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<?xml-stylesheet type="text/xsl" href="https://community.macmillan.org.uk/cfs-file/__key/system/syndication/atom.xsl" media="screen"?><feed xmlns="http://www.w3.org/2005/Atom" xml:lang="en-US"><title type="html">CCL</title><subtitle type="html" /><id>https://community.macmillan.org.uk/cancer-blogs/b/ccl/atom</id><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/ccl" /><link rel="self" type="application/atom+xml" href="https://community.macmillan.org.uk/cancer-blogs/b/ccl/atom" /><generator uri="http://telligent.com" version="12.1.2.21912">Telligent Community (Build: 12.1.2.21912)</generator><updated>2022-05-06T14:09:00Z</updated><entry><title>CLL and Extreme Fatigue</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/cll-and-extreme-fatigue" /><id>https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/cll-and-extreme-fatigue</id><published>2024-10-13T11:58:36Z</published><updated>2024-10-13T11:58:36Z</updated><content type="html">Hi Everyone,
Hope youre well,
I was diagnosed with CLL not long ago, Ive had a recent blood test as Im finding Im struggling with extreme fatigue, tired after just 4/5 hours awake at times.
My&amp;nbsp;&amp;nbsp;leukocytes are currently at 133.62 with the ra...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/cll-and-extreme-fatigue"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=721747&amp;AppID=41010&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>JohnH321</name><uri>https://community.macmillan.org.uk/members/c5849b9481ca4fdd87441968b58fc87a</uri></author><category term="Chronic lymphocytic leukaemia" scheme="https://community.macmillan.org.uk/cancer-blogs/b/ccl/archive/tags/Chronic%2blymphocytic%2bleukaemia" /></entry><entry><title>ERN CLL</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/ern-cll" /><id>https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/ern-cll</id><published>2022-10-07T12:35:00Z</published><updated>2022-10-07T12:35:00Z</updated><content type="html">I haven&amp;#39;t blogged for a wile I&amp;#39;m into my 8 month of Kimmo all well then, I was told that my liver is starting to produce more white cells than normal {&amp;nbsp;&lt;a id="fprsl" class="gL9Hy" href="https://www.google.com/search?client=avast-a-1&amp;amp;sxsrf=ALiCzsZnbDlXljjOVF8q7uso2Gs9ZoiHWQ:1665146516345&amp;amp;q=hemochromatosis&amp;amp;spell=1&amp;amp;sa=X&amp;amp;ved=2ahUKEwjRpeiUks76AhXDRcAKHb1KDKMQkeECKAB6BAgNEAE"&gt;hemochromatosis&lt;/a&gt;} and starting to kill off my red cell, swings and roundabouts, still ...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/ern-cll"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=720408&amp;AppID=41010&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author></entry><entry><title>Ern with CLL</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/ern-with-cll" /><id>https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/ern-with-cll</id><published>2022-05-21T18:44:00Z</published><updated>2022-05-21T18:44:00Z</updated><content type="html">still continuing with my kimo plus now having monthly infusion introvinusley first one lasts for over 5 hours long to see if you have any reaction to the fusion. Then every month witch will last for 1and a half hours.(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/ern-with-cll"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=720136&amp;AppID=41010&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="Infusion" scheme="https://community.macmillan.org.uk/cancer-blogs/b/ccl/archive/tags/Infusion" /></entry><entry><title>Me and CLL</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/me-and-cll" /><id>https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/me-and-cll</id><published>2022-05-06T13:09:00Z</published><updated>2022-05-06T13:09:00Z</updated><content type="html">my first time at this. after several years of going to and from the doctors seeing different ones I was first diagnosed with hemacromatosis&amp;nbsp; of the{ LIVER } spent 2 years with having blood taken from me that caused the cll to grow. Started me of...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/ccl/posts/me-and-cll"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=720104&amp;AppID=41010&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="Venetoclax" scheme="https://community.macmillan.org.uk/cancer-blogs/b/ccl/archive/tags/Venetoclax" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/ccl/archive/tags/Hospital" /></entry></feed>