Hairy Cell Leukaemia - Chemo and Liver Function tests !

2009-01-05T18:15:47Z

Hi I have been a member on this site for a while but haven't posted anything before, I was diagnosed with Hairy Cell Leukaemia in July this year and following two different treatments I am having problems with the results of my Liver Function blood tests. Perhaps I should provide a little more background, I have just turned 40, married with two children - following a blood test in May last year it was noticed that my blood counts were irregular and so the chain of events began which led to my diagnosis and with out doubt the biggest shock of my life ! The main thing I remember from that day is when my consultant told me ' That if you are to get Leukaemia then this is the one to get ' !! - this was the only crumb of comfort and I remind myself of his words on a regular basis. I started treatment on Cladribine in September but this was stopped after 3 treatments as my ALT and AST Liver function tests were too high. I was then moved to Pentostatin which I started in November and after 2 treatments I have suffered the same problems with my Liver Function Tests and they have postponed treatment again - I am scheduled to undergo further specialist blood tests this week but I am unclear what they are for as I haven't yet been able to speak to my consultant. The main thing I am really struggling with is that we were assured this was a very treatable disease and yet I have now had the main two treatments and was unable to complete either - This is emotionally draining for not only me but my wife and family as the uncertainity of not knowing what will happen next is really hard. I would be interested to hear from anyone with experience of the LFT problems or any HCL experiences which would give us some positive thoughts on the future ahead. Thanks Jamesy

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Hairy Cell Leukaemia - Chemo and Liver Function tests !