ladygooner's blog

update

2010-12-17T22:52:46Z

hi to all that know me- and those that dont- dont lose heart!

If anyone has got a copy of januarys ed of prima magazine, thats me in the rubbishly titled 'my best friend saved my life'! The essence is true, but I feel a bit cheated as I specifically wanted it to focus on the symptoms of ovarian cancer.

I cant complain, I am nearly (1 month away) in 'remmision' or whatever that means, after being told I have advanced cancer. isnt it funny, you nearly reach one target then they give you another- my prof said if you get to 5 years tumour free then you can be classed as cured. man. cured. thats something she has never even mentioned before. I will never ever forget the support I have recieved here or from my friends- thank you jackie, sarsfield,and all the others who have helped me along my way.

MERRY XMAS!

in the pink

2010-04-16T21:55:05Z

Hi to all

to all people who know the lovely jackie, to let you know, she was admitted to the Marsden at the beginning of April with a sudden but serious deterioration of her condition. she had periods of discomfort, but is in the best place for the moment. I am sure she could do with some positive vibes coming from all the supporters out there.

as I know more, I will post in the ovarian cancer group.

sue

review the year?

2009-12-24T18:35:12Z

Hi everyone

I would just like to send my good wishes out to everyone on the site for the holiday period.

this time last year, I wasnt even aware that this site existed- never mind be a member of this club! since then I have had surgery and completed chemo, and am clear at present of the dreaded c.

Thank you to everyone on this site who has supported me through this most traumatic of years- without you guys, I dont know what I would have done- is there anywhere else where i can get advice on how to get my bowels to work, what to do when your nose hair falls out from total strangers?

thanks to all of the wonderful friends I have met through this site- you know who you are!

Take care of you and yours

Sue

6 months post chemo

2009-12-04T20:42:39Z

Hi people

thought I would update , I had my 6 month post treatment ct in nov, and all came back clear!!!

I left the trial (ICON 7)in oct due to side effects- still having them a bit, but if the avastin did this, I cant complain.

' no evidence of disease' - how sweet are those words,(I have it in writing, on the copy of the report). sorry for those who havent got them yet, I hope it comes soon.

On the strength of that have booked a holiday to cuba- 60ish days and counting till sun, sea and hmmm.....I know.... Rum!

take care of you and yours

sue

out of the trial?

2009-10-15T21:16:23Z

hi all

after having side effects from avastin, on the icon7 trial, they allowed me one more dose, and to report any side effects. I was really hoping that nothing would happen as I seem to be seeing this trial as a lifeline- chemo all done in may, and this was a way of still doing something, rather just waiting to see if it came back.

after having severe headaches and vertigo, the dose wasommitted and a brain mri came back clearfor a possible stroke, i hoped that it would be fine but..... only had it yesterday and it kicked in at about 3pm today. bu****r.

I will have to report it and i reckon thats the end of the trial now.

now what do i do? keep my fingers crossed? hope? or all of the above?

side effects???

2009-09-10T18:16:14Z

Hi there people, I know that I havent been here for a while, I have been busy trying to get my life back to the new normal that we have to get to after the diagnosis and treatment for cancer! I am on the ICON 7 trial for ovarian cancer, having avastin 3 weekly for a year. I have recently developed vertigo, along with a stonking headache and sore neck, and no one seems to know if these may be related to the avastin, I know it is also given for colon cancer, lung and breast cancers as well, so was wondering if anyone who has had/ having it has experienced these symptoms as side effects, my research nurse doesnt know anything about them, so am scrabbling in the dark- please could anyone get back to me? cheers sue

life after chemo

2009-06-05T11:31:40Z

Well, all completed on the chemo front- 6 cycles of carbo/taxol all done, went to have the trial drug (ICON 7- avastin) on wed, and the results of the ct scan that I had on mon. all came back clear- CA125 is back down to 8, and all in all a good day, couldnt have the avastin as my bloods were rubbish, they wanted to give me a transfusion, but have had enough of having stuff put in my arm, so have opted for the natural way- lots of green leafy veg for me! feels weird (again!) as the consultant said- this is as good as it gets, I just have to change my mind set from getting through chemo, back to some sort of normality- whatever that is. take care of you and yours! sue.

chemo all done.

2009-05-16T09:22:17Z

Hi guys chemo all done now! 6 out of 6 all finished, no defferals, no problems (apart from shingles after cycle 3) so why dont I feel elated? i was more excited about it after last cycle, not excited at all- rather am apprehensive now, not what I was expecting at all- its not that I am not gonna still be seen, I am on ICON 7 trial so will still be going every 3 weeks for avastin until jan. it all feels very odd. maybe its just the change, my life has been wrapped up in making sure i was healthy enough to have chemo and now I dont need to do that anymore ( should be cheaper anyway- dont need quite as much organic fruit now!-maybe i should put that money towards getting ready to getting my hair done!) anyone else have these feelings? is it me or is it normal? I wasnt expecting it, and dont know how to deal with it, i think if its normal for a time whilst I readjust to this new phase in my life i can cope with it, but it just doesnt feel right- maybe its just me and am weird ( others have remarked on that so dont be afraid to tell me!)

5 of 6 completed!

2009-04-26T15:05:51Z

Hi all, just reporting that as of friday, 5 of 6 chemos completed! whoopee- the end is in site, bloods were ok after my panic which actually was the start of shingles- done and dusted now. I also found my CA125 from cycle 4, which was down to 8, after starting at mid 30 after the op, so I guess its working, so I am sure not complaining about the side effects at the moment ( give me a while- I will!) I cant believe its nearly over, still got the avastin ongoing, but hell, it cant be as bad as with the chemo with it can it? for those about to start- hang in there, it does come to an end- even if its just for a while.

cancer reading material

2009-04-13T16:38:48Z

Hi everyone, thought I would post this and see what happens, I have been, along with many other people i am sure, looking for articles and stuff about cancer- in particular ovarian cancer ( being selfish), and i read in the paper last week that there is a new magazine out aimed at people with cancer called c21. I had not heard about it so have ordered it online, has anyone else heard of it- it apparently launched in December, and i have to say it looked pretty good on the blurb ( they all do though), so am looking forward to receiving it, as I am fed up with the normal scare stories or fear based stuff that seems to be around. I wondered if people could let me know if there is other stuff out there? I am sure that other people would want to know about anything like this, so if you know of anything can you drop me a line.................. thank you in anticipation of wodges of comments and messages!

chemo 4 completed!

2009-04-05T14:12:02Z

Had my 4th chemo on Friday- whoo hoo, that means only 2 left! My platelets had actually gone up! ( admittedly by only 1 point, but moving the right way for me). I also got my CT results, ' stable disease' - which is good so they say, all in all a good day. Paying for it now- aches and pains kicking in- Aargh! Just vegging out now, for some reason I have an urge for really disgusting food- a fry up or egg and chips with beans, why I dont know, anyone else get that? maybe just comfort eating. my weight has stayed the same same since my op in jan (10 st 4lb) but for some reason both bloods and urine are showing a high glucose count, again anyone else had that? the Nurse couldn't account for it as I eat very healthily, and told me to carry on with what I was doing. Any answers gratefully received!

nosebleeds and chemo

2009-03-24T18:48:23Z

Hi there all, looking for some info. I have ovarian cancer, had 3rd cycle of chemo, Taxol and Carboplatin, on ICON 7 with avastin, and am recently experiencing short nosebleeds. Am trying not to blow my nose ( do you know how difficult that is?) and am aware that its to do with low platelets. does anyone out there know what I can do to help increase their production? I am living in fear of being deferred for my next cycle, as I want to do everything I can to get this over asap. I am veggie, and am eating the most healthy I can, (fresh fruit every day, organic food, lots of soya and tofu etc) Help!