just so gutted !!!!

Stem cell transplant - results

2011-11-11T16:31:11Z

Nige went for results yesterday for stem cell transplant he had over the summer ! To say we were a tad nervous was an understatement. Appointment wasn't until 3:50 so went and did some Christmas shopping first. Arrived at hospital and waiting was nearly empty which is a first , got into appointment more or less on time and the verdict is ............ 'IN REMISSION NO TRACES OF CANCER AT ALL' Wooo Hooo bring it on we are totally buzzing at the moment and looking forward to the future :)

Sending lots of love and hugs

Maxine xxxxxxxxxxxxxxxxxxxxxxxxx

post stem cell

2011-09-09T18:45:50Z

Nige been out 3 weeks now !!! He doing really well white cell count normal platletts over a hundred !!! :) x Line was removed on Wednsday he said it hurt more coming out than going in but is all ok !!!

just waiting for the 3 month scan to see if stem cell has worked already over a month post stem cell so not much longer to wait now :) x

love to all

Maxine xxxxx

Stem Cell transplant

2011-08-21T13:09:52Z

Well Nige has had his transplant and so far so good !!!!!!!!! I was absoulutely dreading it 4-6 weeks in Jimmys all the travelling back and forth every day and the fact that Nige would be so ill !!!!!!!! Nige coped really well indeed only had three really bad days which he slept through most of it , he did have the runs for a week but thats normal just the chemo doing its job !!!!! and low and behold 20 days later they let him come home which was actually only 13 days post stem cells to say we wre a tad excited was an under statement I felt like i'd won the lottery :) xxxx

Been home home 5 days now and doing well Still along way to go until complete recovery but at least he is home where he belongs

Love to all , Maxine xxxx

weekend

2011-06-19T19:29:35Z

Just come back from an amazing weekend in Scarborough before Nige goes in for his transplant !!!! No Cancer, no Hospitals Just Max and Nige a little bit of 'normality' woo hoo :) xxxxxx

stem cell harvest

2011-04-29T17:09:21Z

Went to Leeds on Wednesday for Nige to have his stem cell harvest !!! Both extremely nervous of the unknown !!

We had no need to be his nurse was absolutely fantastic and made us both feel at ease and explained everthing step by step .

She took bloods and said we needed a count of at least 10 to do it so we waited an hour for the results to come back ......... 216 woo hoo bring it on .

She explained that consultant had ask for a harvest of 3 which she said was a normal amount to request .

Poor Nige had to sit there for over 3 hours not moving his arms but we managed to amuse our self mainly at my expense hahah :) Finished about 3:30 after being there since 7:30 was told they would ring us at home to let us know if they had collected enough and if they had we wouldn't need to go back the day after. The call came about 5;45 .............. 14.2 can't belive they got so much

So thats one more thing over and done with and no more appointments untill the 10th may so a couple of weeks of normality :) x

just gutted!!!!

2011-03-19T19:51:43Z

My husband has NHL which was diagnosed in February 2010 this totally devastated us and our daughter !!!!!! but we got on with it and he now has had 8 r-chop chemotherapy treatments everything went well pet scans came back good with vast reductions!!!!! :) ( We actually got to see the scans couldn't believe something so huge could now be down to next to nothing ) The last pet scan results we got in October were not exactly what we wanted to hear ' Nothing has changed since the last one in July' felt like we were back at square one !!!!!! ( well for a couple of days anyway ) he has just started 16 lots of radiotherapy so with have everything crossed that this does the job and gets rid of the final little bit !!!!

Radiotherapy all finished he did really well no bad side effects apart from tiredness!!! just got to wait until 2nd March to see if it has worked ..... this is the hardest part can't bare the waiting !!!!!!!!

Well 2nd of March date been put back to 9th but hey hoe only 8 more days of waiting !!! Only thing is the nearer it gets just can't decide if I'm excited or absolutely petrified !!!!!

Well results are , not good need to start treatment again he goes back into hospital on sunday for a week of strong chemo, 3 weeks off then repeat , pet scan then they decide if he needs 2 more. looks like he will need a stem cell replacement so thats 4-6 weeks in Jimmys'!!!!!!!!!!!!!! We are all just devestated :( thought we had beaten this he is so well !! hey hoe onards and upwards we coped once we will again ! But i can't help thinking what if this doesn't work ????????