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<?xml-stylesheet type="text/xsl" href="https://community.macmillan.org.uk/cfs-file/__key/system/syndication/atom.xsl" media="screen"?><feed xmlns="http://www.w3.org/2005/Atom" xml:lang="en-US"><title type="html">Christine R</title><subtitle type="html" /><id>https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/atom</id><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1" /><link rel="self" type="application/atom+xml" href="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/atom" /><generator uri="http://telligent.com" version="12.1.2.21912">Telligent Community (Build: 12.1.2.21912)</generator><updated>2011-09-08T20:51:34Z</updated><entry><title>The BICH is back!</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/posts/the-bich-is-back" /><id>https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/posts/the-bich-is-back</id><published>2011-09-17T17:10:00Z</published><updated>2011-09-17T17:10:00Z</updated><content type="html">&lt;p&gt;No, it&amp;#39;s not a spelling error. BICH stands for Benign IntraCranial Hypertension. It&amp;#39;s a condition that I suffer from where the pressure of the Cerebro-Spinal fluid builds up and causes pressure on my brain. This results in severe headaches, dizziness, nausea (sometimes vomiting) and extreme tiredness.&lt;/p&gt;
&lt;p&gt;The only treatment for this is lumbar puncture to relieve the pressure. Apparently there are diuretics available which work directly on the brain, but they are reluctant to prescribe them because of the severe side effects. I am lucky in that I have only ever had one lumbar puncture. I do get a flare up of the condition from time to time, but it usually settles on it&amp;#39;s own, so fingers crossed that will be the same this time.&lt;/p&gt;
&lt;p&gt;My problem this time is that the dizziness is really bad, worse than it has been in the last few flare ups.&lt;/p&gt;
&lt;p&gt;Just have to take it in my stride! I need some luck in my life for a wee change, so maybe I will win the lottery tonight. First time I&amp;#39;ve bought a ticket since I can&amp;#39;t remember when.&lt;/p&gt;
&lt;p&gt;So, the dizzy blonde (all natural) will having everything crossed for tonight&amp;#39;s draw hee hee.&lt;/p&gt;
&lt;p&gt;Hope you are all having as good a weekend as possible.&lt;/p&gt;
&lt;p&gt;Love, Christine xx&lt;/p&gt;
&lt;p&gt;&amp;nbsp;&lt;/p&gt;&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=455442&amp;AppID=32261&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="lumbar puncture" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/lumbar%2bpuncture" /><category term="nausea" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/nausea" /><category term="Benign" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/Benign" /><category term="tiredness" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/tiredness" /><category term="side effects" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/side%2beffects" /><category term="vomiting" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/vomiting" /><category term="brain" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/brain" /></entry><entry><title>Severe Pain</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/posts/severe-pain" /><id>https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/posts/severe-pain</id><published>2011-09-13T19:56:15Z</published><updated>2011-09-13T19:56:15Z</updated><content type="html">&lt;p&gt;Tonight I am in severe pain all over my body. It&amp;#39;s pain like you get with flu. Severe, sharp pain shooting throughout my body. I also suffer from sharp pins and needles like pain in my fingers and soles of my feet which I know is peripheral neuropathy.&lt;/p&gt;
&lt;p&gt;It all started when I had chemo 7 years ago. I spoke to a doctor about it who said that it sounded like nerve damage caused by chemo and if it continued when chemo was finished they would try to treat it. I then spoke to the Macmillan nurse about it who told me that the type of chemo I got didn&amp;#39;t cause nerve damage. Then the surgeon told me everybody reacts differently to chemo, so it could well be caused by the drugs.&lt;/p&gt;
&lt;p&gt;Standard painkillers don&amp;#39;t touch the pain. I can&amp;#39;t take codeine or anything morphine based as the itching drives me crazy. Sometimes I feel that is worse than the pain.&lt;/p&gt;
&lt;p&gt;I was given low dose Amytryptaline (an anti-depressant) with no success. Anti-convulsant meds left me unable to keep my eyes open for any length of time. So, where does this leave me?&lt;/p&gt;
&lt;p&gt;I consulted a homeopath who gave me a small white pill. I think it contained minute amounts of poison ivy and it worked wonders. Pain disappeared, so I discontinued this.&lt;/p&gt;
&lt;p&gt;Tonight I&amp;#39;m suffering for the first time in ages. Usually I find if I develop a cold or other type of infection the pain does return, but I&amp;#39;ve been relatively well lately.&lt;/p&gt;
&lt;p&gt;The only thing I can think of is that I have recently stopped taking my anti-depressants as I no longer need them. I did notice a difference when I was taking them.&lt;/p&gt;
&lt;p&gt;I suffer from severe stiffness and pain and my bones click badly when I move. I suffer from M.E. and asked my GP last year if my symptoms could be due to Fibromyalgia, but she said it sounded more like Polymyalgia. I found the anti-depressants helped with this pain, but now that I have stopped them the pain is back. Sometimes I even have difficulty cleaning myself after I&amp;#39;ve been to the toilet I am so stiff and sore. I really don&amp;#39;t want to take the anti-depressants for ever either as they leave me tired too. I was sleeping up to 16 hours a day recently and realised that these were the cause.&lt;/p&gt;
&lt;p&gt;So, looks like I&amp;#39;m back to square one. Unfortunately I know that the pain will affect me to the point where I get depressed and am forced to take co-codamol or some such then I&amp;#39;m scratching till I bleed. Ah, the joys!&lt;/p&gt;
&lt;p&gt;I do still have some of the homeopathic remedy, so will give that a go.&lt;/p&gt;
&lt;p&gt;The other thing I have developed recently is severe shoulder pain and pain at the joint of one of my thumbs. Oh, I really am falling to bits slowly, but surely.&amp;nbsp;&lt;/p&gt;
&lt;p&gt;Sorry to be a moaning minnie tonight, just pee&amp;#39;d off being in pain all day. Still, there&amp;#39;s always tomorrow.&lt;/p&gt;
&lt;p&gt;Christine xx&lt;/p&gt;&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=454281&amp;AppID=32261&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="neuropathy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/neuropathy" /><category term="shoulder" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/shoulder" /><category term="needles" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/needles" /><category term="codeine" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/codeine" /><category term="itching" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/itching" /><category term="surgeon" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/surgeon" /><category term="sleeping" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/sleeping" /><category term="morphine" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/morphine" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/chemotherapy" /><category term="Peripheral neuropathy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/Peripheral%2bneuropathy" /><category term="infection" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/infection" /><category term="painkillers" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/painkillers" /><category term="toilet" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/toilet" /><category term="antidepressants" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/antidepressants" /></entry><entry><title>linda4u</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/posts/linda4u" /><id>https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/posts/linda4u</id><published>2011-09-13T18:39:48Z</published><updated>2011-09-13T18:39:48Z</updated><content type="html">&lt;p&gt;&lt;span style="font-family:mceinline;"&gt;&lt;b&gt;Please be aware everyone that linda4u is a scammer. I see some people are still adding &amp;#39;her&amp;#39; as a friend.&lt;/b&gt;&lt;/span&gt;&lt;/p&gt;
&lt;p&gt;&lt;span style="font-family:mceinline;"&gt;&lt;b&gt;This person has been banned since May, but somehow is still able to come on site and request friends. Don&amp;#39;t understand how this can happen!&lt;/b&gt;&lt;/span&gt;&lt;/p&gt;
&lt;p&gt;&lt;span style="font-family:mceinline;"&gt;&lt;b&gt;It is always advisable when you receive a friend request to check their bio. Usually if they are scammers it will say edited by admin on their page.&lt;/b&gt;&lt;/span&gt;&lt;/p&gt;&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=454255&amp;AppID=32261&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author></entry><entry><title>A wee smile lol ;0)</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/posts/a-wee-smile-lol-0" /><id>https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/posts/a-wee-smile-lol-0</id><published>2011-09-08T19:55:01Z</published><updated>2011-09-08T19:55:01Z</updated><content type="html">&lt;p&gt;Just thought I&amp;#39;d share something with you that I heard today while in the waiting room of the dental hospital.&lt;/p&gt;
&lt;p&gt;A nurse walked along the corridor past the reception desk and said loudly to the girls there, &amp;quot;I should wear one of those speedometer things that measures how many footsteps you take in a day!&amp;quot;&amp;nbsp;&lt;/p&gt;
&lt;p&gt;I had a quick peek to see if anyone else noticed what she had said, but, all sat stoney faced, so either they hadn&amp;#39;t noticed or were, like me, trying not to laugh lol.&lt;/p&gt;
&lt;p&gt;Christine xx&lt;/p&gt;&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=452740&amp;AppID=32261&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/Hospital" /></entry><entry><title>My mum</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/posts/my-mum" /><id>https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/posts/my-mum</id><published>2011-09-08T19:51:34Z</published><updated>2011-09-08T19:51:34Z</updated><content type="html">&lt;p&gt;Today I was at the Dental hospital with my mum.&lt;/p&gt;
&lt;p&gt;She has been complaining of a having a really sore mouth for a while now. She phoned the doctor&amp;#39;s surgery who advised her to let the pharmacist have a look which she did. The pharmacist prescribed bonjela for ulcers, but she has a sore on her cheek which she thought perhaps her dentures was causing.&lt;/p&gt;
&lt;p&gt;Eventually she went to her dentist who told her she wasn&amp;#39;t happy with the growth on her cheek. A week later the growth had increased in size. An urgent referral was made to the dental hospital.&lt;/p&gt;
&lt;p&gt;A biopsy was done today. Saw two different consultants who both said they don&amp;#39;t know what it is, but it does feel lumpy. Not sure what that means , if anything!&lt;/p&gt;
&lt;p&gt;We will get the results in two weeks. Keeping everything crossed that it is only caused by her dentures rubbing.&lt;/p&gt;
&lt;p&gt;She smokes about 40 cigs a day, if not more, and has been drinking every day since dad died last year, so isn&amp;#39;t doing herself any favours.&lt;/p&gt;
&lt;p&gt;Will keep you posted when the results come in.&lt;/p&gt;
&lt;p&gt;Christine xx&lt;/p&gt;&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=452738&amp;AppID=32261&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="Ulcers" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/Ulcers" /><category term="dentist" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/dentist" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/Hospital" /><category term="biopsy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/christine_r1/archive/tags/biopsy" /></entry></feed>