Distracting myself, hopefully!

Trying to be positive

2026-01-17T16:32:26Z

I'm trying to be positive, but I've been really struggling to deal with how the surgery has changed my life. I had a grumble about my hearing in my last post so we won't go there again. Next I still can't speak.&...(read more)

Hospital visit yesterday

2026-01-15T11:45:23Z

We went to the hospital for my weekly clinic visits yesterday. Started off with the dressings nurse in the MaxFac clinic. My dressings have to be changed twice a week, the hospital does it once and then the district nurse comes round for ...(read more)

New feeding tube today

2026-01-12T16:48:14Z

I got a new feeding tube today. I suspected it may be on the way after the nurse mentioned a possible fungal infection last week, and I had to get the swabs done. I'd not had any control over my feeding when I was in intensive ca...(read more)

Things to help

2026-01-11T14:07:23Z

Today I'm going to write a list of a few things that have really helped since I got home from hospital. Apart from the toilet frame with handles, everything else we already had around the house. The toilet frame with handles is brillia...(read more)

Cut it all off!!

2026-01-10T14:26:17Z

This refers to the note I handed H when he visited me at the hospital last month. It was the day I'd finally got out of Intensive Care and into a High Dependency Unit. The problem was my hair. I didn't get a chance to have i...(read more)

Hospital clinics yesterday

2026-01-09T13:49:30Z

Yesterday as we had to travel to Nottingham for various clinics at the hospital. Up early as we are never sure when hospital transport will arrive. H is now allowed to come with me due to my lack of speech and hearing. We had a busy...(read more)

Recovery is a full time job.

2026-01-07T17:07:15Z

H and I both started of the day feeling quite overwhelmed with everything and not coping well. There is so much to do, especially for him as I can't speak yet and I've pretty much lost all my hearing. So he has to deal with phone ...(read more)

Home from hospital

2026-01-05T14:35:36Z

A quick update. Finally made it home 5 weeks later. Very tired, will write more about it all over the next few days when I'm not so exhausted. (read more)

Good news about husband

2025-11-28T16:59:30Z

We had some good news today. The hospital phoned to say that H's prostate biopsy results are back, and there is no trace of cancer. They have put him down for regular 6 monthly reviews, so he will have a blood test and check up then.&...(read more)

RIG Feeding tube operation

2025-11-26T17:12:19Z

Went to hospital on Monday to get my RIG feeding tube put in. I was nil by mouth from 9am that morning. They didn't collect me from the ward for theatre till 2.30pm and there was a lot of paperwork first. Wheeled me into theatre...(read more)

No relaxing today

2025-11-23T18:25:51Z

I'd been hoping for a relaxing Sunday but it soon became clear that there was little chance of that. First H needed his hair cut. Then I thought I had better tackle my fringe. Next was the laundry and bed linen changing.&nb...(read more)

Hospital transport Friday woes

2025-11-22T17:15:40Z

I had a long early morning hospital appointment yesterday. It turned out to be the perfect example of how hospital transport can be a nightmare. Especially on a Friday. This is a quick explainer for anyone not familiar with how the ...(read more)

MRI scan yesterday

2025-11-19T09:50:05Z

Yesterday was a long tiring day. I went to Nottingham for my MRI scan. It reminded me a little of the sort of hectic working days I had when I was many years younger and a lot fitter. It was exhausting then, goodness ...(read more)

Fed up today

2025-11-17T17:26:02Z

We had a lovely weekend, it felt like the good old days, we hardly thought about cancer for two days. Today I came down to earth with a bump. Woke up feeling very fed up and grumpy. Went for a blood test this morning which prob...(read more)

More planning news

2025-11-14T17:27:50Z

Another busy day. Up early for my flu jab appointment and then on for some supermarket shopping. H is slowly improving from his prostate biopsy. He's a bit less uncomfortable today. He was OK driving for our short car...(read more)