Claire leonie's blog

my dad

2009-09-09T20:40:28Z

Well what can i say he has lost his fight. My dad passed away peacefully at 13.40 today after just over a year of fighting. Thank you for all your help and support. Im doing as expected trying to keep my promise i made him and staying strong its hard but helping if you know what i mean. claire xxx

more chemo

2009-08-24T18:24:45Z

Hi all just a quick update to let you know about my boy. He was in on friday for chemo and got out sunday night. He is having three diffrent kinds. Its taking its toll in him he still hasnt ate anything since friday and he is still being sick. He has another six blocks to go then keep fingers crossed that is it all done with. i cant wait till i come in and say thats it all over. it has been hard watching him this time being really ill where he cant even lift his head off the pillow. i hope he gets over it soon. My dad is still the same struggling to breathe i feel as if im pulled in all these diffrent directions. He is so stubborn but i have said to him that i will support him in whatever he decides to do. It will be hard to watch but its time i grow up and stop being his baby.

My dad and boy

2009-08-16T17:22:39Z

I dont know what to say the wee man has appointment on wed for his foot. The nurse came up on friday and said hes ment to go in on tues for chemo and i argued with her. They had a meeting about brandon on mon and that was me just finding out. So i said they are not getting near him until i speak to the doctor. He was ment to wait 3wks not 2wks between surgery and chemo. I feel as if they are doing to much to him they are not giving him a chance for his body to heal with one thing before they put him through more. Other that that he is doing really good still has to stay in his bed which he has no problem doing typical boy lol. My dad is getting worse and now im scared. He rattles everytime he breathes and constantly unsteady on his feet. I find it hard to see him like this. He had the hosp last week and didnt tell them half of whats going on. We had a disagreement about that and he barred me from the house for about a week. I went up the other day and saw him. He doesnt look like my dad anymore. Hes in so much pain i dont know what i can do for him. My mum isnt sleeping she is sitting up all night watching him which is going to make her ill aswell. sorry for venting again i dont know what else to do .

brave brandon

2009-08-04T21:45:28Z

Hi all update Brandon only had one toe removed surgoen saw us yesterday and told us that news. Then he had surgery today at 9.30 this morning and came back to me 3.00 . He is doing good the now a bit sore but dealing with it like the big man he is. The surgoen says hes took all the tumor out which is great news so im happy. We dont know if the pinky toe has to go yet because it started turning funny colours. He will see in a coulpe of weeks. Brandon should get out on thursday looking forward to that. He will go back in 3wks for more chemo. I feel as if a huge weight has been lifted off me. I cant thank you all enough for the help and support you have given me. My dad still isnt doing to good. Still taking dizzy spells and not himself but he said hes going to fight as long as he can for my kids. Thats my news i will keep you all informed my extened family Ps he thanks all of you for wishing him a happy birthday he had a great day

my big boy

2009-06-27T23:50:48Z

Well my son only has one more chemo to go and he isnt looking forward to it. He was taking it in his stride but now the affects of chemo have really started to affect him. Hes had two blood transfusion now and he hates them. Hes begging me not to take him on moday for his last dose but i say the finish line is almost there. His blood counts are down so we have to them checked before he gets his chemo. The surgeon still havent spoke to us yet to tell us whats going to happen. Im taking a day at a time the now. He is getting more bad tempered and forgetting things which is getting on his nerves and mine. My dad has still refused to go to hospital but the doctor comes out now. He has refused any more treatment still but the doctors are trying to control pain which seems to be working the now. I take the kids up once a week so it doesnt tire him out to much and the kids know that he is ok the now. Brandon knows whats going on with my dad. He spoke to him but my girl is to young to understand. I will keep you all informed I just want to say thank you for all your support and helpful advice xxxxxxxxxxxx

my brave boy

2009-05-24T16:50:18Z

Well my boy has had his fourth lot of chemo and now is is really taking affect. His whole attitude has changed and not for the better. I keep telling him off when he starts which i feel horrible doing but i dont want him to think that it is ok to act that way. I tell him i love him always but there are times i dont like the way he acts he has started on his wee sister which isnt fair on her. She is only 6 and doesnt even understand why her big brother is acting that way. Itell her its the bad medicine going in to kill the bad bug in him but that really upsets her. I am trying to be strong but i feel like the world is against me the now. My dad isnt doing good still not eatng and being sick all the time. Started to collapse alot the marie curie offered him to go in and he said no. I think hes scared incase he doesnt come out. They have told him they can only control his pain now so it is a matter of time. He doesnt want to see the kids which is hard on them. I love him so mch and im so scared incase i not as strong as i think i am. He already told me ive to be the strong one and not to break as the rest of the family will. I have the kids to be strong for. I dont know if i can do that im my daddy baby girl, and the baby of the family.

Brandon

2009-04-22T18:48:24Z

My son was at hospital getting a check up today and found out his blood cout is low and means he might not get his chemo on monday. Which i dont know how i feel about that they never really explained. The way i saw it was on monday that would be him half way through it and now we are in limbo. He is getting very tired and grumpy the now but he wont stop he just snaps. Then later on he says sorry but i told him he has to slow down a wee bit. I dont mind him playing with the other kids but you can see he is getting out of breath and he doesnt stop because that would be weird. He doesnt see that i am just trying to protect him he is my boy. My dad has been told that they cannot start his new treatment until he stops being sick. They keep changing the anti sickness pills but none seem to work the now he has lost two and a half stone in three weeks. He keeps saying that he is worried because he says it feels diffrent.He is panicing incase it is spreading and i dont know if thats just it or does he know. He looks ill a shadow of the man he was and starting to get harder seeing him the way he is. I am his baby girl and he trys to put the braveface on but its starting to crack

my boy

2009-04-17T21:11:09Z

Well my boy got out on Friday after having his chemo. He is coping really well he has lost his hair but not his sense of humour. He is such a brave boy all he keeps saying is he is a soilder because he wants to join the army when he is old enough. He was up at judo coaching on Tuesday night and loved it. I wasnt sure about him doing it but he said he wasnt born to sit on the back burner and if he thinks like that what right have i got to stop him. My dad on the other hand has totally given up all he wants to do is stay in his bed and that is not like him. He doesnt want to go in hospital again and hes made my mum promise that she wont say anything to the doctor. I try to say that the wee man is looking up to him the now but he just says he nows whats going to happen. I think he has depression and i said he should talk to the doctor but i got told that im his child and concern myself with my own life. Iam gratefull for all the comments of support and it is a relief to get it off my shoulders. So thankyou very much for your lovelly words.

My son has cancer

2009-04-10T22:37:59Z

My son has been diagnosed with ewings sarcoma 6 weeks ago. My dad has got advanced lung cancer. and i feel my world is spinning out of control. My little boy who is 10 has had 2 blocks of chemo and i can see the weight drop off him. It is really hard to keep the brave face on in front of him and his little sister. My dad isnt doing to good either he made my mum promise not to send him back in hospital.