Izzy's Crazy Thoughts

getting on my soapbox!

2010-07-03T14:35:48Z

well yesterday i went down to glasgow for the mesothelioma action day which was held at the city chambers - the first one to be held in scotland.

the speakers were good and i was glad to see that they had a couple of people there who had meso speaking too (which was very brave of them) which i thought was quite inspiring.

at lunch time, however, when we had the chance to talk to the speakers i suggested that maybe next year they could touch upon the alternative therapies out there for people... just to make them aware that they are there. they wouldn't have to spend time talking about them but just to let people know that they exist and they could do their own research from there.

to say i was disappointed with the response i got would be an understatement. i was disgusted! yesterday was supposed to be about mesothelioma but "the professionals" wouldn't see past the chemo, radiography and surgery.

my dad is going to frankfurt to see prof vogl and he gets mistletoe therapy but these so called "professionals" can't see out of their little boxes to even suggest that these may be of help to others because they are not clinically proven. well here's the thing..... they might just help! maybe not everyone benefits but some will and surely that is better than doing nothing!!!

aaaaaaagggggggggghhhhhhhhhhhh!!! hope is everything and alternatives can give hope so why oh why can't they think about alternatives?? even just by having a page on the programme briefly mentioning them cannot hurt. if they were so concerned they could always put a disclaimer on it!

let people know if only to give hope that's all i'm asking!

my dad is dying and my best friend won't speak

2009-10-13T08:41:15Z

the only time i really need support from my best friend she stops calling. i don't get it... she can be there for her neighbour when her husband is dying of cancer but when it's my dad the conversation gets changed every time i mention him and now she won't even call.

we can't see each other as often as we would like as she's in ayrshire and i'm in aberdeenshire but surely she could pick up the phone????

am i being selfish or is she being a bad friend??

clearly i'm asking too much from her to be there for me............ this sucks

mistletoe therapy for mesothelioma - any success??

2009-10-11T16:02:23Z

my dad has mesothelioma and is to see about getting mistletoe therapy tomorrow. just thought i would ask if anyone who has had this treatment has had any improvements or if they have seen any changes??

thanks, Izzy xx

I want to scream!!

2009-10-06T21:01:45Z

My dad was diagnosed with mesothelioma on the 31st July. So far he's doing okay. He's had his second lot of chemo so feeling quite tired and sick sometimes but trying to keep positive.

My mum isn't doing so well. She went to see a therapist today which helped a wee bit but we'll see as the sessions go on how it really helps, if any. I try to get her to talk to me but she doesn't want to burden me with her feelings too.

My sister has got them so upset tonight. She lives down south and has been up to see my dad twice since he was diagnosed... the only two times in the past year and half. Now she says she has split with her other half and moving back in with my folks tomorrow. I am soooo angry! She is getting tests done at the doctors at the moment and there could be something wrong with her, but this could just be a virus. My dad's immune system can't take that gamble. She barely acknowledged them when he was fine and now she expects to move home with them and everything will be okay.

I so wish i could tell her how I really feel, about how much more stress this is causing them and how I can't be there to help them as much as i could as I still have to work, although I only live 5 miles away. I wish she would grow up...and she's older than me.

Sorry, this is my first post and I just needed a release or I might scream and wake the neighbours!!