kezza33's blog

LiGhT At ThE EnD Of ThE TuNNeL??

2009-10-19T21:20:44Z

hey all

well mum got a phonecall from the hospital today which was going to arrange a pet scan for her after the news the other day, and to let her know what treatment the docs were planning for her now after their meeting today.

however.....mum came off the phone and burst into tears saying "they think i might not need anymore chemo".. turns out they THINK the area they are seeing on her recent scan is scar tissue and not active lymphoma, most of the consultants had agreed. so they are putting it to a meeting next tuesday at the beatson hospital in glasgow with all the experts and if they are satisfied then mum may not need anymore chemo and things are looking up.

she may need some radiotherapy but this is the least of her worries to be honest. it all depends what they say on tuesday.

her blood count had shot up since last week again and shes feeling a bit stronger.

hopefully there is light at the end of the tunnel for my mum after all...will let u all know next week

much love to all of you

x x x x x x x x

Not so good news

2009-10-17T18:48:19Z

well mum got the results of her scan last week and it showed the tumour in her chest had shrunk by another centimetre only in the last 12 weeks. they are talking about now giving her a few more chemo sessions and some radiotherapy. the tumour is now down to 5cm by 3cm compared to original 10cmx10cm. i am so worried she is not going to get rid of this.

the chemo worked amazingly in the first four sessions, but seems to have slowed down or stopped. does anyone know how well radiotherapy workls, do they have to get the tumour to a certain size before they can zap it with radio? i thought maybe they would just give her radiotherapy now

i feel like crying all the time im so scared mum isnt going to get rid of this. i feel sick all the time. i dont know if this means mum isnt going to beat cancer :(

i cant bring myself to do anything excpet go to work and come home cos i just worry myself sick constantly and life has lost its enjoyment.

has anyone had the same experience as my mum? i dont want her to go through this anymore.

i went to a tarot card reading the other week there and the psychic told me mum was going to be fine and that december to -april was a big time for recovery in my family. i am just trying to hold on to this

much love x x x

can any1 shed some light...

2009-10-12T01:31:26Z

ai forgot to say that also mum has had really really sore stiff arms and finds it hard to use them or lift anything heavy, is this a common side affect of abvd? any ideas? x x

night everyone x

just letting off some steam x

2009-10-12T01:29:27Z

i havent been on in a wee while have been really busy...

mum finished her chemo two weeks ago and had a scan on friday there, we are awaiting the results. her last scan after four chemo sessions showed her tumour in her chest had shurnk by almost half. shes had twelve now, i am hoping and praying for her sake that it is all away now , i really really want this to be over for her, its been a long hard slog and the chemo has really took it out of her although she has been lucky in some ways, for example no sickness and still has a wee bit of hair, im so worried that something will be wrong and she will need more chemo or wont recover, but trying to be optimistic. have noticed recently her breathing has become quite a bit better so heres hoping.

just want things to get back to normal because sometimes you think god when is this ever going to be over- 6 months has felt like 6 years. when will the good times return and life be normal again!

sorry for ranting on folks

much love x x x

Amazing News Everybody!!!

2009-07-06T15:46:45Z

hi all well as you know already mum has to have 6 months of abvd for hodgkins lymphoma stage 2b with a large chest tumour tomorrow she has her 6th session which is her now half way through she went for her usual check up and blood tests etc today, and got the results of her recent PET scan- great news! the chemo is working and the doctors said with a big smile that they were "very pleased" with mums scan results. so she is now fingers crossed on the road to recovery!!!! it makes such a difference for mum it gives her such a boost now she knows it is all worth while and after tomorrow we are counting down til the end from half way :D three months to go (fingers crossed) its nice to know everything is going to plan and it has really made us smile we are all so happy maybe there is sunshine after the rain after all lots of love kerri x x x x

omgHAIR!!!

2009-06-29T00:45:54Z

hi everyone me again just another wee question... as you know my mum has hodgkins and she has been having abvd however this is her into her 8th week since starting chemo, and her hair has thinned (a lot!) although she still has a thin covering over her head even though u can see through it lol i was wondering if this is normal because they told her shed loose her hair although im aware that some people dont loose it all i was just a bit worried incase her chemo had stopped working, although my mum is like me and had really thick hair to start with so just wondering if its normal to have a wee bit left? any advice would be great for peace of mind thanks guys, sorry to moan on at this late hour! love x x x

HODGEKINS-A FEW WEE QUERIES FOR EVERYONE

2009-06-28T23:03:10Z

hi all well mum had her 5th treatment last week for hodgekins and i was just wanting to find out if how she is feeling is normal really , and if anyone can relate to it, well, she went for a lung function test two weeks ago and thre results were fairly good, she was told she had slightly improved which was good because an improvement in the first 6 to 8 weeks is usually very rare. so that was good news. she went for pet scan a few days larter and the doctor said to her they shud have the results in a few days and that if the chemo wasnt working and she needed stronger they would contact her and get her in to talk it over, but nobody has been in contact, im not sure if this is good or bad but im guessing if anything had gotten worse thy would have been eager to get her in, and i guess her lung function may not have improved as much however they have contacted her for another lung function test, were not sure why, we think maybe its just routine to see if shes still improving , does anyone know how often these tests are usually done? only other thing we can think of is that she is waiting on the doc filling in her benefit forms and maybe they need to do one for that purpose. my mum is worried they may have founf cancer in her lungs but i am doubtful, i dont think the test results would have improved if this was the case?and surely they would have phoned to get her in instead of sending her a letter? anyway shes doing not too bad , she feels rough a few days after chemo but then picks up and gets up and about but feels frustrated because she gets knackered really quickly! does anyone else feel this way? she seems to look a lot better, but she still has this skin itching thing, which ive read can continue beacuse the chemo is blocking her lymph glands for the minute, she is nowhere half as bad with the itching now though. does anyone else have anything similar? any thoughts people? thanks kerri x x x

Feeling scared about, well, everything!

2009-05-22T01:32:15Z

hi everyone feeling a mixture of emotions just now . my mum is about to have her third chemo session which means she has completed one cycle of abvd for hodgekins. it was found in her chest only. however i am starting to let my mind wander thinking terrible things like what if it is in her bone marrow etc or rain, it sounds terrible but i keep imagining the worst things. she had a boine marrow test before starting her first session and they said it was unlikely she had it in her bones. they never said anything about her test after that so we assume it was clear. now shes got a letter in to have an appointment with her doctor/surgeon and part of me has started to worry there is something wrong, although she is due radiotherapy and hasnt heard anything about this yet, and its supposed to be once a month, i assume that this appointment is merely to talk about that or to do a chest scan to see how shes doing. anybody any ideas? sorry to moan on at this late hour! xxxx

Giving a little back!!! xxx

2009-05-03T15:16:10Z

hi everyone! just a wee lighthearted blog entry to let everyone know me and my two friends are running the Race for Life for cancer research in glasgow on june 7th! it should be fun although i am so unfit just now!!! i only signed up on wednesday and i have raised 250 pounds already! go me! should hopefully get a lot more , got a month to go! hope everyone is fine love to all k x x x x

Side effects of chemo- everyone welcome to comment!

2009-05-01T14:48:13Z

hi everyone, im just writing to try and find out what kind of symptoms anyone with hodgkins lymphoma has had with their chemo? my mum had her first session of abvd on tuesday. since then she hasnt felt sick or been sick, she felt a bit spaced out on wednesday night and tired, but on thursday felt totally fine. today she has aching glands in her neck and armpits and chest , but they are not swollen. her lymphoma is in her chest so i suspect that maybe her aching glands are just the chemo drugs working on her lymph system? she feels fine otherwise, she is eating small meals and drinking fluids. her temperature is normal. any ideas if this is normal anyone? what are the side effects others have had.? my mum is tired and cant really taste food but thats about all ! thanks much love to all kerri x