasty. He has started the chemo properly last night and so we have to watch and wait to see if there are any side affects of the CDT cocktail.

Two steps backwards

2009-10-14T21:58:43Z

My husband went for a blood test on Monday, he had a slight fall in the morning as his back was giving him such pain that he was collapsing as he walked. His consultant refused to let him go home as he couldn't walk, so he was put in a wheel chair and there he stayed until about 6.

He is sedated and on anti-biotics as he contracted a chest infection even though he didn't go into any shops on Saturday. I now realise how easy it is going to be for him to get any form of infection and even more so once he is having the stem cell treatment.

Thank you again for all the emails I have received wishing us luck and best wishes. I hope anybody else who has just been diagnosed or is just starting out on the long road all the best, keep your family close to you and hug and kiss each other whenever you can.

How we are getting along

2009-10-10T17:09:39Z

Hi,

Thank you for the messages helping us along, my husband had his consultants appointment on Wednesday and the consultant was shocked by the state of his skeleton, the xray and MRI scan showed he is pitted all over like dead coral and she described it as egg shell delicacy, therefore very open to fracturing, and at least three of his vertebrae have collapsed so this coming Friday the orthopedic consultant will cement them to avoid them continually touching his spinal cord, this is good news and the morphine patches have kicked in although he has a top up. He was admitted that afternoon the consultant refused to let him out until they saw the results of the bone marrow aspiration and MRI scan, he was put on more medicines than I have ever seen in my life and steroids to start the whole process of getting him reading for chemo and then next February we are off to London for stem cell transplant.

We have had an awful few days and I have to say that at last I had a good cry after leaving my husband on Wednesday evening. Now I have to deal with my awful family who refuse to let me access my share of a family business in order to reduce our mortgage and save my husband from worrying about the mortgage. I think I might have to put this into the hands of lawyers, I am amazed how selfish ones own family can be. But as my husband rightly says there's 'Nowt as queer as folk'.

I have read so many stories on the blog page that I feel that mine is minor compared to young people getting this appalling disease and hope that there is some way we can make more and more people aware of simple back ache may not just be back ache.

New to multiple myeloma and need to chat

2009-09-28T17:38:39Z

My husband found out today that his chronic back pain is myeloma, we are due to see a specialist at our local hospital on Friday. He spent the whole of July and August at the osteopath having all sort back treatment, then he went to the doctor after the osteo said he was concerned and suggested the doctor. Put on pain killers and diazapan until last week when suddenly all the stops were pulled out and x rays three blood tests and then todays thunder bolt. Our daughter has just got engaged will my daughter have her dad there on her special day?

I am numb but my husband is working from home in pain I might add although he has patches to use and has a smile on his face so am trying to be cheerful and positive but financially we are not secure so not working is a real worry to him.

I feel better typing this and am sure everyone who has their nearest and dearest receiving this sort of news feels the same as me -