dazzlex2's blog

Dazzles update

2009-09-25T19:31:26Z

Unfortunately my GP and consultant think that i have had a hematoma which is why i have pain in my bum. It could go away by itself, or i might need another op. :( i should know more next Thursday 1st Oct when i go back to London

Operation Successful Dazzles Pelvic Tumour Resected

2009-09-23T11:36:57Z

Well its been a while since i've posted because i've been recovering first in hospital and then at home.

My op was Tuesday 15th Sept i was sent down around 9:30 at the Royal Marsden in London where the anethisists checked me out and fitted an epidural with my help, then i woke up 2 hours later minus my tumour.

The two surgeon Barnaby Smith and Professor Thomas removed a 3.6kg dumbell shaped tumour from my pelivs.

Fist day/nite in hospital was constant obs so i had little sleep thereafter it was okay fist the epidural was removed and then the PCA morphine was taken out.

I was discharged feeling okay Saturday 19th Sept.

Since then i've had numbness and pain in my left lower back which my GP thinks is nothing to be concerned about.

I'm due to go back to discuss the results from the lab in a couple of days, i'll post back the news.

Darren's Pelvic Tumour - Op Tuesday 15h Sept. - Royal Marsden - Prof. Thomas.

2009-09-09T15:03:43Z

Got back from London yesterday afternoon, traffic was pretty clear. The procedure i had on Monday was an angiogram to check if i needed to have an embilisation done on the arteries in the right of my pelvis (that is - if the tumor had connected up with the right side or not). The radiologist could not determine any links so he halted the procedure, i asked if that was good/bad. His reponse was that it would make the main surgerical procedure less complicated because only one blood vessel would have to be managed. Feeling pretty shiy though so the main op can't come too soon. I'm currenlty on 10mg of morphine twice a day, intersped with 30ml of Oramorph as breakthrough, neadless to say i'm spending a lot of time in bed because driving is out of the question.

Darren's plevic tumour

2009-08-22T20:19:22Z

Today was a good day - I ate a loverly Wetherspoons Fry up. The sun was shining for a change. And my lovely wife had organised a match ticket. Wigan v Man Utd. It was a brilliant game, matched by the atmosphere of the fans, singing all through the game. The second half was a blinder - First Rooney got his 100th goal then Berbatov scored a fabulous individual effort. Next Rooney got another but was later subbed for Michael Owen who came on and scored his first Prem. Goal. That would have been good enough but then Nani having earlier missed a free kick oppurtunity by putting it over the bar, this time made no mistake and curled a brilliant effort in. Who's missing Ronaldo now ?? After the game i was pretty sore, but the exictment took over and i was okay. A nice chilli and a bit of X-Factor has rounded off a perfect day.

Darrens pelivic tumour

2009-08-14T20:23:44Z

Had a good day today - spent a fun morning at Acorn Animal Farm in Knowsley near Liverpool. Chased up my Mac grant today, i should have the paperwork through on Monday i hope i get it approved to help pay for Sarah's accomodation whilst im in hospital. Pain was a bit worse today had to take a bit extra Oramorph then previously, although the Mac nurse said i'm having hardly any at the moment so i guess thats good to know. 32 days to my op.

Darren's Pelvic Tumour

2009-08-12T22:05:42Z

12th Sept - been to see my GP about getting a Macmillan grant to cover my partners accomodation whilst i'm in hospital in London. The Marsden has invited me back for another scan 2nd Sept, and then rang today to say they have just had the scans through for the one i had back at the end of July at Christies. Hopefully will find out tomorrow that i don't need another visit.

Darren's Pelivc Tumour

2009-08-10T11:56:22Z

Date October 30th 2008 - i enjoyed a nite out with my wife and daughter attending an engagement party. Quite a few drinks were had but something strange happened when i was trying to wee, i couldn't. Silly me though i needed to drink more water which only made it worst. Eventually about 4am i rang my dad and Sarah my wife dialled 999 i was in agony i couldn't pee. Gas and air in the ambulance every bump causing me more pain - i was rushed into the crash suite were a very kind nurse put in a cathetar and started to drain out the wee. The day passed more and more urine was passed into the cathetar some nice doctors felt up my bum and asked me some questions, how did this happen etc. I said i think i have been having a little difficult weeing for some time, it seems to come out quite slow. Sarah came to see me just as i was being admitted, then i stayed one night in Wigan Hospital. In the morning the urologist consultant again felt up my bum which really hurt, he decided to remove the cathetar and to check if i could pee normally. I spent all morning filling up bottles of wee. A nurse checked how much wee was in my bladder using an ultrasound and then i was discharged. I didn't see a consultant again until February, he examined me and then said i should have had a urodynamics test and a cystosocpy. The urodynamics was in early March it proved something was obstructing the bladder the cystosocpy showed that my bladder was beind distorted by somthing. I was sent for a CT scan. At the end of March i had a CT scan at Wigan an appt in April i was shown that there was a mass in my pelvis that was unclear what it was except it was pushing my bladder to the right. The urologist consultant referred me to Professor Clarke at Christies. It was only then that i started to fear i had cancer, i was ok at first because i wasn't in any pain. When i eventually saw the consultant it was in June yes thats right all those weeks passed. During that time between my visit at Chrisities i had started to get pain in my groin and hip and started to take pain relief tablets. I was now off work. On 18th June, the consultant said i had Liposarcoma and that it was too large to operate on and therefore he couldn't help me. I sat with my dad in shock, the 19th June i was due to have a biopsy done, how could he know for sure i had cancer.. He said that he was referring me to Doctor Wylie at Christies as i would probably require Radio. My mum and dad took Me, Sarah and my daughter Lucy away for the weekend between my next appt. As is prepared myself for having radio. The results of my biosposy was discussed 14th July it was low grade and so it wouldn't respond to chemo or radio. Again i was stuck for what to say. But glad that it was unlikely to have spread as i was fearing that it may have spread to my lungs or somewhere else. Dr Wylie suggested that i needed to have a 2nd opinon, and that i should referr to Professor Thomas at the Royal Marsden in London. I agreed. Last Friday 7th of August i met with Professor Thomas and much to my relief he has agreed to remove it.