Jim B

Can't win all the time

2011-05-13T19:03:08Z

Hi everybody. I've not been on for a while.Finished Radio and got pet scan. Was waiting to see consultant and my stomache exploded.(perritinitus or something) That was about 3 weeks ago and I've been in hospital since. Been told nothing else they can do(now terminal) and trying to get things organised about getting home for a while.I have an ilioscamy bag on my small intestine and a drainage bag on large intestine.i thought can't get worse until today when a hole has appeared on my wound.and they can't get it to stop so they have fitted a wound management control bag. Looks like a stoma bag with a valve. My biggest worry is the stuff can backflow over my wound.Sorry if ranting but my head doesn't know where it is. I suppose one positive is I've made an honest woman of my partner.We got married in intensive care(it was a bit surreal)

Jim

Good news / Bad news

2011-04-08T00:11:41Z

Finished CT,MRI. and Pet Scans. I've been referred to the Beatson at Gartnavel from Hairmyres.My new Consultant's name is Michael Duff and when I inquired as t why this was taking place I was told it was bacause he has more experience in these more Complex surgery procrdures. I can tell you I wasn't overboard with excitement when I heard that.Still just another slight hiccup I'll need to deal with.

That was the bad news, the good news is I'm going to marry Deirdre, my partner of 17 years; nothing too lavish maybe a guest list of about 30-40 max. We're hoping to do it before surgery whilst I'm still a relatively whole human being.

Love and God bless all,

Jim

Back waiting

2011-01-30T22:24:41Z

Hi!

Where does time go? Thats my radio and chemo finished,so back on the waiting game. Been told about 4-6 weeks then MRI and PET scan. Never had a pet scan but I'm sure it won't be that bad. If tumour has shrunk enough I should get surgery about 4 weeks later. Hoping it works second time around. This time it will be time to kiss my bum goodbye and get a permanent Stoma (NO REVERSAL). So hoping radio has done it's job.

Jim

A good year

2011-01-12T23:20:32Z

Hi all,

Havn't been on for a while, hope everyone made the most of Christmas and New Year.I'm getting radiothrapy as well as chemo tablets so I decided to stay T.T. over the festive period. I've had my medication changed and I am now getting a sleep most nights, (don't know if the radiotherapy is causng it but its great).I finish radio and chemo on 28th Jan then its more scans and hopefully tumour will be reduced enough for surgery. Don't mean to sound depressing as at least there is hopefully a light at end of tunnel, it just seems a long tunnel.I'm just about to read blogs from you all so I hope most will be positive.So A HAPPY NEW YEAR to you all and lets hope its a good one.

God Bless,

Jim

Losing it

2010-10-08T16:14:31Z

Hi guys,

Met with colerectal nurse this morning and they have decided on an MRI scan and then p robability is 5 days a week radiotherapy for 5 weeks and then surgery to remove back passage and give me a stoma. Wish I could be more positive but s**t happens. Stay good all of you,

Jim

Bad result

2010-10-05T15:57:02Z

Hi all,

Seen consultant this morning - cancer back - not what I wanted to hear but suspected as much. I'll find out on Friday what plan B is so just have to wait and see.Thanks to all for good wishes.

Jim

The waiting game

2010-09-29T22:25:34Z

Hi all,

Got through the colonoscopy ok with a little help from a general anaesthetic.Consultant wants to see me next week regarding outcome. Problem is he finishes up Friday for holidays and his next surgery isn't for another 4 weeks. Ominous if he calls me in before he stops.Fingers,toes and everything else I can are crossed till I get results. Will be hard till then but I'll think positive till told different.

Stay good,

Jim

colonoscopy

2010-09-28T01:51:06Z

Thanks all for your good wishes. Angela it was the lower rectal region I dont know if same but quite sure it would've been same surgery. I'm sure they will take biopsy for lab so don't know when i'll know outcome. I'll keep you posted.

Stay good

Jim

Moviprep

2010-09-27T12:44:46Z

Hi everyone, first time on any forum.Another 4 hours and its time for the dreaded Moviprep, had it twice before so know what to expect .In tomorrow for colonoscopy to find out what lump is on the join of my resection surgery so fingers crossed. Keep your heads up. Jim