Geordiegirlhttps://community.macmillan.org.uk/cancer-blogs/b/geordiegirl/atomTelligent Community (Build: 12.1.2.21912)2009-12-12T12:20:34ZPain association with mesotheliomahttps://community.macmillan.org.uk/cancer-blogs/b/geordiegirl/posts/pain-association-with-mesothelioma2009-12-12T11:20:34Z2009-12-12T11:20:34Z<p>Hi</p>
<p>I have rang my lung nurse on several occasions and I appreciate meso. is still a fairly new cancer and so the oncologists etc. arent able to answer all the questions.</p>
<p>We dont want a bungled answer we want the truth which is "I dont know the answer to that as yet". </p>
<p>The lung nurse asks you t describe the pain etc. have you tried this pain killer etc. ring back after a week on this pain killer and we will go on from there if it hasnt worked. Basically I have rang so many times as you are frightened the cancer is growing and sometimes the pain is different from the last one, but all the outcome in my case has been nothing except no explanation for the pain.</p>
<p>Also, one time it was so bad they gave me an x-ray. Well with meso. it can hide and when that came back ok I asked for a scan and nearly had to wait three weeks. I thought cancer sufferers were a priority. Is it because we have to collapse first as if you can still ring up etc. you are considered fit and well still.</p>
<p>I have been given several reasons what the pain may have been, but never what it actually is. </p>
<p>I am told to still keep ringing, but now have rang so many times I feel a pest and just take more pain killers.</p>
<p>Does any other sufferer feel the same or have some tips apart from hitting the bottle when the going gets tough.</p>
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<p> </p><div style="clear:both;"></div><img src="https://community.macmillan.org.uk/aggbug?PostID=280704&AppID=30071&AppType=Weblog&ContentType=0" width="1" height="1">Former Memberhttps://community.macmillan.org.uk/members/formermember