julie43's blog

rather confused re ovarian cancer stage 3

2011-02-14T15:32:04Z

please can anyone help, i was diagnosed with secondary peritoneal cancer in 2009 suspected primary ovarian cancer but couldnt detect tomour,i finished chemo in jan 2010, had regular check ups with oncology and gynae every 3 monnths, please note not even secondary was picked up on ct scan was only found after pathology for an emergency op on bowel. c125 level was at just 19 end of oct 2010 although ct results wernt avalible, i had a call week later asking me to go n see gynae consultant who adviced that some cyst were getting bigger on ovarys and suggested a total hysterectomy which i had on 10th jan 2011 on my consent form it said to relieve symptoms n diagnostic, left hospital again had a phone call requesting i go to hospital to see gynae consultant in his office , who said i dont know how to say this then said cancer, i said its back n his answer was i believe this was the primary n it was never gone the chemo i had may have shrunk it but once chemo stopped it started growing again, i asked had he suspected cancer during op n he said no he showed us pathology report n it said stage 3 ovarian cancer , he said he would arrange a mdt meeting but it would probly mean more chemo, now today oncology nurse said they may not give me any more treatment and this is my question why wouldnt they give me chemo please help im worried sick thankyou for reading this i havent half gone on but need to explain it all, love to you all xx

21st december,had a brilliant day

2009-12-22T05:34:50Z

what a brilliant day i had yesterday,thanks to my daughter rebekah and my special little man leon (my 2 n a half grandson)since i started my chemo in october ihadn,t been well enough to have him on my own but yesterday i managed to have him from 11 till 6 ok it was at my sisters house but it was without rebekah saying dont pick him up dont do that dont do this (bless i know shes only thinking of me ), it was nice just to feel some normality and my spirits r so high today, mind that may be because leon wore me out and i actually slept from 8 till 2am an achievment in its self,but what made my day was when he sang the barny song i love you you love me , and then when they dropped me home he said i love u nana all the way up to the sky n back again which brings tears to my eyes every time, but i am just so happy happy happy 2day, hug to you all hope u all have a peaceful and happy xmas love julie x

how do i get my private messages

2009-12-13T07:39:05Z

hi all how do i get my private messages,anyone who has sent one please dont think im ignoreing you just havent worked it out yet ,thankyou all for your kindness n support love 2 u all xx

thankyou all so very much

2009-12-12T06:36:50Z

i would like to say a very big thankyou to everyone who answerd my blog yesterday, your kind words and support made me feel much better,although im still in terrible pain i know i can get through this thanks to all you wonderful friend on here and my family ,i no longer feel i am alone thankyou all from the bottom of my heart love n gentle hugs to you all xxxxxx julie

feel like giving up

2009-12-11T05:52:33Z

hi all please excuse my little rant , i am 44 and am feeling 94, just had my 4th cycle of taxol/carbo last week, and feel absolutly rubbish terribe pain from hips down numbness in hands and feet unable to walk more thana few steps without my llegs feling like jelly im normally a very positive person but i just feel like packing it all in curing up in a ball and just giving up,is this normal to feel this way or am i just being a big baby, thankyou 4 listening love n hugs to you all julie

started chemo

2009-10-20T07:12:37Z

hi ev1 havent been on for quiet some time,starte my chemo<taxol/carbo> on 1st october,although my primary cancer not found,secondary in te abdominal linning (peritoneal)they think primary may have been in ovary, so hence taxol/carbo regime,go again thursday for more chemo,hpe it will be easier this time,hair already gone,is ter anyone on same regime who can give me any tips on dealing with all this. thankyou for takeing time to read this,i hope u all in good spirits lots of hugs and love julie