hi

2009-05-27T16:26:38Z

hello everybody, getting a little fed up that results through from the last scanned octreotide scan come out clear. This is the third scan I've had, but the doctors still tells me.carcinoid syndrome still have all the symptoms, and they're getting worse, fell over twice last week, and it's a Long Way down when you are 6 foot four lol but seriouslyI serotonin levels of over 1700 and above all the symptoms of asthma, get very short of breath, just talking if I'm doing any training. Afterwards, I shake from head of uncontrollably and a burning sensation feels like I'm slowly cooking and my eyes feel like they're being deep-fried very tired all the time but still managing to go to work but not every day can't get up early, any more, takes too long. The sleeping, very often now if they can't find the tumours do I have carcinoid ? anybody have any idea regards David

bit of a bummer really

2009-05-07T10:27:47Z

hello everybody, I am quite new to this I have come to terms what's going to happen to me.I Have carcinoid syndrome which to most of you will mean nothing is a very rare form of cancer to people in one millionth get it I knew i was unique LOL had not started treatment yet but they seem to think there is very little they can do

duff's blog

hi

bit of a bummer really