Cervical cancer age 25 no children:(

Trachelectomy success,all clear :)

2010-08-31T16:35:23Z

Hi everyone

Its been 3 wks since my trachelectomy,and 2 wks since bein given the all clear :) From the cervix and partial uterus removed the margins were clear no sign of any stage of Cin ( no residual tumour or pre cancerous cells)

Im just so relieved that this operation was a success and has given me a chance to carry my own child. I hope this gives ppl hope if they are going through the same choices and options, that you have to do whats right for you and try other options x x

week after trachelectomy

2010-08-16T13:50:52Z

Well as ya can probably guess my results weren't what we wanted,so last mon i had a partial trachelectomy,not needing to remove lymph nodes or ligaments luckily.

Once again waiting for these results now :(

Ive noticed a lot more entries on cervical cancer, a fantastic website called jo's trust is very helpful indeed wiv lots of advice and help :)

Keep fightin,keep smilin

lots of love

jacky

mri ok,3rd cone biopsy done,results next wed

2010-06-22T09:18:00Z

hi evry1 just got back from hosp.Had my 3rd cone biopsy but this time at the specialist hosp,and feel so much more in the picture and positive.Plus they had them electric beds,that my fella wouldnt stop tryin 2 squash me in.....love hey!dont worry this was b4 my op not after haha.

Spoke to my doc b4 operation,the MRI was fine doesn't show any sign of it anywhere else.thank god that is a huge weight off my mind.The op itsself went ok also,he was able to do another biopsy as this was unsure until he actually had a look from what my last doctor had done.Came round and was just thrilled not to have a catheter or drip or packing this time:)Had stich put in however.Got niggly period pains but nothin i cant handle and bleeding however this is normal,plus it aint any heavier than one of my periods.Back home now and obv walkin more careful,its just annoying me i cant do me house jobs,even tho we both done em sunday!!!!!

So im being put back on the MDT (medical discussion team)when they get my results back,and im goin back to clinic next Fri 2nd july for a discussion.Im just glad he felt he could operate meaning a chance that he may of got all the tumour.Im not getting my hopes up but feel a lot better with this doc,as he tryin everything so to try not hav me havin hysterectomy!

MRI scan

2010-06-17T20:29:00Z

hey evry1,hope evry1"s ok x

Just got back from my MRI.Now im not a wimpy girl,have a high pain threshhold and dont scare easy,but today has worn me out. I couldnt even open my eyes,didnt even look at the machine,had the plates placed on my stomach and strapped in place,headphones put on and panic button in hand.The only way to describe it is like being put in a coffin with load sounds like machine guns,bangin,lazers,just very uncomfortable.Filled up a few times but didnt wanna move to make sure i didnt hav 2 stay in there any longer than i had 2,im just so relieved 2 be out of it then burst in2 tears.

The results are being rushed thru for my op on monday,so fingers crossed and prayers that the tumour hasn"t entered my uterus.

One thing also,i went 2 see a medium tuesday evening,and she knew straight away.......first thing she said was ur not well are you and im not talkin flu or a cough!!!I dont look ill so ya couldnt of guessed from my appearance.She knew it was womens problems and was spot on with evrythin else she had said.She has done me a kinda little bet,she didnt want me 2 pay her till i get the all clear as she has predicted then wants me 2 go back and she will giv the fee 2 cancer research!!I know a lot of ppl think its cobblers but it has relaxed me a bit,but dont worry im not foolin myself with her say so..............i suppose only time will tell..........

love 2 ya all

part 3 only just hitting me

2010-06-08T21:42:00Z

hi evry1

I was diagnosed 1oth May,and only just now realising its not actually someone else im talking about,its me!i've been walking around with a smile on my face trying to cheer those up around me,cracking jokes about the situation.however now my mood seems to be up and down.i dont want to be breaking down,(not that i think thats not ok)its just not how i deal with things.But things have never been this serious b4.Cancer has never effected our family.
I dont know if this is because my MRI scan is due on the 17th and my op on the 21st?The mri however is a worry,had nightmares recently that i had skin cancer aswell,as i am quite molely (it definately makes ya a little paranoid),prob with all the anxiety and things goin on in my head
I've actually been on a bit of a mission getting all the women i know to book a smear,(i work in a salon so meet a lot of women).Was actually really disgusted with being told that one of my clients,being 21 and having all the symptoms has been refused a smear.She was actually told if she wanted one she would have to go private and pay.i was appalled,if ya request a smear u should be given one!Even tho i had no symptoms i asked for one last yr to be told i didnt need one if had no symptoms!WRONG!but there's no point me looking at the what ifs now!
I feel so useless and want to help in any way.....(see my mood went bit angry there haha)

i hope all going through treatment are keeping strong,and everyone else going through this challenging time keep smiling

love 2 ya all
will be back on after my MRI xxxxxxxxxxxxxxxxxxxxxxx

part 2 confusion

2010-06-08T21:40:00Z

i have been to see the specialist ,its early stage cancer type 1a,4.8 mm,its just in an awkward postion. the trachelectomy procedure,however after looking over my notes and speakin to the consultant who performed my knife cone biopsy"s,he has said this procedure is not suitable as the tumour is on the vaginal wall of the uterus higher up the cervix,so they cannot see whether any has entered the uterus.(i dont know how to explain this)The trac would basically take the width across the cervix but not the height if that makes sense!!??so they are sendin me for a mri mid june, then they are goin to try another biopsy the week after, but obviously wont know what they"re looking for,as their will be scarring from the previous op.However if this is not successful,i need to prepare myself for the hysterectomy.

But im tryin to stay positive,not get my hopes up as seem to keep getting knocked back down,and take each day as it comes.When you first hear that word it scares the hell out of you,and i was thinking "am i going to die"? NO i am not,but this has definately made me view things in a different light x

Cervical cancer age 25 no symptoms,no children

2010-06-08T21:36:00Z

hi everyone,

i was diagnosed 10th may with cervical cancer,all this coming from my first smear test 2 days b4 my 25th birthday.

abnormal cells (severe dyskaryosis) were found and i was sent for a colposcopy.here she found the area affected would be too painful,and too large for her to do minor biopsies,as it was on the vaginal wall,so i was sent for the lletz treatment under genereal anaesthetic.

i recovered fine from this,was too busy wanting to eat something that i was allowed home a couple of hours later.5 ridiculous weeks of waiting then i get a phone call telling me i had to go back in and have a knife cone biopsy.Through all this i was never actually seen by the consultant who was doing my treatments,i was seen by one of god knows how many of his team,just telling me all text book information.But always saying the cells were not cancer,they were pre cancerous!!!!

i wasn't too worried about the operation thinking it would just be the same as before,i was wrong.Once again i wasn't seen by the consultant,another different member was sent to see me.

Waking up from this was like being kicked in the guts with a sledge hammer,i dont know if i had a bad reaction to the anaesthetic or what but it was definately painful,i was given morphine which i dunno what all the hype was about it didnt clear me of pain.plus could i get anymore.....oh yeah had a reaction to the morphine was covered in a rash!!lol,i laugh now!!

what was more scary was the sight of a drip and catheter,noone had told me that i would need these,the fact that now knowin i would not be going home i was a mess.once again my consultant was not seen,and it was actually the nurses that informed me more,also telling me i had packing also to stop the bleeding, which i had no idea about,thought that was just the catheter.

on mon i had to go finally meet the consultant,3 weeks after the 2nd op,for him to tell me i had cervical cancer,something i never prepared myself for hearing as was always told "pre"cancerous cells.Apparently he has been meeting other specialists to discuss my options as i am a bit of a dilemma,25 yrs old (a baby as he called me),and no children (something i've always wanted with my partner but wanted to do everything the right way,we just bought our 1st home together and are in the middle of doing it up)

a hysterectomy is the ideal treatment,(im actually filling up now just writing it),however a trachelectomy has been offered,i have been told this isn't a very common procedure but if anyone has any info or experience,i would really love to hear from you.