<?xml version="1.0" encoding="UTF-8" ?>
<?xml-stylesheet type="text/xsl" href="https://community.macmillan.org.uk/cfs-file/__key/system/syndication/atom.xsl" media="screen"?><feed xmlns="http://www.w3.org/2005/Atom" xml:lang="en-US"><title type="html">boatbum&amp;#39;s blog </title><subtitle type="html">boatbum&amp;#39;s blog </subtitle><id>https://community.macmillan.org.uk/cancer-blogs/b/boatbum/atom</id><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/boatbum" /><link rel="self" type="application/atom+xml" href="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/atom" /><generator uri="http://telligent.com" version="12.1.2.21912">Telligent Community (Build: 12.1.2.21912)</generator><updated>2009-07-14T14:37:43Z</updated><entry><title>Beauriful morning</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/beauriful-morning" /><id>https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/beauriful-morning</id><published>2009-07-20T04:50:37Z</published><updated>2009-07-20T04:50:37Z</updated><content type="html">I&amp;#39;m sat here with a cup or tea, watching the sky and clouds.....and it&amp;#39;s nice! Puppy is the reason I&amp;#39;m up so early as she needed to go out. She&amp;#39;s sat with me in our spare bedroom/study/gym, whining because I won&amp;#39;t let her get in our bedroom and jump all over Chloe. 

Today, I see the chemo clinic and ask them where the perforation actually. was. The surgical tea said it was well away from the tumour, and only because of the perforation are they actually offering me chemo. Which is the reason I had decided, especially after discussing it with my GP, not to go ahead with it.

So, I&amp;#39;ve been indulging my vices over the weekend! Smoking, drinking and fine herb! Madness were good, and it didn&amp;#39;t rain while they were on stage, so that was a bonus. Our friends were great company and took us out to lunch yesterday, before drivng back to London.&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=228811&amp;AppID=23954&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="tumour" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/tumour" /><category term="Bone cancer, secondary" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/Bone%2bcancer_2C00_%2bsecondary" /><category term="secondary" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/secondary" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/chemotherapy" /><category term="smoking" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/smoking" /><category term="Surgical" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/Surgical" /></entry><entry><title>Yup!</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/yup" /><id>https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/yup</id><published>2009-07-18T12:45:29Z</published><updated>2009-07-18T12:45:29Z</updated><content type="html">I did that, still refuses to admit me. Any use sending an email to Helpdesk?&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=228810&amp;AppID=23954&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author></entry><entry><title>A technical question</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/a-technical-question" /><id>https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/a-technical-question</id><published>2009-07-18T09:57:17Z</published><updated>2009-07-18T09:57:17Z</updated><content type="html">Why can&amp;#39;t I get into the chat rooms? I&amp;#39;ve followed all the instructions on Java support, and downloaded latest version. It&amp;#39;s still telling me my browser is not Java enabled!&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=228809&amp;AppID=23954&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="colorectal" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/colorectal" /></entry><entry><title>Thanks, everybody...not</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/thanks-everybody-not" /><id>https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/thanks-everybody-not</id><published>2009-07-17T18:43:22Z</published><updated>2009-07-17T18:43:22Z</updated><content type="html">So ..wonderful that you make newcomers so welcome and offer advice so readily...ha, ha. To all you other newbies, don&amp;#39;t expect too much, they&amp;#39;re all too wrapped up in their own misfortunes. Hey, we allhave cancer and cope wth it in different ways, but good luck and best wishes to you all.&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=228807&amp;AppID=23954&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="colorectal" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/colorectal" /></entry><entry><title>Chapter 7 1/2</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/chapter-7-1-2" /><id>https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/chapter-7-1-2</id><published>2009-07-17T08:02:17Z</published><updated>2009-07-17T08:02:17Z</updated><content type="html">Had a surreal conversation with my neighbour yesterday afternoon (I was talking to her out of my window!) She is release co-ordinator for the Oncology Department where I had my surgery, and conversation got around to whether or not I was going to have chemo. I said I really wasn&amp;#39;t happy with it, given that it&amp;#39;s supposedly belt and braces stuff. She said, why don&amp;#39;t you leave it a year and see how things are then. So, that seems like a good position to me and in that year, I&amp;#39;ll go for a complete detox, by diet, stop smoking entirely and leave alcohol for the mnor celebration in life (you know the ones I mean....Friday nights, visitors, watching a great gig)

I&amp;#39;d really like to hear from people who have been through this, diagnosis, surgery, and then trying to work out what&amp;#39;s best way forward.&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=228803&amp;AppID=23954&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="oncology" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/oncology" /><category term="alcohol" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/alcohol" /><category term="colorectal" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/colorectal" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/chemotherapy" /><category term="smoking" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/smoking" /></entry><entry><title>Not a good day!</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/not-a-good-day" /><id>https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/not-a-good-day</id><published>2009-07-16T06:27:26Z</published><updated>2009-07-16T06:27:26Z</updated><content type="html">Well, it was nine weeks yesterday since surgery, and I was having a good day, busy tidying up for visitors this weekend. I have tickets for Madness, Aswad on Saturday night and we&amp;#39;re all off to see that.

We have a four month old puppy, which we collected a week after I came out of hospital, and she&amp;#39;s a bit manic. Two speeds, asleep and 100 miles an hour. She lives in our kitchen, behind a child gate,and I managed to trip over it yesterday afternoon and really hurt my ankle. don&amp;#39;t think it&amp;#39;s broken, but it hurts like hell, and I can&amp;#39;t put weight on it. Then woke up this morning and my stoma bag had leaked. Oh, joy!!&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=228802&amp;AppID=23954&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="weight" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/weight" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/Hospital" /><category term="colorectal" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/colorectal" /><category term="stoma" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/stoma" /></entry><entry><title>Day 63 since surgery!</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/day-63-since-surgery" /><id>https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/day-63-since-surgery</id><published>2009-07-15T06:43:11Z</published><updated>2009-07-15T06:43:11Z</updated><content type="html">I&amp;#39;ve been reading through some of the forums, groups on here, trying to get some sort of handle on what&amp;#39;s happening in our world. Some heart warming stuff! Hasn&amp;#39;t made me decide yet whether to go for the chemo or not.

I don&amp;#39;t feel at this time that it&amp;#39;s a roller coaster ride emotionally, while coming to terms with the changes to come in my lifestyle......


Advice about chemo or not,comments generally or personal experence would be very welcome.&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=228799&amp;AppID=23954&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="colorectal" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/colorectal" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/chemotherapy" /></entry><entry><title>Boatbum' Blog</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/boatbum-blog" /><id>https://community.macmillan.org.uk/cancer-blogs/b/boatbum/posts/boatbum-blog</id><published>2009-07-14T13:37:43Z</published><updated>2009-07-14T13:37:43Z</updated><content type="html">Where am I going, what am I doing? After recent surgery, and assurances that they have removed tumour, diverticulitis and perforation, they want to do chemo as a belt and braces. My partner, a naturopthic nutritionist, is agin it, my son was all for it, but after a conversation with him yesterday, he will support my decision whatever that is.

From my research s far, I am leaning to the opinion that chemo is a waste of time, and way, way too invasive. I may still be in denial, but I did at least have a CT scan on my upper chst yesterday.

I am bored with all this, tired of hospitals, and certainly not happy mentally with the stoma, though physically it&amp;#39;s not a problem. I want my partner back as a lover!!&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=228797&amp;AppID=23954&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="tumour" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/tumour" /><category term="invasive" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/invasive" /><category term="research" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/research" /><category term="colorectal" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/colorectal" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/chemotherapy" /><category term="CT Scan" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/CT%2bScan" /><category term="stoma" scheme="https://community.macmillan.org.uk/cancer-blogs/b/boatbum/archive/tags/stoma" /></entry></feed>